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Patti Hackett, MEd Co-Director, HRTW National Resource Center Bangor, ME pattihackett@hrtw

Transition to Adulthood: Preparing for the Difference for Children and Youth with Special Health Care Needs. Patti Hackett, MEd Co-Director, HRTW National Resource Center Bangor, ME pattihackett@hrtw.org 207-9792-8254 June 11, 2007. www.hrtw.org. Health Impacts All Aspects of Life.

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Patti Hackett, MEd Co-Director, HRTW National Resource Center Bangor, ME pattihackett@hrtw

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  1. Transition to Adulthood: Preparing for the Difference for Children and Youth with Special Health Care Needs Patti Hackett, MEd Co-Director, HRTW National Resource Center Bangor, ME pattihackett@hrtw.org 207-9792-8254 June 11, 2007

  2. www.hrtw.org

  3. Health Impacts All Aspects of Life Success in the classroom, within the community, and on the job requires that young people are healthy. To stay healthy, young people need an understanding of their health and to participate in their health care decisions.

  4. Transition to Adulthood

  5. Celebrate the PaperworkIt Means You Are Alive! • Cell phone / ICE • Shared Decision Making • Circle of Support • FERPA/HIPAA - Assent to Consent • Portable Medical Summary • SSI terms / forms

  6. Do you have “ICE” in your cell phone contact list? To Program………. • Create new contact • Space or Underscore ____ • (this bumps listing to the top) • Type “ICE – 01” • – ADD Name of Person • - include all ph #s • - Note your allergies • You can have up to 3 ICE contacts (per EMS) ICE = In Case of Emergency

  7. Shared Decision Making

  8. Levels of Support

  9. Informed Decision Makers FERPA Family Education Rights & Privacy Act HIPAA Health Insurance Portability and Accountability Act 1. Privacy  Records 2. Consent  Signature (signature stamp) - Assent to Consent - Varying levels of support - Stand-by (health surrogate) - Guardianship (limited to full)

  10. Eastern Maine Medical Center form • A parent or guardian is generally required to sign for a patient under the age of 18. Patients aged 14-17 should also sign. • See IDD 20.041. • If an adult is unable to make or communicate medical decisions, then the following may sign in the priority given: agent under healthcare power of attorney, guardian, spouse, domestic partner, • next-of-kin. • See IDD 20.060 • Indicate capacity of representative.

  11. Create Portable Medical Summary • Use as a reference tool • - Accurate medical history & contact #s • - Carry in your wallet. • Use for disability documentation

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