Arthritis Foundation Partner Update

1. Arthritis FoundationPartner Update 11th Annual Arthritis Grantees Meeting Atlanta, GA July 28, 2010 Presented by: Cindy McDaniel Vice President, Consumer Health cmcdaniel@arthritis.org Jeannine Galloway, MPH Community Services Program Coordinator jgalloway@arthritis.org

2. What’s New at the Arthritis Foundation Historic Restructuring Almost Complete

3. What’s New at the Arthritis Foundation: A Growing Consumer Focus A Strategic Focus on the Arthritis Consumer New Consumer Health unit unites areas in which AF interfaces directly with target constituency groups. Guiding Principle of a Consumer-Centered Organization Understand what people with arthritis need, want and value, and tailor offerings to meet those defined needs and interests. Overarching Goal of Consumer Health To provide knowledge, resources, programs and tools that engage individuals with arthritis and empower them to improve their quality of life. New Organizational Strategic Planning Process New strategic plan will prioritize AF areas of focus and cause leadership in coming years; final plan to be presented to AF Board in November.

4. Components of the Arthritis Foundation’s Consumer Health Focus Consumer Insights • RA, OA and JA Advisory Groups • Primary and secondary consumer research Health and Wellness Communication • Health content on arthritis.org and other AF family websites • Arthritis Today and other periodicals (RA Today, Kids GetArthritis Too) • Non-periodicals (books, brochures, DVDs, etc.) Local Health and Wellness Outreach • AF Life Improvement Series (evidence-based programs) • Educational and awareness programs • JA camps, conferences and educational programming

5. Listening to People with Arthritis: Top Trends from Early Research • Pain: #1 barrier – and motivator • Medications: A love-hate relationship • Knowledge ≠ Action • Achievability is a motivator • Self-management : “I’ll try it if I believe it” • It’s not just physical! • Arthritis ≠ top priority Most health-care info comes from doctors and health care providers, followed by family/friends and Internet.

6. AF’s Evidence-Based Programs:Focus on Reach and Engagement • Data analysis underway to better segment, analyze and understand current program participants. • Focus in coming year will be on targeted marketing to raise awareness and participation in EB programs. • Working with consultant to explore new delivery formats and to incorporate programs into wider-reach AF initiatives.

7. Current and New Programs Jeannine Galloway, MPH Community Services Program Coordinator

8. Arthritis Foundation Walk with Ease (WWE) Program • 2 options for training leaders: online and in-person workshop • Workshops approved by ACE and AEA • 2 options for people to participate: self-directed and in a class

9. Walk With Ease Pilot • WWE Pilot Sites • CA Dept of PH/Southern CA Chapter • Long Island Chapter • MN Dept of Health/North Central Chapter • Southeast Region • Texas Chapter • Wisconsin Chapter/Milwaukee Area Health Education Center

10. Walk With Ease Pilot • Timeline • Start: April 2010 Conclude: August 2010 • Purpose • Assess program satisfaction at the pilot agency, facility/instructor, and participant levels. • Obtain feedback about the online training, in-person training workshop, new marketing materials, and Implementation Guide. • Identify best practices in disseminating the group and individual program within communities, including how to keep individual participants engaged with the AF.

11. Preliminary Data • Trainers • 18 • Leaders • 71 trained through online training or in-person workshop • Participants • Class: 150-plus • Self-Directed: 200-plus

12. Preliminary Data • Partners • African American Churches • Health Departments • Hospitals • Corporations • Assisted Living Facilities • Area Agency on Aging • African American Nurse Programs • Library • Rehabilitation Facilities • Country Clubs • Malls • Native American Clinics

13. Feedback • Online Training • Working well - no major issues • In-Person Training • Training material is a little redundant • Overall training has gone well and leaders are excited • Marketing and Program Materials • Suggestion to increase the font for the WWE brochure • Bigger logo on backpacks • Instructors appreciate laminated posters (some sites are laminating the posters for their leaders) • Suggestion to revise WWE page on letsmovetogether.org (in the process) • Materials are taking a little longer to get to sites than anticipated (at least 2 weeks are needed to ensure delivery on time without expediting the order) • Overall pilot sites and instructors are pleased and find that it is easier to find partners and participants for WWE. We are delivering a program they want!

14. Resources • Marketing Brochure • WWE Cinch Backpack • WWE Book • Available through online store on arthritis.org • Arthritis.org • Brief overview of WWE • Home page promo for program • Teaser for WWE book • Letsmovetogether.org • Movement tracker, link to purchase book, downloadable WWE forms, information on the group and self-directed programs

15. Arthritis Foundation Exercise Program • New Spanish Participant Manual! • “ Manual del programa de ejercicios” • Available through AF Chapters • New photos • New promo on arthritis.org • Future marketing materials

16. Arthritis Foundation Aquatic Program • New brochure! • Brochure includes new pictures of the program’s trainers and instructors • “Newly Updated” on front panel • WWE added to list of LIS programs • New photos • New promo on arthritis.org • Future marketing materials

17. Arthritis Foundation Self-Help Program • Program is currently being updated by Dr. Lorig • AF Chapters will now pay a licensing fee to offer the program • Self-Help Kit • In process of developing marketing strategies and discounts for the kits