Le disabilità e le loro “ cure ” , tra scienza e superstizione

1. Le disabilità e le loro “cure”, tra scienza e superstizione Serafino Corti, PhD Direttore Dipartimento delle Disabilità Istituto Ospedaliero di Sospiro (Cr) Università Cattolica del S. Cuore (Brescia) FIA (Fondazione Italiana Autismo) SIDIN (Società Italiana Disturbi del Neurosviluppo) AdC SIACSA

2. Un indizio non fa una prova

6. Errate credenze sulle cause dell’autismo

9. Guarigione, false terapie e trattamenti efficaci

15. “The short version of this long story is that study after study showed that facilitated communication didn’t really work” (APA, 2003).

21. Una diagnosi che nascode il genio?

23. Assenza di malattie o patologie “mimetiche”?

26. Sono eterni bambini?

34. Terapie efficaci o percorsi per il benessere?

37. Bibliografia Allen, J., DeMeyer, M. K., Norton, J. A., Pontus, W., & Yang, E. (1971). Intellectuality in parents of psychotic, subnormal, and normal children. Journal of Autism & Childhood Schizophrenia, 3, 311-326. Bettelheim B. (1967), The empty fortress, New York, The Free Press (tr. it. La fortezza vuota, Milano, Garzanti, 1976). Belmonte MK, Allen G, Beckel-Mitchener A, Boulanger LM, Carper RA, Webb SJ. (2004). Autism and abnormal development of brain connectivity. J Neurosci 2004;24:9228-31. Bernardi, L., & Tuzzi, A. (2011). Analyzing Written Communication in AAC Contexts: A statistical perspective. Augmentative and Alternative Communication, 27, 183–194. Bigozzi, L., Zanobini, M., Tarchi, C., Cozzani, F., & Camba, R. (2012). Facilitated communication and autistic children: The problem of authorship. Life Span and Disability, 15, 55–74. Biklen, D. (1990). Communication unbound: Autism and praxis. Harvard Educational Review, 60, 291–315. Biklen, D., Morton, M. W., Gold, D., Berrigan, C., & Swaminathan, S. (1992). Facilitated communication: Implications for individuals with autism. Topics in Language Disorders, 12, 1–28.

38. Bourgeron, T. (2015). From the genetic architecture to synaptic plasticity in autism spectrum disorder. Nature Reviews Neuroscience, 16(9), 551-563. Busnelli, M., Braida, D., Sala, M., Ripamonti, S., Parenti, M., & Chini, B. (2011). Ossitocina, vasopressina e autismo: nuovi target e strategie terapeutiche. In Venerosi e Chiarotti (a cura di) Autismo: dalla ricerca al governo clinico, 11, 29. Constantino, J. N., & Charman, T. (2016). Diagnosis of autism spectrum disorder: reconciling the syndrome, its diverse origins, and variation in expression. The Lancet Neurology, 15(3), 279-291. Cox A., Rutter, M. Newman, S. e Bartak. L. (1975), A comparative study of infantile autism and specific developmental receptive language disorder: II. Parental characteristics, British Journal of Psychiatry, 126, pp. 146-159. Crossley, R. (1994). Facilitated communication training. New York, NY: Teachers College Press. Crossley, N., & McDonald, A. (1980). Annie’s coming out. New York, NY: Penguin.

39. Hassan, M., Simpson, A., Danaher, K., Haesen, J., Makela, T., & Thomson, K. (2018). An Evaluation of Behavioral Skills Training for Teaching Caregivers How to Support Social Skill Development in Their Child with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 1-14. Hertz-Picciotto, I., Croen, L. A., Hansen, R., Jones, C. R., van de Water, J., & Pessah, I. N. (2006). The CHARGE study: an epidemiologic investigation of genetic and environmental factors contributing to autism. Environmental health perspectives, 114(7), 1119. Hertz-Picciotto I.& Delwiche L. (2009). The rise in autism and the role of age at diagnosis. Epidemiology , 20, 84-90. Hertz-Picciotto I, Green PG, Delwiche L, Hansen R, Walker C, Pessah IN (2010). Blood mercury concentrations in CHARGE Study children with and without autism. Environ Health Perspect 118, 161-6. Ho, B. P., Stephenson, J., & Carter, M. (2018). Cognitive-ehavioral approaches for children with autism spectrum disorder: A trend analysis. Research in Autism Spectrum Disorders, 45, 27-41. Howard, J. S., Sparkman, C. R., Cohen, H. G., Green, G., & Stanislaw, H. (2005). A comparison of intensive behaviour analytic and eclectic treatments for young chil‐ dren with autism. Research in Developmental Disabilities, 26 (4), 359–83. doi:10. 1016/j. ridd. 2004. 09. 005 


