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Supporting a healthy community

Supporting a healthy community. Lydia N. Collins, NN/LM MAR Consumer Health Coordinator Kathy A. Silks, PA Forward, Project Manager. Agenda. NN/LM MAR and NLM Health Literacy Information Needs of Consumers Health Information Resources MedlinePlus Drug Resources Resources for Youth

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Supporting a healthy community

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  1. Supporting a healthy community Lydia N. Collins, NN/LM MAR Consumer Health Coordinator Kathy A. Silks, PA Forward, Project Manager

  2. Agenda • NN/LM MAR and NLM • Health Literacy • Information Needs of Consumers • Health Information Resources • MedlinePlus • Drug Resources • Resources for Youth • Libraries and Health Literacy • Affordable Care Act • Programming • Questions

  3. NN/LM MAR and NLM

  4. NN/LM MAR: Your Regional Medical Library 8 Regional Offices • Support Network members to achieve NN/LM mission • 5-year contracts Mission • Provide health professionals, K-12 educators and the general public with equal access to and training on health and science resources http://nnlm.gov/mar NN/LM MAR Staff

  5. NN/LM MAR

  6. Health literacy

  7. Consumer Health – Then and Now… • 1972 Patient Bill of Rights (American Hospital Association) Realities of Health Care today: • Patients are now asked to make decisions about their own disease process. • Most patients do not have the tools to make these kinds of decisions • Libraries can help!

  8. Evolution of E-Patients • In 2000, 52 million Americans searched the internet for health • In 2002, 73 million… • In 2006, “Googling for a diagnosis” [BMJ] • In 2006, only one quarter of online health seekers said they always or usually check the source and date of health information online! In 2009 over 60% of Americans reported searching for health information online and over 60% of these people reported that their online searches impacted their health decisions.

  9. Pew Internet Health Online Study 2013 http://www.pewinternet.org/Reports/2013/Health-online.aspx

  10. What is the strongest predictor of an individual’s health status? • Age • Income • Employment status • Educations • Literacy skills • Racial/ethnic group

  11. Health Literacy… • The ability to read, understand and act on health information [Pfizer 2002] • The degree to which individuals have the capacity to obtain, process and understand basic health information and services needed to make appropriate health decisions [Healthy People 2020] • The degree to which an individual has the capacity to obtain, communicate, process, and understand basic health information and services to make appropriate health decisions [Patient Protection and Affordable Care Act of 2010, Title V]

  12. PA Forward 5 Literacies http://www.paforward.org/ Health Literacy “We ENVISION a Pennsylvania with active citizens able to manage their own and their family’s WELL-BEING, empowered to be EFFECTIVE PARTNERS with their healthcare providers, and living LONGER, MORE PRODUCTIVE lives”

  13. Fill in the blanks • One out of ? American adults reads at the 5th grade level or below. one out of 5 • Most Americans read at the 8th to 9th grade level, yet most health care materials are written above the ? grade level. 10th grade

  14. Health Literacy Skills are Critical!! • Essential life skill • Public health imperative • Essential part of social capital • Critical economic issue Sources: “Navigating Health: The Role of Health Literacy”, Kickbusch The health literacy of America's adults: Results from the 2003 National Assessment of Adult Literacy, Kutner et al Health literacy: An update of public health and medical literature., rudd et al.

  15. PA Forward Health Literacy Rationale “Libraries can play an important role in helping citizens manage their own and their family’s well-being, and empower them to be effective partners with their healthcare providers so they can live longer, more productive lives”. http://pala.affiniscape.com/associations/9291/files/LITERACYhealth.pdf

  16. National library of medicine resources

  17. MedlinePlus.gov Suitable for ALL ages Available in English and Spanish MedlinePlus.gov includes information on: Diseases and Conditions Wellness Issues Drugs & Supplements Interactive Tutorials Anatomy & Surgery Videos Calculators & Quizzes Games and much more…

  18. MedlinePlus 164 tutorials 78 anatomy videos 138 surgery videos 924 English 911 Spanish ~1,000 drugs 100 supplements 15-20 stories added daily 1,200 links to ClinicalTrials.gov 22 English issues 3bilingual issues Over 100 directories of doctors, hospitals, clinics & libraries >40 languages >250 topics >3,300 links ~ 3,500 articles > 2,000 images

  19. MedlinePlus Health Literacy http://www.nlm.nih.gov/medlineplus/healthliteracy.html

  20. MedlinePlus Health Literacy cont…

  21. MedlinePlus: Topics of Interest • Health Insurance • Bullying • Child Safety • Asthma • Obesity • Drugs and Young People • Attention Deficit Hyperactivity Disorder • Autism • Disaster Preparation and Recovery • Winter Weather Emergencies • Mental Health • Stress • Teen Violence • Social/Family Issues • Environmental Health • Caregivers • Parenting • Homeless Health Concerns • Domestic Violence • Lice • Flu • Conjunctivitis • Learning Disabilities • Teen Development • Veterans Health • Pet Health

  22. MedlinePlus – additional resources

  23. Multiple Languages on Health Topic Pages

  24. Multilingual Materials

  25. NIHSeniorHealth http://nihseniorhealth.gov/ This online resource includes: Health Topics Exercise Stories Health Videos Trainer’s Toolkit NIH Senior Health provides health and wellness information for older adults from the National Institutes of Health.

