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Research Integrated Informatics Core aka RIIC aka The Informatics Core

RIIC: General Layout of Teams

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Research Integrated Informatics Core aka RIIC aka The Informatics Core

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    1. Research Integrated Informatics Core aka RIIC aka The Informatics Core Michael Kahn MD, PhD Department of Pediatrics School of Medicine Michael.Kahn@ucdenver.edu

    2. RIIC: General Layout of Teams & People Team 1: Systems services team Tom Yaeger, Cristi Robb, Shelly Hubing, Angie Reveles, Sarah Stallings Team 2: Data management team Jessica Bondy, Linda Carlin, Umit Kaya, Swan Ellert, Ted Wade (NJH) Team 3: Informatics research team Michael Kahn, Jessica Bondy, Art Davidson, Miriam Dickinson, Caroline Emsermann, Bill LeBlanc Team 4: Training & Education Tzu Phang, Steve Ross, Tom Yaeger, Michael Kahn Team 5: New! Community Engagement Informatics Liaison Steve Ross

    3. RIIC: Services provided by teams Team 1: Systems services team CCTSI website content/development Access to Adult CTRC core lab data Team 2: Data Management team Probably the most visible to most of you RedCap, RedCap Survey, Study Design Manager ($)

    4. RIIC: Services provided by teams Team 3: Informatics research team Focus on people who do informatics stuff Monthly informatics seminar series (Third Thursday at Three-Thirty Three) SeDLAC: Secondary Database Library and Analysis Center Large national population-based datasets from NCVS and AHRQ

    5. RIIC: Services provided by teams Team 4: Training & education team Informatics for translational investigators: Best practices, just what you need to know Short video clips: 5-by-5 (five things you need to know in 5 minutes) Creating library of internet resources available here and elsewhere

    6. RIIC: Services provided by teams Team 5: Community Engagement Informatics Liaison Steve Ross will present new activities here

    7. Key things you need to know Not all RIIC services are free Nothing is free, RIIC underwrites some things and not others If RIIC doesnt have the skills, well try to link you up with somebody who does They probably will charge you (not us) We see ourselves as consultants, not programmers or developers of custom one-off software Didnt work well when we tried it

    8. Team 2: RedCap: HIPAA-compliant, web-based data management Built by Vanderbilt, used by 150+ institutions, 3400 studies, 16,000 users worldwide See http://www.project-redcap.org Meets/exceeds all HIPAA security & COMIRB requirements We provide you with pre-approved boilerplate text for COMIRB Key features: Investigator-driven system Data form designs with good data management practices User access rights Data import Data exports to SAS, SPSS, STATA, Excel with or without PHI Many advanced features Multi-center, parent-child, longitudinal trial designs Data auto-validation, branching logic, calculated fields New in 2010: Standard library of RedCap forms Standardized demographics, medical history Public domain questionnaires Ability to create local standardized forms

    9. Team 2: RedCap: HIPAA-compliant, web-based data management Free biweekly tutorials on basic features of RedCap Drop-in, no prior signups dates/times on CCTSI main web site First step in gaining access to the system Must attend tutorial to get RedCap account Consultation help via office hours Limitations No direct link to EMR must manually re-enter Limited data uploads using simple excel spreadsheets Must be connected to the web

    10. Team 2: RedCap Survey Think Survey Monkey No login required Can send URL to subjects for patient-entered data Current limitation RedCap Survey data not linked to RedCap study database

    11. Team 3: SeDLAC Data Sources Primary data resources are: National Center for Health Statistics (www.cdc.gov/nchs/) and Agency for Healthcare Research and Quality (www.ahrq.gov) Extensive collection of searchable databases: freely available to all replicated on SeDLAC servers

    12. Team 3: SeDLAC Data Sources NHIS: population-based interview National Health Interview Survey NAMCS: outpatient provider-based National Ambulatory Medical Care Survey NHAMCS: hospital urgent care-based National Hospital Ambulatory Medical Care Survey MEPS: family-based, repeated measures Medical Expenditure Panel Survey HCUP: inpatient-based Health Care Utilization Project

    13. Team 3: SeDLAC Data Sources NSFG: women-based (expanding to include men) National Survey on Family Growth BRFSS: population-based (telephone) Behavioral Risk Factor Surveillance Survey NHANES: population-base interview and exam National Health and Nutrition Examination Survey NHCHS: agency-based National Home Care and Hospice Survey

    14. Team 4: Videos: http://cctsi.ucdenver.edu/5x5

    15. Team 4: Videos: http://cctsi.ucdenver.edu/5x5

    16. New in 2010 National volunteer subject registry Allows patients to volunteer for studies Captures basic demographics and health history Honest-broker mechanism for separating investigators from contacting volunteers until volunteer agrees to be contacted Currently live and patients are registering Run by CCTSI Regulatory core Contact = Angela Wishon

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