Research Fairness Initiative (RFI)

1. Research Fairness Initiative (RFI) Carel IJsselmuiden Research and Innovation for Maternal and Newborn Health, Brussels – Square Meeting Centre, 8th Dec 2015 PCHRD Anniversary Meeting Manila, 17 March 2016

2. www.cohred.org

3. Capacity = Partnerships • Research funding • Technology transfer • Access to expertise • Institution building / system building • Wider access to grants – consortium approach • Greater links to business, venture capital • In other words: impact and competitiveness • But … only if partnerships work for ALL partners

5. the problem(s)

7. RFI ‘rationale’ : address diseases that matter to you Closing the R&D Gap in African Health Care. McKinsey. 2012

8. RFI ‘rationale’ : benefit sharing

10. FAIR RESEARCH CONTRACTING (FRC) Main focus areas covered under the FRC: • Intellectual Property rights • Data sharing • Technology transfer • Indirect costings • Research contracts

11. www.cohred.org

12. Creating the RFI - rationale • Raising Awareness • e.g. Costello & Zumla (2000) • Establishing principles of best practice • e.g. KFPE : 11 principles, 7 questions • Creating practical tools • e.g. Fair Research Contracting (FRC) • Actively managed certification system • e.g. the COHRED Fairness Index • Generating legal obligation • e.g. the Nagoya Protocol

13. COHRED’s Colloquium 4 – Wellcome Trust, London Development: How is the Research Fairness Initiative designed? www.cohred.org

14. COHRED’s Colloquium 4 – Wellcome Trust, London Development: How is the Research Fairness Initiative designed? Hon. Mario G. Montejo, Secretary of Science and Technology of DOST Philippines Dr. Amelia P. Guevara, Undersecretary for Research and Development DOST Philippines www.cohred.org

15. COHRED’s Colloquium 4 – Wellcome Trust, London Development: How is the Research Fairness Initiative designed? Dr. Suresh Jadhav, Executive Director at Serum Institute of India Ltd. ‘It is global partnerships and collaborations in health that have played a significant role in the development of Serum Institute’s goals and objectives of developing quality, yet affordable, vaccines for the people who need them the most.’ www.cohred.org

16. Global Health Research Expenditure

22. RFI ‘rationale’ : key stakeholders

23. RFI • Research Partnership Reporting helps countries and organizations to set goals, measure performance, and manage change in order to make their operations more efficient, longer-lasting, and more fair. By including an RFI Report as part of national or institutional disclosure, stakeholders declare publicly their commitment to transparency, accountability, efficiency and fairness in sharing and developing research and innovation capacity for health globally, and their expectation that their partners do the same. • The RFI Reporting process is also a key strategic management tool to improve performance and global competitiveness of countries, businesses and institutions. It is not an ‘add-on’ – it is an essential component of great research and innovation systems, businesses and funding. RFI Reporting makes these abstract concepts concrete and tangible, providing stakeholders with a framework of manageable steps to improve their strategy, collaborations and activities.

24. RFI value • Internal value • Better communication throughout your institution • Employees with better understanding of the organisation can develop new solutions • Better comprehension of your institution’s strengths and weaknesses • Greater perspective on how you compare with partners and even competitors • More transparency in your institution’s historical records • Leverage to get partners to use RFI reporting as well – improving quality, longevity, cost-effectiveness and productivity of research and innovation partnerships • Visible contribution to global health, fairness in research – visible to staff, visible to partners, visible to external stakeholders • External value • Added Value from analsyis, developing (together) a new global standard • Partners comments • Meta-analysis, trends • Ad hoc, indepth studies

25. RFI Report • The RFI Report itself will serve multiple purposes, including: • Demonstrate the willingness to creating fairness in research and innovation partnerships • Create learning for others operating in the same space • Increasing transparency and accountability to funders, partners and the public • Allow partners to choose on the basis of your own commitment to good partnerships, or, as donors, on the basis of innovations you report on to improve partnerships with low- and middle-income countries, for example • Generate national and institutional momentum: if countries and their institutions all sign up, then a mutually reinforcing relationship begins that increases standards and conditions for collaborative research • As enough stakeholders in research and innovation use the RFI, it will greatly facilitate partnerships, increase longevity and efficiency of collaborations, reduce transaction costs, reduce reputational risk and become a global standard that will improve over time.

26. Martin Sepulveda, IBM Fellow & Vice President ofHealth Systems and Policy Research, IBM Corporation Development: How is the Research Fairness Initiative designed? ‘There is more information available today than there was before. At certain levels, this has been known forever; you can speak to any number of representatives from Sub-Saharan African countries at this meeting and they will tell you how disparate the benefits of health research are. There are now more data and information and communication technologies that are giving more visibility to disparities; and not just in health research, but in virtually every domain in our society.’ www.cohred.org

27. Institutional Endorsements • The Nigerian Academy of Science • Turkish Academy of Sciences • Union of the German Academies of Sciences and Humanities • President of the University of the Philippines System (comprising component universities from Baguio to Mindanao, including the University of the Philippines Manila) • The Chancellor of the University of the Philippines Manila, the Health Sciences Campus of the University of the Philippines System • Forum for Medical Ethics Society (FMES), India www.cohred.org

28. www.cohred.org

30. www.cohred.org