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Bridging Aging and Disability Networks: "Strategies for Translating Knowledge into Practice"

Bridging Aging and Disability Networks: "Strategies for Translating Knowledge into Practice". Luis Salvador- Carulla MD, PhD. A number of questions. What is the context? What is the challenge? What is the alternatives? What are the main components? What are the examples?.

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Bridging Aging and Disability Networks: "Strategies for Translating Knowledge into Practice"

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  1. Bridging Aging and Disability Networks: "Strategies for Translating Knowledge into Practice" Luis Salvador-CarullaMD, PhD

  2. A number of questions • What is the context? • What is the challenge? • What is the alternatives? • What are the main components? • What are the examples?

  3. Advances in the XXI Century Ageing as anopportunity • New models of ageing Active ageing, Promotion, Mental capital • New services and caresystems • Supports and HTsforageing Disability as anadvantage • New models of disability (ICF) • Social Inclusion, Personcentredcare • Empowerement and Recovery • Accesibility and Employment • Supports and HTsfordisabilities Add case of thepainterwithdownsyndrome & Parada

  4. C&S in the era of complexity • Healthpromotion • Integrative / holisticcare • Life-spanapproach • Person-centredcare • Recovery • Universality • Mental capital

  5. Integrativecaremodel: 10 priorityareas • Pre-disease pathways - Life-span • Positive psychology - Health promotion • Genetics - Behavioural phenotypes • Personal links - Risks and outcomes • Healthy communities • Inequities - Context / environment • People’s health • Effective interventions - Routine practice • New methods - Analysis of complexity • Infrastructure - Costs and health policy

  6. MENTAL CAPITAL THROUGH THE LIFE COURSE: Flourishing through life / Early detect. & tx. / Chronic conditions

  7. What is the challenge? • We need to know more about the link D&A • Persons with disabilities who grow old • Older persons who become disabled • AGEING as a field has a lot to contribute to the field of DISABILITY and viceversa • AGEING AND DISABILITY share common values, models, needs and priorities • Common policy agenda (implicit – hidden)

  8. Can weunderstanddisabilitywithoutageing?Can weunderstandageingwithoutdisability’

  9. In the D&A fields, their agents and principals do not talk to each other and, when they talk they do not communicate “If the word ‘X’ is used I will leave this table...” “Your model is not acceptable for us...”

  10. D&A Gap: Unwanted consequences • Functional Dependency EU Recommendation and related Dependency laws were based exclusively on Ageing and failed to provide effective coverage for SMI, ID and other Disabilities in Europe • UN Convention for Persons with Disabilities is seen as ‘alien’ by the ageing sector • Missing opportunities of knowlegde, innovation and policy change

  11. Ejemplos Similar programswithoutany transfer…

  12. Paradigmshift in health/social policy 1. Lavis et al, Health Research Policy and Systems 2009 (SUPPORT MODEL ) 2. Gibert et al, Health Research Policy and Systems 2010 (EbCA MODEL)

  13. A number of questions • What is the context? • What is the challenge? • What is the alternative? • What are the main components? • What are the examples?

  14. Health vs Social care Multidisciplinarity Translational research Disabilities vs Ageing

  15. www.bridgingknowledge.net

  16. Barcelona 5 – 7 March 2009

  17. BARCELONA DECLARATION www.ijic.org Bridging knowledge in Long Term Care and Support • Political stand to make bridging and knowledge transfer key components of any program in the fields of disability and ageing. • Need for action involving policy makers and stakeholders, including those from the health, education, social and justice sectors, social partners, as well as civil society organisations. • Improve the knowledge base • Previous declarations and principles of “Nothing about us without us” and the “World and society of all ages”.

  18. Where next?

  19. A&D: Knowledge transfer - WHAT KNOWLEDGE? - HOW SHOULD IT BE TRANSFERRED? - WHO TRANSFERS IT?

  20. BRIDGING & KNOWLEDGE TRANSFER • B/KT is a construct with two main domains • Bridging cannot be made without KT • KT cannot be made without bridging • Tension between perspectives • Broad perspective without content • High content without generalisability • B/KT has both general aspects and specific aspects in D&A fields

  21. What is B/KT? • B/KT is a meta-discipline, a social net & space, a tool for innovation • Translational • Multidisciplinary • Complex • Dynamic • The value of a B/KT scientific road map is very limited but also necessary

  22. B/KT scientific road map • Framework model and conceptual map • Knowledge base • Usability & implementation • Monitoring and evaluation • Methods of design and analysis • Procedures and best practice sets • Dissemination strategies • Training • Support and care policy & priority setting

  23. What knowledge & disciplines? • Practical vs semanticalknowledge • Economics, Ethics, Legal, Technological, Business... • HealthOntologyExplicit formal specification of : • Representation of health related objects, concepts and other entities which it is assumed that exist in a given field of interest • Properties characterising these entities • Relationship between different entities

  24. Mental Retardation to Intellectual Disab.: Disabilities or Disorders? Salvador-Carulla & Bertelli, 2008

  25. Intellectual Developmental Disorder (IDD) A GROUP OF DEVELOPMENTAL CONDITIONS CHARACTERIZED BY A EXTENSIVE IMPAIRMENT OF COGNITIVE FUNCTIONS, WHICH ARE ASSOCIATED WITH LIMITATIONS OF LEARNING, ADAPTIVE BEHAVIOR AND SKILLS. SYNSET: IDD / ID / MR / LD

  26. Polynomious-polysemic approach Health / Statistics / Research / Policy / Social Inclusion / Rights ID IDD Salvador-Carullaet al, World Psychiatry, 2011

  27. What is a Hospital?

  28. HOSPITAL – RESIDENTIAL CARE Large variability in availability of ‘hospital non-acute care’ with lowest level in Andalucia and highest in Catalonia

  29. HOW TO TRANSFER KNOWLEDGE? - - New organisation-relational strategies - New research strategies Impact analysis Knowledge Discovery from Data Expert-based Cooperative Analysis - New implementation strategies - New dissemination strategies

  30. WHO TRANSFERS THE KNOWLEDGE? - - Health knowledge brokers - Champions - Interpreneurs - Intra-Interpreneurs

  31. Harvard School of Engineering and Applied Science • Cuisine and Science • FerranAdria

  32. The new model of societydemandsusto share ourknowledgewithothers. Ifyou are a millionaireyoushould share yourmoney, ifyou are ‘creative’ share your ideas. In the global societythosewhorefuseto share thereknowledge are sociallydead FerranAdria

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