1 / 8

Psychosocial Issues in Cystic Fibrosis Adherence and Quality of Life

Psychosocial Issues in Cystic Fibrosis Adherence and Quality of Life. Yvonne D. Gathers, MSW,LCSW Clinical Social Worker Pediatric Pulmonary Center. Objectives. Psychosocial Issues in children, adolescents and adults with Cystic Fibrosis Psychological complications of cystic fibrosis

kennan
Télécharger la présentation

Psychosocial Issues in Cystic Fibrosis Adherence and Quality of Life

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. Psychosocial Issues in Cystic Fibrosis Adherence and Quality of Life Yvonne D. Gathers, MSW,LCSW Clinical Social Worker Pediatric Pulmonary Center

  2. Objectives • Psychosocial Issues in children, adolescents and adults with Cystic Fibrosis • Psychological complications of cystic fibrosis • Obstacles of Transition to adult Care • Obstacles for parents/Caregivers • View video tape of adolescents with cystic fibrosis

  3. Introduction • Children (age birth-10 yrs.) • Early adolescence (age range 11-14 yrs.) Am I normal • Mid-adolescence (age 14-16 yrs.) Independence/self image • Late adolescence (age 17-older yrs.) Future oriented, intimacy /career goals

  4. What are Psychosocial Issues? Process of acquiring relevant information needed to decide on and develop a rational plan for helping clients or patients. Cultural Values Environment Health Beliefs Resources Education Economics Housing Support system Family

  5. Psychological Complications of Cystic Fibrosis • Severity of Disease • Shock, disbelief, fear, anger, depression & guilt • Treatment Regiment • Nutritional habits/Bonding time vs vest therapy • Length of Hospitalizations/Outpatient Office Visits • Employment/Marriage

  6. Psychological Complications • Body image • Mature 1 ½ - 2 yrs. later • Younger and small body size • Relationship with peers

  7. Obstacles Affecting Transition • Dependent behavior • Immaturity • Severe illness or disability • Mental Health • Lack of support systems • Lack of trust in caregivers • Poor adherence to treatment regiment • Parental involvement

  8. Obstacles for Parents/Caregivers • Excessive need for control • Emotional dependency • Parenting styles/overprotective • Heightened perception of disease severity • Lack of trust in caregivers • Denial about the severity of the disease

More Related