1 / 12

“Give Me My Data!’ A Not So Patient Perspective”

“Give Me My Data!’ A Not So Patient Perspective”. Don Juzwishin PhD Director Health Technology Assessment and Innovation April 24, 2012. Objectives. Identify 4 forces that have empowered patients Why they emerged Why we need to pay attention to them

kiona
Télécharger la présentation

“Give Me My Data!’ A Not So Patient Perspective”

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. “Give Me My Data!’ A Not So Patient Perspective” Don Juzwishin PhD Director Health Technology Assessment and Innovation April 24, 2012

  2. Objectives • Identify 4 forces that have empowered patients • Why they emerged • Why we need to pay attention to them • What will be policy and health delivery implications

  3. Four Forces of Liberation

  4. Ubiquity of KID Knowledge Boundary maintenance Asymmetry http://www.ncbi.nlm.nih.gov/pubmed/ Information CIHI Canadian Hospital Reporting Project http://cihi.ca Data Hans Rosling http://www.gapminder.org/

  5. Responsibility/Rights • Dave deBronkart • E-patient Dave • Participatory medicine • Personal health data rights • http://epatientdave.com/ • http://ted.com

  6. Rights and Responsibility • Kevin Leonard • Patient Destiny • http://patientdestiny.typepad.com/ • Vaughn Glover • Canadian Association for People- Centered Health • http://www.capch.ca/

  7. Power • Coiera – 4 rules for reinventing health care • Technical systems have social consequences • Social systems have technical consequences • We don’t design technology, we design social technical systems; and • To understand sociotechnical systems, we must understand how people and technologies interact

  8. Power • Alex Jadad • Global Center for e-Health Innovation • Level the playing field for disadvantaged groups in society, through the use of information and communication technologies and social networking tools • http://www.ehealthinnovation.org • Guenther Eysenbach • Consumer Health Informatics • Apomediation

  9. http://www.medicine20congress.com/ocs/index.php/med/med2012

  10. Community • Benjamin and James Heywood, Jeff Cole • Patientslikeme • Mutual support • http://www.patientslikeme.com/ • Research Opportunities • Clinical trails

  11. Alberta Health Services • Patient Portal • http://www.albertahealthservices.ca/org/ahs-org-ehr.pdf • Patient Engagement • http://www.albertahealthservices.ca/patientengagement.asp

  12. Concluding remarks • Implications for the future • For patients • For researchers • For policy makers • For health care delivery

More Related