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Diabetes: A Family Matter Program and Toolkit

Sharon A. Denham, DSN, RN Professor, Ohio University School of Nursin g. Diabetes: A Family Matter Program and Toolkit. Centers for Disease Control and Prevention National Diabetes Education Program Ohio Department of Health Diabetes Prevention and Control Program

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Diabetes: A Family Matter Program and Toolkit

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  1. Sharon A. Denham, DSN, RN Professor, Ohio University School of Nursing Diabetes: A Family Matter Program and Toolkit

  2. Centers for Disease Control and Prevention National Diabetes Education Program Ohio Department of Health Diabetes Prevention and Control Program Ohio University’s Appalachian Rural Health Institute (ARHI) Ohio University, Diabetes Research Initiative (DRI). Ohio University’s Office of Research and Sponsored Projects Challenge Grants Support & FUNDING

  3. Dr. Frank Schwartz Chris Knisely Dr. Ann Rathbun SPECIAL ACKNOWLEDGEMENT

  4. Dr. Margaret Manoogian, Dr. Kathy Rose-Grippa, Larry Hamel-Lambert, Amelia Krales, Steve Fetsch, Joshua Ramsey, Norm Bebee, Dana Formby, Nicholas Sgouros, William Zorn, Dr. Lynn Harter, Dr. Karen Remsberg, Dr. Larry Wood, Tara O’Brien, Patricia Harris, Kallia Wright, Tammy Collier, Cara Butcher, Stacey Hartman, Jeff Negrelli, Eimi Lev, Maria Averion, Joe Bass ACKNOWLEDGEMENTS

  5. Dr. Jay Shubrook, Barbara Nakanishi, Suzanna Theodoras, Carole Merckle, Diabetes Center’s Diabetes Coalition, Beth Pingle, Francie Astrom, Karen Bailey, Dr. Benjamin Bates, Dr. Darlene Berryman, Ruth Dudding, Dr. Jennifer Hinton, Dr. Mary de Groot, Susan Isaac, Dr. Jane Hamel-Lambert, Dr. Bruce Martin, Dr. David Mould, Deborah Murray, Dr. Rafael Obregon, Tracey O’Dell, Dr. Brian Quick, Nancy Schell, Jane Snider, Kathy Trace, Deanna Tribe MORE ACKNOWLEDGEMENTS

  6. Dr. Jane Kelly Nancy Schaefer Cheryl Branham Kathy Chapman Ellen Peterson VERY Special Thanks

  7. Kimberly Malone Michelle Malone Leslie Malone Antonio Keith (T.J.) Teran Keith Ann Rathbun EXTRA SPECIAL THANKS

  8. Dedication to Kimberly Malone

  9. Access High costs and affordability Lack of health care insurance Increased numbers of seniors Increases in chronic illness Electronic medical records Epidemic of diabetes & obesity Health Care in Our nation

  10. Appalachia

  11. Diabetes is a growing problem in Appalachian region. Cultural uniqueness of the region. Lack targeted diabetes education and teaching materials. Family is important in lives for Appalachian people. Lack family-focused diabetes education materials. Primary care largely inadequate for holistic needs. ASSUMPTIONS

  12. Diabetes experts and other health practitioners are not readily accessible to many. Need new approaches to address healthy lifestyle behaviors, diabetes prevention, and diabetes self-management. Community programs and volunteers have been successful. ASSUMPTIONS

  13. Excellent diabetes education materials for health professionals already exist and is available. Diabetes educators may not be knowledgeable about: * Community or population health * Working with coalitions * Volunteer programs * Development, implementation, and evaluation of sustainable community programs. ASSUMPTIONS

  14. Broadband access is not yet readily available, but availability continues to grow. Social networking can be a valuable tool for mobilizing people and groups. ASSUMPTIONS

  15. Healthy lifestyles, diabetes prevention, and diabetes self-management Type 2 diabetes (primarily) Rural focus Program for Appalachian communities Program Purposes

  16. Family-Focused versus Medical Model Family Context (family history, genetics, place, culture) Family Function (communication, caregiving, story-telling) Family Routines Family Health Model (Denham, 2003)

  17. Lived experience and biomedical accounts Narrative competence and clinical care Diabetes as a “Family Disease” Diabetes more than individual problem (extended kin networks, place, faith, etc.) Health legacies Reconstruct new stories (e.g., not being “beholden to others”) The Storied Lives of Diabetes

  18. Ecological context Diversity Geography Multiple interacting sectors More than traditional ideas of health care Community Perspectives

  19. Low literacy and Health Literacy Cultural identification (avoid stereotypes) Empowerment Living with diabetes Material Development

  20. Novel approaches/innovative ideas Interdisciplinary input Web 2.0 availability Multiple types of audiences Material Development

  21. Give local people a voice. Take personal actions to improve the quality of life of those that live in your community. Work with others to positively mobilize the resources available in your community to address the health of local residents. Empowerment and active involvement of all local residents. Citizen Action

  22. Train the trainer model Community coalitions SUGAR Helpers (Support to Unite Generations in the Appalachian Region) Citizen Action

  23. Diabetes Educator Manual SUGAR Helper Manual Series of brochures Posters Fotonovellas Bookmarkers Film Plays Materials

  24. www.diabetesfamily.net Toolkit section of website Multiple activities “Ask Me” Campaign Toolkit Activities

  25. Website: www.diabetesfamily.net

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