WHO Health Statistics: GHO Portal

1. WHO Health Statistics: GHO Portal

2. Global Health Observatory WHO's portal providing access to data and analyses for monitoring the global health situation • Data repository • Mortality • Millennium Development Goals • Burden of disease • …. • World Health Statisticsreports • Statistical reports • Country statistics • Map gallery • WHO Indicator Registry

3. KS KS KS KS KS KS KS KS KS KS KS KS KS KS KS KS KS KS KS KS KS KS NHO NHO NHO GHO and other observatories Information Products African Health Observatory Profiles Other databases Data

4. GHO Quality Improvement • Improved data and metadata standards • SDMX implementation - XMART • Indicator Metadata Registry update  2.0  HISP • Improved Visualization Tools • Infrastructurerenewal • Regional Health Observatories • Country Health Observatories • Linked Data initiatives • WEB services

5. An Information Paradox: Reporting of Mortality in the World

6. Information Paradox

7. CAUSES of DEATH ESTIMATESUPDATEpara 3 • WHO released regional-level estimates of mortality in July 2013, by: • cause, age and sex • for years 2000 - 2011. • country-level estimates for years 2000-2012 will be released late 2013. • UN Inter-agency Group for Child Mortality Estimation will release Child Mortality estimates in September.

8. Consultation with Member States • WHO reporting is regulated by its Governing Bodies( Executive Board Resolution EB107.R8 ) • WHO’s main interlocutor, by constitution, is the Ministry of Health in a Member State • WHO encourages the MoHto coordinate with all relevant government agencies, including the National Statistical Offices.

9. Criteria for WHO Official Statistics in line with the general principles of statistics: • an accurate listing of data inputs used, with relevant metadata ideally, such data should be publicly accessible • correction of known biases in the input data • a clear explanation of the modeling approach used, preferably in the peer-reviewed literature • country consultation, (if country estimates are to be released).

10. PART 2: ICD Revision

11. Genealogy of ICD  1664 450 years

12. ICD Revisions

13. ICD ICF Linkages KRs ICHI Classifications e-Health Record Systems Terminologies • Population Health • Births • Deaths • Diseases • Disability • Risk factors • Clinical • Decision Support • Integration of care • Outcome • Administration • Scheduling • Resources • Billing • Reporting • Cost • Needs • Outcome Placing WHO Classifications in HIS & IT

14. ICD-11 Revision Goals Evolve a multi-purposeand coherent classification Mortality, morbidity, primary care, clinical care,research,public health… Consistency & interoperability across different uses Serve as an internationaland multilingual reference standard for scientific comparability and communication purposes Ensure that ICD-11 will function in an electronic environment. ICD-11 will be a digital product Support electronic health records and information systems Link ICD logically to underpinning terminologies and ontologies(e.g. SNOMED, GO, …) ICD Categories “defined” by "logical operational rules" on their associations and details

15. Construction of ICD-10: Revision Process in 20th Century 8 Annual Revision Conferences (1982 - 89) 17 – 58 Countries participated 1- 5 person delegation Manual curation List exchange Index was done later "Decibel" ? Method of discussion Output: Paper Copy Work in English only Limited testing in the field

16. Construction of ICD-11: Revision Process in the 21st Century Internet-based permanent platform All year round Open to all people in a structured way Content experts focus Digital curation Wiki enabled collaboration Ontology based Enhanced discussion & peer review TAGs serve as the editorial group Electronic copy print version Work in multiple languages Planned field tests Based on Use Cases

17. How do we go from Here to 21st Century?

18. Open and Collaborative Platform Web based Like WIKI But by the Content Model with by the TAGs , and scientific peers iCAT iCAT Collaborative Authoring Tool for ICD Revision structured Editorial Oversight

19. What is Ontology? • Ontology (philosophy) • the Organization of Reality  • Ontology(computer science) • the explicit – operational description of the conceptualization of a domain: • An ontology defines: • a common vocabulary  a shared understanding/exchange: • among people • among software agents • between people and software • to reuse data - information • to introduce standards to allow interoperability

20. http://www.who.int/classifications/icd/revision ICD11 βeta βeta • ICD-11 Beta draft is NOT FINAL • updated on a daily basis • NOT TO BE USED for CODING except for agreed FIELD TRIALS • Beta – Browser & Print 10 look & feel + descriptions – code structure !

21. ICD-11 Features Internet Based Platform Input from all Stakeholders ContentModel Definitions Electronic Health Record Ready Field Trials for Use Cases لعربيةArabic 官话ChineseEnglishEnglish FrançaisFrench РусскийязыкRussian EspañolSpanish Deutsch German PortuguêsPortuguese Multi Lingual Representations

22. FIELD TESTS (1): Bridge-Coding • The Case information • live • medical record • Coded using • ICD10 • ICD11 • Agreement rates measured

23. FIELD TESTS (2): Reliability • The Case information • live • medical record • Coded using ICD11 by at least two different people • Agreement rates measured

24. ICD-11 Timeline 2011 : Alpha version ( ICD 11 alpha draft) +1 YR : Commentaries and consultations 2012 : Beta version & Field Trials Version +3 YR : Field trials 2015 : Final version for WHA Approval 2015+ implementation

25. ICD-10 ICD-11 Continuous web platform + meetings Focus on ALLstatistical use cases Produced digitally w/ information model Multilingual development Field tests done before Continuous update – revision mechanism • Annual Revision Conferences • Focus on mortality statistics • Produced manually • Produced in English • NO field tests • Update mechanism built in later

26. Questions & Answers ustunb@who.int @ustunb