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Increasing Consumer Involvement: Ryan White Title I Planning Council Training

Increasing Consumer Involvement: Ryan White Title I Planning Council Training. 2004. Goals of the Training:. Provide an opportunity for HIV-positive Ryan White CARE Act Title I consumers participating on Planning Councils to learn more about their roles in the planning process.

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Increasing Consumer Involvement: Ryan White Title I Planning Council Training

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  1. Increasing Consumer Involvement:Ryan White Title I Planning Council Training 2004

  2. Goals of the Training: • Provide an opportunity for HIV-positive Ryan White CARE Act Title I consumers participating on Planning Councils to learn more about their roles in the planning process. • Give consumer members, Council chairs, and Council staff members the tools to increase and support consumer member involvement on their own Councils.

  3. Goals of the Training: • Increase the capacity for meaningful participation among consumers on Ryan White CARE Act Title I Planning Councils. • Create an opportunity for consumers to network regionally and learn from one another.

  4. Session 1: Introductions • Session Objectives: By the end of the session, participants will be able to: • Begin to interact comfortably with one another. • Compare their own expectations for the training with the training objectives.

  5. Introductions • Name? • EMA? • Role on your Planning Council? • Length of time with the Planning Council • Expectations for this training?

  6. Session 2: Forming & Norming • Learning Objective: By the end of the session, participants will be able to: • Identify ground rules that help them work more effectively on committees and during the training.

  7. Session 3: Ryan White CARE Act Overview • Learning Objectives: By the end of the session, participants will be able to: • Describe CARE Act goals, programs, and guiding principles. • Describe Title I scope, programs, and funding process. • Explain how CARE Act programs are administered within the HIV/AIDS Bureau.

  8. Ryan White CARE Act • Largest Federal government program specifically designed to provide services for people living with HIV/AIDS. • Since 1991, about $14.2 billion in grant awards have been made to 51 Eligible Metropolitan Areas (EMAs), 50 States, the District of Columbia, Puerto Rico, Guam, the Virgin Islands, and the Pacific Islands jurisdictions.

  9. The HIV/AIDS Bureau (HAB) • Administers the Ryan White Comprehensive AIDS Resources Emergency (CARE) Act programs. • Programs benefit low-income, uninsured, and underinsured individuals and families affected by HIV/AIDS.

  10. HIV/AIDS Bureau: Four Critical Principles • Focusing services on the underserved in response to the HIV/AIDS epidemic’s growing impact among underserved minority and hard-to-reach populations. • Ensuring access to existing and emerging HIV/AIDS treatments that can make a difference.

  11. HIV/AIDS Bureau: Four Critical Principles(continued) • Adapting to changes in the financing of the health care delivery system and the role of CARE Act services in filling gaps in care. • Documenting the impact of CARE Act funded services on: • improving access to quality care/treatment • areas of continued need

  12. Which One is Which? Take the Ryan White CARE Act Title quiz.

  13. CARE Act Programs: • Title I: Emergency funding for eligible metropolitan areas (EMAs) that are severely and disproportionately affected by the HIV epidemic • Title II: • Grants to all 50 States, territories, and jurisdictions • AIDS Drug Assistance Program (ADAP) • Grants to emerging communities • Titles I and II are administered by the Division of Service Systems (DSS).

  14. Other CARE Act Programs • Title III: Capacity Building, Planning, Early Intervention Services • Title IV: Improving access to care for Women, Infants, Children and Youth • Part F: • Special Projects of National Significance (SPNS) • HIV/AIDS Education and Training Centers (AETCs) • Dental Reimbursement Programs & Community-based Dental Partnership • Program Data and Evaluation

  15. What is Title I of the CARE Act? Title I provides grant funds to eligible metropolitan areas (EMAs) that are severely and disproportionately affected by the HIV epidemic.

  16. Title I Grantees • Funds are awarded to the Chief Elected Official (CEO) of the city or county that administers the health agency providing services to the greatest number of people living with HIV disease within the EMA. • The CEO designates the grantee to select service providers and administer contracts. • The CEO establishes the Planning Council & appoints members to it.

  17. Title I Funds may be used to provide a wide range of community-based services: • Outpatient and ambulatory health services (including medical and dental care as well as substance abuse and mental health treatment) • Support servicese.g., case management, home health and hospice care, housing and transportation assistance, nutrition services, day/respite care • Early Intervention Servicesthat include outreach, HIV linkages with counseling and testing, referral, and the provision of outpatient medical care designed and coordinated to bring individuals into the continuum of care

  18. Minority AIDS Initiative (MAI) Grants: • Used to modify or expand HIV care services for disproportionately impacted communities of color. • Subject to the same requirements as “regular” Title I funds.

