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2005 Early Hearing Detection and Intervention Conference Atlanta, GA; March 4, 2005

WHERE ARE THEY NOW: Children who are Deaf or Hard of Hearing Identified by Newborn Hearing Screening in Hawai`i. 2005 Early Hearing Detection and Intervention Conference Atlanta, GA; March 4, 2005. Beppie J. Shapiro, Ph.D. and Taletha M. Derrington, M.A.

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2005 Early Hearing Detection and Intervention Conference Atlanta, GA; March 4, 2005

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  1. WHERE ARE THEY NOW:Children who are Deaf or Hard of Hearing Identified by Newborn Hearing Screening in Hawai`i 2005 Early Hearing Detection and Intervention Conference Atlanta, GA; March 4, 2005 Beppie J. Shapiro, Ph.D. and Taletha M. Derrington, M.A. Center on Disability Studies, College of Education, University of Hawai`i beppie@hawaii.edu, taletha@hawaii.edu

  2. Presentation Outline • Description of Study • Initial data • Discussion

  3. Hawai`i Follow-Up Study of Children with Congenital Hearing Loss • Goal: Describe communication, cognitive and social/emotional status and service history • Relate to type and degree of hearing loss • Collect demographic and family information

  4. Study Eligibility • Born 1992-1998 • Permanent congenital hearing loss • Lived continuously in Hawai`i • Co-occurring disabilities do not preclude assessment

  5. Funding - CDC & HI DOH IRB approvals Recruitment and consents Parent completes questionnaires & signs releases Send record abstracts to providers Determine eligibility Assess communication, cognitive and social/emotional as necessary Study Process

  6. Current Study Status • 50 potentially eligible children enrolled • Information from 147 providers obtained • Initial data for NHS-identified children entered in database

  7. Child Demographics Ethnicity

  8. Child Demographics Birth Year • Mean age upon study entry 6.9 years (range 4.6-10.4, SD 1.8) • 7 girls, 15 boys

  9. Family Demographics • Mean household income 184% FPL (range 55-300%, SD 81%) • Mean age of mother at birth of child 32 yrs. (range 16-42, SD 6.6) Mother’s Education Parents’ Language

  10. Parent Report: How Loss Was Identified • Mean age of identification reported by parent was 9 months (range 0-72, SD 18 mo) • One child had a family history of hearing loss

  11. Child Service History • 36% use hearing aids; no cochlear implants • Mean age of amplification 27 mo (range 2-72, SD 29) • Mean percent of the time child wears aid 65% (range 25-100%, SD 29%) • Three children use aids only at school

  12. 82% were enrolled in EI Mean age at first intervention 1.5 yrs. (range 0-4.75, SD 1.36) Mean length of enrollment in EI 1.8 yrs. (range 0-3, SD 0.89) 86% attended preschool at ages 3-4 86% currently attend public schools, 14% attend private schools Child Service History

  13. Child Development • 95% communicate in spoken English; one child primarily uses ASL • 18% had other developmental delays (cognitive, fine motor, gross motor)

  14. Discussion What questions do you have?

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