1 / 20

Health and Wellbeing at work 2011 Tuesday 8th March 11.40am 12.10pm Working with Parkinson s Disease.

Session outline. This session will consider ways Parkinson's disease (Parkinson's) may impact on ability to work. Particular emphasis will be given to communication and cognitive function, although evidence about these issues is far less abundant than information about the motor aspects of the dis

truda
Télécharger la présentation

Health and Wellbeing at work 2011 Tuesday 8th March 11.40am 12.10pm Working with Parkinson s Disease.

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

    1. Health and Wellbeing at work 2011 Tuesday 8th March 11.40am 12.10pm Working with Parkinsons Disease. Ana Aragon Independent Occupational Therapist with a special interest in Parkinsons and related disorders & Associate Senior Lecturer Parkinsons MSc - course leader Leeds Metropolitan University.

    2. Session outline This session will consider ways Parkinsons disease (Parkinsons) may impact on ability to work. Particular emphasis will be given to communication and cognitive function, although evidence about these issues is far less abundant than information about the motor aspects of the disease. Therapeutic approaches and sources of help will also be reviewed.

    3. Parkinsons disease more than just a movement disorder. In addition to physical impairments (due to cardinal motor symptoms = tremor, rigidity, bradykinesia and postural instability), Parkinsons may also lead to communication, psychological and social problems, due a variety of factors.

    4. Common problems experienced by people with Parkinsons Reduced facial expression and reduced non-verbal communication behaviours. Reduced clarity and / or volume of speech. Embarrassment and feelings of social stigma. Stress or frustration at being slow. Stress of coping with daily life, or stress from coping with work.

    5. Non-motor symptoms Autonomic failure, continence problems Speech and swallowing problems Handwriting generally becomes micrographic small Anxiety, depression and mood swings are all common and can lead to withdrawal from normal daily life. Psychosis, impulse control problems or compulsive behaviours may occur often linked to medication.

    6. Living with Parkinsons Feelings of being misunderstood by others - due to unusual movements, lack of expression, delayed speech or poor balance, which may be wrongly attributed to: Disinterest or low mood Dementia Lack of intelligence Being drunk! Social withdrawal, reduction of social participation and consequent isolation may occur because of a combination of these factors.

    8. Is Parkinsons a Psychiatric disorder with motor features?

    9. Being young with Parkinsons Parkinsons is more common in older people but - 1 in 20 of the 10,000 (approx) people diagnosed in the UK each year, are under 40 years when diagnosed with Parkinsons (Parkinsons UK, 2011).

    10. Particular challenges for younger individuals with Parkinsons may include; Providing support for children and teenagers. Coping with the emotional effects of being diagnosed at a younger age. Coping with busy outdoor and community mobility and travel. Needing help and information about money and work...

    11. Work "Being in work" provides more than money! For example work brings; personal status and sense of self-worth sense of identity through role retention financial independence social contacts and opportunities to share experiences with people outside the home. Voluntary and other unpaid work also has value in providing social contact, a sense of purpose and maintenance of self-esteem. The association between unemployment and poorer psychological and physical well-being is well documented.

    12. Employment in full or part-time work of people with a diagnosis of Parkinsons raises many questions. With appropriate management, some people can continue to work for many years. Disclosing a diagnosis is very personal and people differ in timing of disclosure for a variety of reasons. Informing employers and colleagues can leads to better support and assistance in the workplace. If having Parkinsons may impact on health and safety in the workplace, employers must to be informed so that a risk assessment can be conducted. Employers need to know about any disability affecting an employee to put in place any reasonable adjustments.

    13. Therapeutic approaches Medical management and regular reviews ideally by clinician with a special interest in Parkinsons - medications need many changes and additions as disease progresses. Surgical treatments Occupational Therapy Physiotherapy Speech and Language Therapy Psychology Counselling

    14. Work retention Emerging research evidence indicates the positive benefit of vocational input, for people with progressive neurological disorders. Up to date information about work retention programmes and practical employment support can be found at the department for work and pensions (dwp).

    15. The 2010 Equality Act The 2010 act replaced most of the Disability Discrimination Act (DDA). However, the Disability Equality Duty in the DDA continues to apply. The Equality Act provides protection and legal rights for disabled people. http://www.direct.gov.uk/en/DisabledPeople/RightsAndObligations/DisabilityRights/DG_4001068

    16. Support and information to aid maintenance of paid and unpaid work roles Explore Work retention initiatives. Disclosure of diagnosis at the right time for the individual, should be enabled. Referral to an occupational therapist (OT) to; act as a work advocate provide a link between a person with Parkinsons, their workplace and government services such as Disability Employment Advisors, Access to Work Schemes, dwp available via the following web link; www.dwp.gov.uk

    17. Possible OT roles relating to work difficulties; Conduct work assessment visit to establish key physical and cognitive difficulties. Make recommendations for reasonable workplace adjustments to enable a person with Parkinsons to physically and cognitively undertake their job. E.g changes to role content, hours of work, location of work and employers expectations. Provide guidance for employers about their role and responsibility under the Equality Act 2010 / Disability Discrimination Act 2005 .

    18. Further information available online See the Parkinsons UK and European Parkinsons Disease Association (EPDA) websites; www.parkinsons.org.uk www.epda.eu.com Both patient support organisations and are for people living Parkinsons, their families and friends, as well as for health and social care professionals and others who may require information about the condition.

    19. Finishing work Someone with Parkinsons may become unable to reasonably continue working due to severe mental and or physical fatigue, cognitive dysfunction, communication problems, loss of driving capability, psychological symptoms, poorly controlled motor symptoms, severe autonomic failure or advancing disease. In this case emotional, practical and financial impacts will be experienced. It may benefit to hold discussions between employers, Human Resources (personnel) and or trade union representatives, to establish the most favourable terms and timing to withdraw from work.

    20. References and further reading All Party Parliamentary Group for Parkinsons Disease (2009) Please mind the gap: Parkinsons disease services today. All Party Parliamentary Group for Parkinsons Disease,London. Aragon A. & Kings J. (2010) Occupational Therapy for People With Parkinsons: Best Practice Guidelines. The College of Occupational Therapists, London . Department of Health (2005) The National Service Framework for Long-term Conditions. Department of Health. London. Keus, et al. (2004) Guidelines for physical therapy in patients with Parkinsons disease; Dutch Journal of Physiotherapy; 114 (3) Supplement 194 National Institute for Health & Clinical Excellence NICE (2006) Parkinsons Disease. National clinical guidelines for diagnosis & management in primary & secondary care. Royal College of Physicians, London. Parkinsons Disease Society of the UK (2006) Non-motor symptoms Questionnaire. Parkinsons Disease Society, London. Parkinsons Disease Society of the United Kingdom ((2007) The Professionals Guide to Parkinsons Disease. Parkinsons Disease Society, London. Parkinsons Disease Society (2008) Life with Parkinsons today room for improvement. Parkinsons Disease Society, London. Ramaswamy B, Jones D, Goodwin V, Lindop F, Ashburn A, Keus S, Rochester L, Durrant K (2009) Quick Reference Cards (UK) and Guidance Notes for physiotherapists working with people with Parkinsons disease. Parkinsons Disease Society, London. The British Psychological Society (2009) Psychological Services for people with Parkinsons disease and their families. The British Psychological Society, Leicester.

    21. Thank you for your attention. Any questions?

More Related