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a comprehensive look at bioethics in the christian brothers university mirt program

Our MIRT Bioethics Program . On-line NIH training moduleTwo day workshop at CBUDr. Terrance Ackerman, chairman of medical ethics at University of TNEthical treatment of both humans and animals as well as history of protocol procedureProtocol review processResearch Project at Recife. The Participants.

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a comprehensive look at bioethics in the christian brothers university mirt program

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    1. A Comprehensive Look at Bioethics in the Christian Brothers University MIRT Program Dr. Janet Schenk McCord Christian Brothers University Memphis, Tennessee

    3. The Participants Christian Brothers University Department of Religion and Philosophy and Biolgy St. Jude Children’s Research Hospital Department of International Outreach NACC: Núcleo de Apoio à Criança com Câncer CEHOPE: children’s pediatric cancer outpatient clinic IMIP: Instituto Materno Infantil de Pernambuco Two students at Christian Brothers University Cheri Carr, philosophy major Sharnika Merricks, psychology major

    4. NACC Núcleo de Apoio à Criança com Câncer Recife: northeastern Brazil Domiciliary and financial support program for indigent families who have a child in cancer treatment Director: Dra. Arli Pedrosa CEHOPE: pediatric cancer clinic, Dr. Francisco Pedrosa

    5. The Team

    6. NACC

    7. Research Protocol No research studies focus on support programs like NACC Little is known about the social processes that enter into the relationship between those offering support services, and those who benefit from them Why is the support program useful? Why do families use these services?

    8. Methodology Grounded Theory: qualitative research methodology Commonly used to investigate complex social processes Inductively derived from the study of the phenomenon it represents: a theory emerges that is grounded in the data

    9. Grounded Theory II Investigators seek to produce a model, or theoretical account of a phenomenon that incorporates two main features: An explicit account of the processes in question: “What happens – what is the experience of families who participate in NACC programs?” An account of the meaning of the phenomenon to the participants, and the influence of the meaning on their actions: “What does it mean? How does it impact their lives?”

    10. Research Strategy Face-to-face interviews with families Mothers/primary caretakers, patients that were old enough Twelve interviews were conducted. Eight were used in the data set, and four second interviews were completed

    11. Outside of the project

    12. Results Examine data – interviews – with an eye to concepts Central explanatory categories: Love Respect Feeling of worth Physical supplies (transportation money, food, etc.) of secondary importance

    13. What Makes this “Bioethics”? Bioethics more than just IRBs and clinical research ethics Project relates to the social processes and interactions between cultures Examines the delicate interactions between the service providers and service recipients, with an eye to actual needs versus needs served Social theory informs cultural decisions regarding “the right thing to do” on multiple levels

    14. Lessons Learned More structure needed by the students Language training Cultural training Schedule of outputs

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