40.  Howard, J. S., Stanislaw, H., Green, G., Sparkman, C. R., & Cohen, H. G. (2014). Comparison of behaviour analytic and eclectic early interventions for young children with autism after three years. Research in Developmental Disabilities, 35 (12), 3326–3344. doi:10. 1016/j. ridd. 2014. 08. 021 Just MA, Cherkassky VL, Keller TA, Minshew NJ. (2004). Cortical activation and synchronization during sentence comprehension in high-functioning autism: evidence of underconnectivity. Brain;127:1811-21. Konstantareas, M. M., & Gravelle, G. (1998). Facilitated communication: The contribution of physical, emotional and mental Support. Autism, 2, 389–414. Lilienfeld, S. O. (2005). Scientifically unsupported and supported interventions for childhood psychopathology: A summary. Pediatrics, 115, 761–764. Lilienfeld, S. O., Marshall, J., Todd, J. T., & Shane, H. C. (2014). The persistence of fad interventions in the face of negative scientific evidence: Facilitated communication for autism as a case example. Evidence-Based Communication Assessment and Intervention, 8(2), 62-101. Lock, R. H., Graff, C. A., & Bitar, G. W. (2008). Service delivery innovations for autism spectrum disorders in the state of Texas. Lubbock, Texas: Texas Tech University.

41. Margolin, K. N. (1994). How shall facilitated communication be judged? Facilitated communication and the legal system. Facilitated Communication: The Clini- cal and Social Phenomenon (pp. 227–257). San Diego, CA: Singular Publishing. Mesibov, G. B., & Shea, V. (2011). Evidence-based practices and autism. Autism, 15(1), 114-133. Oztan, O., Jackson, L. P., Libove, R. A., Sumiyoshi, R. D., Phillips, J. M., Garner, J. P., ... & Parker, K. J. (2018). Biomarker discovery for disease status and symptom severity in children with autism. Psychoneuroendocrinology, 89, 39-45. Price, J. R. (2013). Preservice knowledge and training in autism spectrum disorders. SIG 10 Perspectives on Issues in Higher Education, 16, 71–80. Roser, K. (1996). A review of psychoanalytic theory and treatment of childhood autism. Psychoanalytic review, 83(3), 325. Saad, K., Abdel‐Rahman, A. A., Elserogy, Y. M., Al‐Atram, A. A., El‐Houfey, A. A., Othman, H. A. K., ... & Ahmad, F. A. (2018). Randomized controlled trial of vitamin D supplementation in children with autism spectrum disorder. Journal of Child Psychology and Psychiatry, 59(1), 20-29.

42. Schreck, K. A., & Mazur, A. (2008). Behavior analyst use of and beliefs in treatments for people with autism. Behavioral Interventions, 23, 201–212. Sonuga‐Barke, E. (2018). Letter to the author from Editor‐in‐chief seeking clarifications. Journal of Child Psychology and Psychiatry, 59(1). Todd, J.T. (2012). The moral obligation to be empirical: Comments on Boynton’s “Facilitated communication—what harm it can do: Confessions of a former facilitator”. Evidence-Based Communication Assessment and Intervention,6, 36–57. Vanya, M., Szucs, S., Vetro, A., & Bartfai, G. (2017). The potential role of oxytocin and perinatal factors in the pathogenesis of autism spectrum disorders–review of the literature. Psychiatry research, 247, 288-290. Wegner, D. M. (2003). The mind’s best trick: How we experience conscious will. Trends in Cognitive Sciences, 7, 65–69. Wick, J., & Smith, T. (2009, Winter). Popular media citations for facilitated communication. Autism and Related Developmental Disabilities Special Interest Group Newsletter, 25.