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VICTR Data Management

VICTR Data Management. CRC Research Skills Workshop Michael Assink April 6 th , 2012. VICTR – CTSA at Vanderbilt.

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VICTR Data Management

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  1. VICTR Data Management CRC Research Skills Workshop Michael Assink April 6th, 2012

  2. VICTR – CTSA at Vanderbilt • The Vanderbilt Institute for Clinical and Translational Research (VICTR) is supported by the Vanderbilt Office of Research and the NIH sponsored Clinical and Translational Science Award (CTSA) • Mission: transform the way ideas and discoveries make their way into patient care

  3. VICTR Data Management • Synthetic Derivative • De-identified database and tools, well-established • Research Derivative • Fully identified clinical database, specialized for research, new and still under development • [ BioVU ] • DNA Databank – uses Synthetic Derivative for analysis • REDCap (integration)

  4. Synthetic Derivative (SD) • Indexed by a one-way hash of MRN • Notes are scrubbed of names, dates are shifted • Front-end tool typically used for access and analysis • Services are available to help deliver results for non-standard queries (temporal queries, controls matching, etc)

  5. Research Derivative (RD) • Fully identified repository of integrated clinical data • Integrates many data sources across the enterprise – EDW, HEO, StarPanel to name a few • Available exclusively for IRB-approved studies • User front-end is still under development • Some REDCap integration (labs), Recruitment Tool development underway • All other results are delivered by analysts on a fee-for-service basis (work <= ~1 hour can be covered by our CTSA infrastructure grant)

  6. Types of Requests Suited to the RD • Any study requiring identifiable information • Studies needing manual review (necessitating use of MRNs in StarPanel) • Situations where cohorts or other identified data already exist, and need to be matched to other variables • Time-sensitive requests (recruitment) • Specialized data sets not available in SD

  7. RD Datasets • Codes – ICD9 & CPT4 • Demographics, encounters • Lab results • Medications (Wiz, RxStar, PAML, others) • Star documents (reports, etc.)– indexed • Registries – Tumor, Cardiology (STS/ACC) • Star Forms, some flowsheets

  8. RD Request Steps • Research Data Request Form • IRB application if needed, or simple verification if already in place • Population definition • Variable (extract) definition • Rinse and repeat

  9. Leveraging VICTR Resources • Record Counter (RC) – part of SD but open to anyone with a Vunet ID: https://biovu.vanderbilt.edu/RC/RC.html • SD – see slides in other presentation (next) • RD – email or call me, or fill out a Request form at https://starbrite.vanderbilt.edu/ • (https://starbrite.vanderbilt.edu/managedata/datarequest.html )

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