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Tracy Onega, PhD

Breast Cancer Surveillance Consortium (BCSC): sponsored by the National Cancer Institute Cancer Screening Surveillance in Clinical Practice. Tracy Onega, PhD Director, NH Mammography Network, Assistant Professor of Community & Family Medicine

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Tracy Onega, PhD

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  1. Breast Cancer Surveillance Consortium (BCSC): sponsored by the National Cancer InstituteCancer Screening Surveillance in Clinical Practice Tracy Onega, PhD Director, NH Mammography Network, Assistant Professor of Community & Family Medicine Dartmouth Medical School & the Norris Cotton Cancer Center

  2. Flashback to pre-BCSC…….. Circa early-mid 1990s…………. No understanding of screening mammography process or quality • MQSA passed to ensure standardized delivery of quality mammography services NCI responded to legislative mandate by establishing surveillance system to provide reliable and comprehensive performance data

  3. Breast Cancer Screening Process PROCESS SURVEILLANCE OUTCOME SURVEILLANCE Patient Factors Screening Examinations Diagnostic Evaluations Intermediate Outcome Treatment Long-term Outcome Surveillance Systems for Routine Clinical Practice

  4. Screening Registries Should Be….. • Integral to clinical care processes • Population based / part of consortia • Interdisciplinary • Longitudinal • Informing and Improving: • Patients’ lives • Provider care • Evidence-based guidelines • Tailored screening approaches • Research

  5. The Cornerstone:Infrastructure & Common Data Elements GHRI Reporting Data Management / Warehouse SFMR SCC Consolidated Data CMR Map NHMN Data Analysis VBCSS

  6. Registry Data Collection Methods Pathology Reports (abstracted) Women’s Questionnaire (filled out at time of mammogram) State Cancer Registry Radiologist/ Rad Tech Form (filled out at time of mammogram) Vital Status (DHHS) Radiologist Info Facility Info Registry Database

  7. Cancer Care Continuum & BCSC Resources

  8. Foundation for Infrastructure Women Facilities Providers

  9. Fostering Participation Voluntary registries – how to develop & maintain buy-in? MQSA, quality measures, benchmarking Facilities Clinicians Patients Performance feedback Relationships Disseminating findings, Electronic data capture, Rad tech support

  10. Data Collection Innovations • Software for clinical data collection • Tablet PCs • Integration with electronic health records • Continuous breast density • Digital image collection • Standardized data elements for new modalities • Built-in reporting

  11. Built-in Reporting From: Geller B.

  12. Confidentiality & Legal Infrastructure • Federal Certificate of Confidentiality • strongest protection • tested in court • protects providers and patients

  13. Screening in Cancer Control Concept Map Showing Priority and Thematic Areas of Research for the Applied Cancer Screening Research Branch at NCI http://cancercontrol.cancer.gov/acsrb/priorities_figures.html Improved Breast Cancer Screening Practices

  14. Expanding the Utility of the BCSC Medicare Claims Ovarian Cancers New Technologies

  15. Thank You to the National Cancer Institute

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