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Ethics in Research

Ethics in Research. Historical Context. Past German Experimentation Tuskegee Syphilis Study Present Cancer Research AIDS (AZT) Research. Historical Context. Ethical system designed to prevent people from being used as scientific guinea pigs

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Ethics in Research

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  1. Ethics in Research

  2. Historical Context • Past • German Experimentation • Tuskegee Syphilis Study • Present • Cancer Research • AIDS (AZT) Research

  3. Historical Context • Ethical system designed to prevent people from being used as scientific guinea pigs • Contemporary emphasis on the ‘rights’ of people to take risks to save themselves

  4. Ethical Issues • Voluntary Participation

  5. Ethical Issues • Voluntary Participation • Informed Consent

  6. Ethical Issues • Voluntary Participation • Informed Consent • Risk of Harm

  7. Ethical Issues • Voluntary Participation • Informed Consent • Risk of Harm • Anonymity

  8. Ethical Issues • Voluntary Participation • Informed Consent • Risk of Harm • Anonymity • Confidentiality

  9. Ethical Issues • Voluntary Participation • Informed Consent • Risk of Harm • Anonymity • Confidentiality • Right to Services

  10. Institutional Review Boards • mechanism for reviewing proposed research • mechanism for protecting the institution and researcher • submitting an IRB Proposal

  11. Keep all data and records from your research investigations for at least 5 years. It’s a good idea, depending on the investigation and the nature of the data, to keep them forever. Any party with a legitimate interest has a right to inspect your original data and data analyses (subject to participant confidentiality controls): journal editors/reviewers; professional review boards; other research colleagues

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