  26. Pillbox BETA Pillbox enables rapid identification of unknown solid-dosage medications (tablets/capsules) based on physical characteristics and high-resolution images.Once a medication is identified, Pillbox provides links to drug information and drug labels. http://pillbox.nlm.nih.gov/

  27. Drug Information Portal The NLM Drug Information Portal gives users a gateway to selected drug information from the U.S. National Library of Medicine and other key U.S. Government agencies. http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp

  28. PubMed Health PubMed Health specializes in reviews of clinical effectiveness research, with easy-to-read summaries for consumers as well as full technical reports. Clinical effectiveness research finds answers to the question “What works?” in medical and health care. Includes Behind the Headlines section (from England's National Health Service). http://www.ncbi.nlm.nih.gov/pubmedhealth/

  29. NLM K-12 Science and Health Education Resources • Health Information Tutorials • Lesson Plans • Projects • Spanish-Language Resources http://sis.nlm.nih.gov/outreach/k12.html • Biology • Environmental Health/Chemistry • Forensics and Medical Technology • General Health • Genetics • HIV/AIDS • Careers

  30. ToxMystery Suitable for ages 7-11 http://toxmystery.nlm.nih.gov/ Toxiethe Cat helps children find the hazards hidden in each room and offers hints when needed. Available in English and Spanish “For Teachers” section includes 3 lesson plans with student worksheets/activities” Parent Resources

  31. ToxMystery: Garage Scene

  32. Tox Town Suitable for grades 6-12+ http://toxtown.nlm.nih.gov/ http://www.toxtown.nlm.nih.gov/text_version/teachers6.php Provides information on: Everyday locations where you might find toxic chemicals Non-technical descriptions of chemicals How the environment can impact human health Available in English and Spanish Includes an afterschool Science Club Curriculum

  33. Tox Town: City Scene

  34. Household Products Database (HPD) Suitable for grades 6-12+ http://householdproducts.nlm.nih.gov/ HPD was designed to answer questions such as: What’s under your kitchen sink, in your garage, in your bathroom, and on the shelves in your laundry room? Do these household products pose a potential health risk to you and your family? What are the chemical ingredients and their percentages in specific brands? Which products contain specific chemical ingredients?

  35. HPD: Product Categories

  36. GeneEd Topics http://geneed.nlm.nih.gov/

  37. GeneEd: Biostatistics

  38. Libraries and health literacy

  39. Encouraging Partnerships

  40. PA Forward: Partner Organizations http://www.paforward.org/home/partnerssupporters/partnerorganizations.aspx

  41. PA Forward: Partner Organizations cont…

  42. NLM Exhibition Program “The Exhibition Program creates lively and informative exhibitions and educational resources that enhance awareness of and appreciation for the collections of the National Library of Medicine. Explore. Discover. Enjoy”. Topics include: Medicine & the Arts Science & Society Patients & Practitioners The Technology of Medicine Suitable for grades K-12+ http://www.nlm.nih.gov/hmd/about/exhibition/exhibitions.html

  43. NLM Exhibition Topics http://www.nlm.nih.gov/hmd/about/exhibition/exhibitions.html

  44. Life and Limb: The Toll of the American Civil War Explore the experiences of veterans of the American Civil War with the online exhibit https://www.nlm.nih.gov/exhibition/lifeandlimb/index.html Students can learn about: Wounds of War Deadly Diseases Civil War Surgery Artificial Limbs and more Suitable for grades K-12+

  45. Harry Potter’s World:Renaissance Science, Magic, and Medicine Harry Potter’s World presents the following instructional resources for the educators in middle-and high-schools, and in higher education institutions. Explore genetics through the characters and creatures featured in Harry Potter! Includes instructional guides and materials Suitable for grades 6-12 http://www.nlm.nih.gov/exhibition/harrypottersworld/educationResources.html

  46. Frankenstein Exhibition Frankenstein: Penetrating the Secrets of Nature includes lesson plans for educators in middle-and high-schools. Each lesson plan provides suggested instructional guides and materials that an educator may adapt in whole or in parts as he or she deems most appropriate for the students’ interest, level, and academic goals. Lesson plans contain background information, relevant academic topics, national standards, learning outcomes, step-by-step procedures, and all instructional materials that include several historical primary sources. Suitable for grades 6-12+ http://www.nlm.nih.gov/frankenstein/

  47. MedlinePlus Magazine A quarterly publication of the Friends of the National Library of Medicine. Get a free subscription! Libraries can order in bulk Spanish available also http://www.nlm.nih.gov/medlineplus/magazine/index.html http://www.fnlm.org/Program_MLP/MLP_intro.html

  48. NLM Educational & Printed Materials http://nnlm.gov/mar/training/materials.html If you are an NN/LM network member in the Middle Atlantic Region (DE, NJ, NY, or PA), you may order brochures online.

  49. Information Rx.org http://informationrx.org/

  50. Stay Connected: NN/LM MAR

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