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A Promotoras Training Model

A Promotoras Training Model. Michael V. Maloney Executive Director Organization for Autism Research www.researchautism.org. Organization for Autism Research. Founded in 2001 Mission: Research - Quality of life Information – Evidence-based/consumer friendly

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A Promotoras Training Model

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  1. A Promotoras Training Model Michael V. Maloney Executive Director Organization for Autism Research www.researchautism.org

  2. Organization for Autism Research • Founded in 2001 • Mission: • Research - Quality of life • Information – Evidence-based/consumer friendly • Education – State of the science/translational • One of four original CDC autism partners • Learn the Signs. Act Early. Campaign

  3. Latino Outreach – Initial Concepts • October 2006 – Board discussion • Make OAR’s resources accessible to Latinos • Translate English to Spanish • Life Journey through Autism resource guides • Web site • No $$$$ • Develop concept, raise funds, implement

  4. Learn the Signs. Act Early. • December 2006 grant opportunity • A different entry point • Developmental milestones pre-autism • Three challenges • Culture • Language • Approach

  5. OAR’s Team • KDH Research & Consulting • Kristen Holtz, PhD • Autism/LSAE program design experience • Atlanta based • Fusión mc • Ana Maria Boitel • Language and culture • Community insight/research • Dia de la Mujer Latina – Venus Ginés

  6. Initial Planning Objectives • Target young parents in Latino community • Develop a model for community support • Adapt materials to language and culture • Adapt approach to existing systems • Examine communication networks • Develop a strategy and plan of action

  7. The Plan Comes Together • Promotoras – lay health workers • Trusted community members • Established healthcare role • Speak the language • Georgia • 3rd fastest growing Latino population in the U.S. • Location of KDHRC and CDC • Dia de la Mujer Latina – Venus Ginés

  8. Empowering Promotoras • Educate on developmental milestones and warning signs of autism • Train for outreach • Provide clear, easy to use materials • Test in community-based setting

  9. Training Program • Five hour syllabus • Spanish-speaking trainer • Pre- and post- tests • Introduction of materials/tool kit • Practice outreach • Recognition

  10. Promotora Training Guide

  11. Informationfor the Facilitator • Goals and objectives • Use of promotoras in health promotion programs • Recruiting promotoras • Scheduling the training event • Preparing for the training event • Know your material • Facilitation tips

  12. Training Syllabus • Welcome/training overview • Introduction to developmental milestones • Developmental milestones and autism • Conducting outreach during a health fair (brief encounter) • Conducting outreach during clinic visits (longer encounter) • Referral information and review

  13. Supporting Tabs • Flipchart templates • Agenda and Objectives Handout/La Agenda y los Objetivos • Autism Spectrum Disorders Fact Sheet/ Hoja informativa sobre los trastornos del espectro autista • Milestone Matching Worksheet and answer key/Identificación de Indicadores • Outreach Approach Handout/Manual de cómo Atraer la Comunidad • Health Fair Scenarios Handout/ Guión con Escenas de las Ferias de Salud • Clinic Visit Scenarios Handout/Manual de Escenas sobre Visitas Clínicas • Referral Information Handout/Manual de Referencia de Información • Ethical Pledge/Manual de Compromiso de Comportamiento • Certificate of Completion

  14. Flip chart - Spanish

  15. Flip Chart English

  16. Refrigerator Magnet

  17. Community Outreach • Feria de la Familia – Cobb County, Ga. • Community health focused • 2,000 – 3,000 people • Festival atmosphere • Partnered with Dia de la Mujer Latina • 14/18 Promotoras - 500 direct contacts • Feria de la Familia – Washington, DC, Dec.

  18. Results/Conclusions • Latino community is very receptive • Training package was effective • Health fairs work for the broad message • The Promotoras model has significant potential and some limits • OAR’s program will support broader outreach

  19. Lessons Learned • Spanish translation is not enough • Information and message must be adapted to culture and the local/target Latino community • Many countries and cultures represented • Beware of stereotypes • Outreach requires a multi-faceted approach • Success through community partnerships • Need to know more

  20. Next Steps • Obtain funds for program expansion • Increase capacity of language/culturally adapted resources • Life Journey through Autism guides – Autism Speaks grant • Informational brochure • Flip charts and magnets • OAR Web site

  21. Next Steps (Cont.) • Secondary research on cultural biases, barriers, and stigma • Develop and test new resources • Expand Promotora Training program • Expand community outreach in DC and GA

  22. Fin Preguntas?

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