  19. Title I Providers may include: • Public or nonprofit entities • Private for-profit entities, IF they are the only available provider of quality HIV care in the area

  20. Flow of Title I Decision-Making and Funds

  21. Key Points to Remember • Care Act services are not an entitlement • Care Act = payer of last resort • “Medical model” means all services must link to primary care • Title I Planning Council is not advisory • Consumers play a key role

  22. Session 4: Roles and Responsibilities of Planning Councils • Learning Objectives: By the end of the session, participants will be able to: • Describe the cycle of annual planning activities that the Council performs. • List the mandated responsibilities of the Planning Council. • Explain the collaborative roles between the grantee, Council, and Council support staff.

  23. Structure of Title I Planning Councils • Established by the Chief Elected Official. • Membership must reflect local HIV/AIDS epidemic. • Must include representatives from groups designated by the CARE Act. • At least 33% of voting members must be PLWH not affiliated with Title I service providers and receiving Title I services. • Must have an open nominations process and grievance procedures.

  24. Major Requirements of Planning Councils • Planning Council Operations • Needs Assessment • Comprehensive Planning • Priority Setting • Resource Allocation • Service Coordination • Assessment of Efficiency of Administrative Mechanism 2004

  25. Other Responsibilities of Planning Councils • Evaluation of Effectiveness of Care Strategies (optional/best practice) • Quality Management (shared with grantee) 2004

  26. Planning Council Operations • Rules (by-laws, open nominations process, policies and procedures) to help Councils operate smoothly and fairly. • Includes new member recruitment, orientation and training. 2004

  27. Needs Assessment Find out: • Number and characteristics of persons living with HIV/AIDS in the EMA • Needs of people who know their HIV status but are not in care • Differences in care for different populations • Capacity development needs of agencies • How CARE Act services can coordinate with other services (substance abuse, HIV prevention, etc.) 2004

  28. Comprehensive Planning • Develop the roadmap or vision for HIV service delivery system in the EMA. • Guides decisions for next several years. • Should be in harmony with the Statewide Coordinated Statement of Need (SCSN). 2004

  29. Priority Setting • Deciding which HIV/AIDS services are the most needed and important in the EMA. • Giving directives to the Grantee about how best to meet these priorities. 2004

  30. Resource Allocation • Deciding how much funding to use for each of the priority service categories. • Is solely the responsibility of the planning council. • May use funds to pay for special projects, studies, or capacity building. 2004

  31. Service Coordination • Coordinates with other CARE Act programs and other services for PLWH. • Avoids duplication and reduces gaps in care. • Participates in the Statewide Coordinated Statement of Need process along with other CARE Act Titles. 2004

  32. Evaluate the Effectiveness of Care Strategies • How well are Title I funded services meeting the needs of PLWH? • Are PLWH engaged in care and remaining in care? • Are we reducing morbidity and mortality in the EMA? 2004

  33. Assess the Administrative Mechanism • Is the grantee funding the Planning Council priorities? • Are the Planning Council directives incorporated into the RFP and the contract language? • How quickly are contracts for service providers signed? • Are providers paid in a timely manner?

  34. CEO & Grantee Responsibilities • Establish the Planning Council • Participate in needs assessmentProvide information to accomplish tasks • Participate in comprehensive planning • Manage procurement • Distribute funds according to the priorities • Monitor contracts • Support Planning Council operations • Quality management 2004

  35. CEO/Grantee & Planning Council Roles and Responsibilities 2004

  36. Title I Planning Cycle 2004

  37. Session 5: What is Data? Unfolding the Mystery • Learning Objectives: By the end of the session, participants will be able to: • Use data more comfortably. • Define some basic concepts of epidemiological data.

  38. Epidemiology: • The study of the distribution, causes, and control of disease and health in population

  39. Population: • The total group to be studied • Example: All the people living with HIV/AIDS in the New Orleans EMA

  40. Subpopulation: • A defined set of people from the group being studied • Example: HIV-positive injection drug users living in the New Orleans EMA

  41. Percentage: • Proportion of a whole, expressed as parts in 100 • Example: 10 out of 200 PLWH in the EMA who are using child care = (10 / 200) X 100 = 5%

  42. Incidence: • The number of new cases of a disease in a population during a defined period of time • Example: 300 new cases of AIDS diagnosed in the EMA in the year 2000

  43. Incidence rate: • The frequency of new cases of a disease that occurs per unit of population during a defined period of time • Example: 20 AIDS cases per 100,000 people in the EMA in the year 2000

  44. Prevalence: • The total number of persons (living or dead) in defined population with a specific disease or condition at a given time (compared to incidence, which is the number of new cases) • Example: 10,000 cases of AIDS diagnosed in the EMA as of 12/31/2000

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