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Language, Engagement & Politics

Language, Engagement & Politics. A Consumer Futures Perspective. Rhianwen Beresford Consumer Advocate. Overview. Language, Engagement, Politics 3 Unfolding Scenarios & Engagement Success Factors Conclusion: Navigational Questions. Language, Engagement, Politics.

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Language, Engagement & Politics

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  1. Language, Engagement & Politics A Consumer Futures Perspective Rhianwen Beresford Consumer Advocate

  2. Overview • Language, Engagement, Politics • 3 Unfolding Scenarios & Engagement Success Factors • Conclusion: Navigational Questions

  3. Language, Engagement, Politics • Language: Constructing meaning, identity & thus life outcomes • Engagement: Inversing Power in Co-Producing Meaning, Language, Reality to reflect desired outcomes • Politics= outcomes, or the failure of outcomes

  4. Consumer Movement • Language (Inversing power in language and identification) As key to… • Engagement (A choice to connect) As key to… • Politics Program Success in Outcomes Rests on Engagement Success, which rests on language)

  5. Language Outsider looking in Recovery: to live a meaningful life even in the presence of mental illness Inside, looking out Recovery: to live a meaningful life, irrespective of the presence or absence of mental illness

  6. Language WANT LIGHT AT THE END OF THE TUNNEL I AM MYSELF, THAT IS EXPERT OF ME AND MY JOURNEY CANT AFFORD WHAT WOULD HELP STRONG & CAPABLE NEED TO TRUST, NEED TO CHOOSE. NEED RIGHTS. DIGNITY THROUGH ALL THIS. DIFFERENT, NOT MAD OR BAD GOING THROUGH A ROUGH TIME RIGHT NOW ABOVE ALL. DON’T MAKE THINGS WORSE.

  7. Language PERMANENTLY ILL SOCIALLY DISABLED INCAPACITATED A TIER 3 DISABLED IMPAIRED SEVERELY MENTALLY ILL CHRONIC PSYCHO- DISABLED YES: NOW YOU CAN RECEIVE SUPPORT NO: INELIGIBLE (UNLESS OTHERS DISAGREE WITH YOUR ANSWER)

  8. Engagement:There are Many “Tiers” With Diverse barriers and pathways of exclusion and re-inclusion Diverse thinking, imaginative, and emotional minds That interact with these minds and these triggers and these relationships With diverse triggers for tears of joy and tears of despair With diverse relationships of nurture and neglect To lead to different recovery needs and outcomes For example, among those with a diagnosis of schizophrenia

  9. Engagement: Many Paths to Full Citizenship Meaningful work Voice Hearing Education Help in crisis Sustaining good relationships Coming Out/ Speaking Out Speaking out against bullying From welfare to financial security Homelessness Intergenerational trauma For example, among those with a diagnosis of schizophrenia

  10. Three Scenarios • NDIS & A Self-Directed Landscape for Recovery • NDIS Clearly for the Most Vulnerable, But All Supported • A Vague NDIS…Divorce and/or Crisis (NDIS- Mental Health)

  11. Scenario 1 • Double Binds are Undone Through Language Transformations • Wide Engagement • Can lead to consistent mental health model across needs spectrum (NDIS and range of other individualised mental health programs) • Political Success (Engagement-Based Outcomes) Innovation Example: Citizenship Approaches to Criteria & Planning

  12. Scenario 2 • Use of Existing Language • Involuntary candidates, people in crisis • Capacity Building & Safeguarding to support the involuntary becoming voluntary, self-leaders • Crisis arrangements • Clarity on People Supported & Spectrum of Met Needs Safeguarded

  13. Scenario 3 • Use of Existing Language • Involuntary candidates • Lags in safeguarding • No commitment to spectrum of met needs • Very Poor Engagement- All Stakeholders • DIVORCE AND/OR CRISIS

  14. Conclusion: Navigational Questions • Who is NDIS for and why? • From their perspective, what are their languages, identities and reasons to engage, or disengage? • How does this change who NDIS is or, and why? • If basic ideas around NDIS have changed, then what advocacy strategies and program revisions are important?

  15. Case Study on Language: Queensland Alliance Support with choice in empowering ways NDIS customer networks for self-advocacy & shared advocacy Planning in Small Peer Groups Peer to Peer Service Ratings- Word of Mouth Peers Connected in NDIS Independent Fund Management Option WRAP/Advanced Directives – capacity varies with distress Fund Self-Management Tools & Learning Strategies Hire Peer Support Workers, Friends Family (if safeguards) Peer Advocates & Peer Supports in Accessing NDIS Versus: Individual + NDIS+ service

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