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Respite Care Charleston 405 King Street Charleston, SC 29403 843-647-7405 www.respitecarecharleston.org

Respite Care Charleston 405 King Street Charleston, SC 29403 843-647-7405 www.respitecarecharleston.org. Respite Care Charleston Mission, Description and Vision.

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Respite Care Charleston 405 King Street Charleston, SC 29403 843-647-7405 www.respitecarecharleston.org

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  1. Respite Care Charleston405 King StreetCharleston, SC 29403843-647-7405www.respitecarecharleston.org

  2. Respite Care CharlestonMission, Description and Vision Each week, it seems, another Charleston family awakens to the reality that a loved one – parent, spouse, sibling, friend – may be developing symptoms of dementia. It is a reality fraught with emotion, confusion – and a million questions. Respite Care Charleston, the only nonprofit organization of its kind in Charleston County, understands the stages of quandary that come upon persons who have dementia, and those who care about and for them. For 17 years, Respite Care Charleston has committed to offering programs and valued guidance to Charleston families grappling with Alzheimer's disease, the most prevalent, as well as vascular dementia and the many other forms of cognitive impairment. As the national debate continues about how best to care for our nation's aging citizens, we here at Respite Care Charleston are focused on the day-to-day needs of caregivers and their families today, and tomorrow. Mission Respite Care Charleston improves the quality of life for individuals and families coping with Alzheimer’s disease and related disorders (ADRD). Description Respite Care Charleston is a valuable resource that provides social day programs, community education and support groups for individuals and families affected by Alzheimer’s disease and other dementia. Short breaks from care giving (respite care) help support and strengthen families, allowing the continuation of care in the home. Participants enjoy memory stimulating socialization, music therapy and gentle exercise thus promoting health and well-being. Vision Respite Care Charleston will be known as the premier resource in the community for services and support for families coping with Alzheimer’s disease and related disorders. Respite Care Charleston will respond to the growing need for services and support for people with Alzheimer’s disease and related disorders. The caregivers we serve will be healthier and stronger caregivers. The people with diagnoses we serve will be respected, valued and supported. The community at large will be better educated and supportive of families and people coping with Alzheimer’s disease and related disorders.

  3. Social Day Program • Sixty-four percent of caregivers of the elderly receiving 4 hours of respite per week after one year reported improved physical health, 78% improved their emotional health, and 50% cited improvement in the care recipient as well. Forty percent said they were less likely to institutionalize the care recipient because of respite (Theis, S.L., et al, 1994). We have approximately 50 participants with Alzheimer’s or Dementia enrolled in the day program on a weekly basis. The participants attend the program 1 to 5 days a week. The daily fee for the four hour program is $35. Participants enrolled with Respite Care Charleston often attend at more than one location. "I see much love first thing...and he loves it! When I leave him at the respite program, I know he will be taken care of and will be happy after spending time there. I am so glad I found them! - Betty Temple, wife and caregiver

  4. We have eight caregiver support groups that serve between 40-50 caregivers each month. • We provide respite care during our caregiver support groups. • With support groups, caregiving is a partnership between family, friends and community resources. Caregiver Support Groups Studies show that counseling and support groups in combination with respite and other services help caregivers remain in their caregiving role longer, with less stress and greater satisfaction. (Family Caregiver Alliance, National Center on Caregiving)

  5. Support and Education for People in the Early Stages of Alzheimer’s disease We offer a support group for people newly diagnosed and in the early stages of Alzheimer's disease twice a month. Our group has 8 members with Alzheimer's disease and is growing. Care partners meet separately for half of the meeting. “Give me tools for living with this disease. Please don’t give me my diagnosis and then leave me alone to confront it. I need to know what will happen to me, and I need to know not only about medical treatment options but also what support is available through resources in my community. Work with me on a plan for healthy living. Medication may help modify some of my neurological symptoms, but I am also interested in other recommendations for keeping myself as healthy as possible through diet, exercise and social engagement.” Quote from “Request from People with Alzheimer's disease”

  6. Community and Caregiver Education Becoming well-informed about the disease is one important long-term strategy. Programs that teach families about the various stages of Alzheimer’s and about flexible and practical strategies for dealing with difficult caregiving situations provide vital help to those who care for people with Alzheimer’s. (National Institute on Aging) Partnering with South Carolina Aging in Place Coalition and Dementia Specialists we provide education seminars in the community With Aging in Place Speakers Bureau we educate the community about how to plan for aging in place and about the wide range of resources that are available to support the ability of seniors to age in place successfullyWith Dementia Specialists we offer Dementia Dialogues, a 5-part learning experience designed to educate individual who care for persons with Alzheimer's disease or related dementias.

  7. AnnualHighlights • 11,000 hours of socially-oriented respite carewere provided to 130 families coping with Alzheimer’s or related dementia. • Monthly support groups were conducted for 115 caregivers, including a new evening group for those unable to attend during daytime hours. • Support and education served 21 people, ages 49 to 80, newly diagnosed and in the early stages of Alzheimer’s or related dementia. • We have the tremendous support of a dedicated board of directors, more than 200 volunteers and our community partners including MUSC Center on Aging and Franke at Seaside. • Together we raised significantly more than half of our annual operating budget of $220,000.

