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posterpresentation,_Lissabon_2010

Everyday life in spouses to individuals with obstructive sleep apnoea syndrome before treatment initiation – a qualitative study based on in-depth interviews.

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posterpresentation,_Lissabon_2010

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  1. Everyday life in spouses to individuals with obstructive sleep apnoea syndrome before treatment initiation –a qualitative study based on in-depth interviews Anna Ståhlkrantz* RN, MNSc1,2, Dan Malm RN, PhD1,2, Jan Wiberg MD1, Jan Albers RN1, Eva Svanborg, MD Professor3,4, Anders Broström, RN, Assoc.Professor 1,4Department of Internal Medicine, County Hospital Ryhov, Jönköping, Sweden.1 Department of Nursing Science, School of Health Sciences, Jönköping, Sweden.2Department of Medicine and Care, Linköping University, Linköping, Sweden.3 Department of Clinical Neurophysiology, Linköping University Hospital, Linköping, Sweden.4 Background: Obstructive sleep apnoea syndrome (OSAS) is a sleep related breathing disorder causing increased cardiovascular morbidity and mortality. Treatment with continuous positive airway pressure (CPAP) is the standard treatment. OSAS does not only affect the patient but usually leads to consequences for the spouse’s everyday life too. Few studies have described the inside perspective of a spouse to a patient suffering from a severe OSAS before treatment initiation with CPAP. Aim: The aim of this study was to generate a model of what spouses of patients with OSAS experience in their everyday life before CPAP initiation. Methods: A descriptive explorative design with Grounded Theory (GT) was used.Twelve spouses to patients with untreated OSAS were interviewed in order to gain as wide a variation of data as possible and a comprehensive picture of the phenomenon being studied. Findings: Two main categories emerged from the data: “Spouses’ social adjustment” and “Spouses’ emotions”. The main categories could be seen in relation to four dimensions; “Sacrifices in everyday life”, “Control in everyday life”, “Changes in everyday life” and “Understanding of everyday life” The spouses made several adjustments in everyday life and they felt an increasing responsibility in the home since they did not get any help from their partner. The relationship (i.e., emotions) with the partner (i.e. patient) was also negatively affected and the spouses felt they therefore developed another both practical and emotional role in the relationship. They felt both anger and fear at night. Anger for the snoring and fear because of the breathing pauses their partner had. They felt loneliness and isolation and experienced that there was no time for their own interests. Conclusion:Healthcare personnel could use information from this study to gain a deeper understanding and knowledge of how spouses of untreated patients with OSAS experience their everyday life. This knowledge can be used to improve the support to the spouses, as well as in the educational situation concerning the illness, as well as the treatment. *Communication:Anna Stålkrantz, Department ofInternal Medicine, Länssjukhuset Ryhov,551 85 Jönköping, Sweden. Tel. +46-36-322090, EMAIL: Anna.stalkrantz@lj.se

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