  8. Measure of Success The most heartwarming measure of success for Respite Care Charleston is the wonderful feedback we continue to receive year after year from the people we serve.  Here are the thoughts of just a few of them: “When you are a caregiver (of a loved one with dementia) you are sometimes at a loss about how to go on, but you can depend on Respite Care Charleston to be with you...Respite Care can also be a great gift for those with dementia. Their programs provide a safe place where they can ...enjoy a sense of normalcy with volunteers who give them a lot of love.”– Bebs Smith, Caregiver “I am a regular at a Respite Care program. I see hands on face to face, attitude and physical changes...and more smiles. (This program) “keeps us calmer mentally and physically. It's another blessing in my life of 86 years.”– Wilber Neumeyer, Volunteer with Alzheimer's disease. “The GriefShare program has been a godsend to me...It is wonderful to join others in the same, but amazingly different situations and learn from what they deal with as we travel this road together.”–Carol Onorato, Caregiver

  9. Community Partnerships and Projects • Community Based Participatory Research with MUSC College of Nursing. • MUSC Center on Aging - Senior Mentor Program and Brain Bank • Trident Technical College Department of Human Services Student Field Placement Site • College of Charleston Sociology Department Applied Learning Site for Students • MUSC College of Nursing Clinical Site for BSN Students • Community Garden Clubs • Time Slips Storytelling • South Carolina Aging in Place Coalition Education Partnerships • Redeemer Children’s Center Intergenerational Program • Southeastern Therapy Animal Resources • Seabrook Island Artist Guild • East Cooper Meals on Wheels • Charleston Area Senior Center - Senior Companion Program • Hot Jazz Dance Club

  10. Maintaining Each year we provide over 11,000 hours of respite care for caregivers of people with Alzheimer’s disease. During one month, volunteers provide over 500 hours of care, companionship and support. We provide tools and education for people with Alzheimer’s disease to remain independent in their community. Caregivers are given time to take care of themselves. • To simply sustain our program, • we must raise $120,000 each year to provide the programs and services of Respite Care Charleston. • Your support will help us sustain our program.

  11. Sustaining, Growth and Impact of Support Vision and Goals Establish a respite center. The respite center would be the destination for anyone with Alzheimer's disease or their caregivers to receive the best in education, support and day programs. Expand the support and education group for people in the early stages of Alzheimer’s disease by adding 4 additional meetings a year. Expand the support and education group for people in the early stages of Alzheimer’s disease by adding a day respite program specific to people in the earlier stages of disease. Expand the social day respite program and caregiver support groups to North Charleston. Establish an endowment to provide a stable income source to assure the services provided by Respite Care Charleston remain available in our community. • To grow and enhance our program we must increase our budget from $220,000 to $506,000 annually. • Your support will help us grow and enhance our program.

  12. Income Sources 2013

  13. Fundraising EventsGolf Tournament Monday March 18, 2013 The 9th annual golf tournament to benefit the programs of Respite Care Charleston was held on Monday, March 18th, 2013 at Seabrook Island's Crooked Oaks Golf Course.  Opportunities to sponsor the 2014 tournament available!

  14. Fundraising EventsGolf Tournament Guided Nature Walk  Our Guided Nature Walk is a fabulous addition to the event. Walkers met at 3:00pm at Camp St. Christopher. David Gardner with the Barrier Island Environmental Education Program led a 2 hour nature walk to the beach, the maritime forest and undisturbed salt marsh on Seabrook Island, SC. 

  15. Fundraising EventsGolf Tournament Reception and Awards Volunteers, caregivers, participants, and other supporters joined the golfers in The Atlantic Ballroom at Seabrook Island Club. 

  16. Fundraising EventsArt Event and Silent AuctionSave the DateThursday, October 3rd 2013 This evening is a tribute to the creative spirit that persists in spite of many losses experienced with Alzheimer’s disease. Through your generous support we can make a difference in the lives of many individuals and their families as they deal with the challenges of this disease.

  17. Fundraising EventsArt Event and Silent Auction

  18. Board of Directors and Staff 2013 Board of Directors Barbara J. Edlund Ph.D., RN, ANP, board chair, Professor, MUSC College of NursingG. Chris Osborne, Jr., Family Asset Management, LLCBernard J. Buonanno, Jr.,VP, Distribution, Midwest Region, AARP Services Inc.Marilyn M. Swygert, PT, DPT, MHS, co-owner Charleston Physical TherapyNancy Hall Barker, CEO, IMSCO, Quality Workforce SolutionsAmy Cox, MD, Medical Director, Amedisys Hospice Care Staff Laura Stefanelli, Executive Director Margaret Kunes, Program Director Jennifer Hartig, Program Coordinator Allison Durst, Part-time Program Coordinator Ginger Deignan, Part -time Program Coordinator Nellie Hair, Program Assistant

  19. Thank you For more information about Respite Care Charleston Visit us at our day respite sites Call us at 843-647-7405 Visit our Facebook page – Respite Care Charleston Visit our Website – www.respitecarecharleston.org Thank you!

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