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MoodRhythm A Bipolar Disorder Monitoring Application Concept

MoodRhythm A Bipolar Disorder Monitoring Application Concept. Presented by: Mengxi [Chrissie] Chi Matthew Green Clients: Steve Voida & Mark Matthews INFO 4420 - HCI Studio Friday , November 30 th , 2012. Agenda. Problem Definition The Others, Our Competition The Learning Process

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MoodRhythm A Bipolar Disorder Monitoring Application Concept

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  1. MoodRhythmA Bipolar Disorder Monitoring Application Concept Presented by:Mengxi [Chrissie] ChiMatthew Green Clients: Steve Voida & Mark MatthewsINFO 4420 - HCI StudioFriday, November 30th, 2012

  2. Agenda • Problem Definition • The Others, Our Competition • The Learning Process • Our Target Persona & Subjugates • MoodRhythm Defined • Final Design • Evaluation • Questions & Feedback

  3. Problem Definition • Bipolar Disorder:A mood disorder in which people experience disruptive mood swings between two polar opposites – mania/elation & depression/deep sadness. • Lifelong condition that has to be managed via medication, social interactions and long term clinical care. • A serious condition with no known set of triggers; a personal condition that is managed differently from person to person.

  4. The Others, Our Competition Technological Competitors (LarkLife, BeWell, Monarca, Optimisim Online) Traditional Competitors (Social Groups, Clinical Aides, Hospitalization, Medication)

  5. Characteristics Of Our Technological Competitors Main challenge is to assist people in keeping a healthy lifestyle by tracking everyday behaviors without burdening them. • LarkLife: Helps people manage workout, diet, sleep and rest by monitoring through bracelet. “Live smarter.” A light tool. • BeWell: Records online behavior and reflects condition by the color of fish on your screen. Fun and visually attractive. • Monarca: Based on monitoring, assessment and prediction, it provides a coaching concept for self treatment. Statistic and “serious”, a medical tool. • Optimisim Online: Provides users with detailed statistics of their condition by the feedback from user. Bridges the patient and doctor well. But a “heavy” software.

  6. Characteristics Of Our Traditional Competitors • Through our research we learned that there is a class of treatment that does not rely on technology but on traditional means such as the following: • Social Groups: Support groups that meet regularly to discuss coping means and self-help methods that worked for a specific trigger. • Clinical Aides: Regular doctor visits and follow-up visits with a therapist or psychologist. • Hospitalizations: At the most adverse times of mania or depression hospitalization is needed. • Medication (Lithium): Tablets like lurasidone and antidepressants are used to balance lithium levels, dopamine levels and mood.

  7. The Learning Process Becoming Subject Matter ‘Experts’, Data Gathering, Learning From Our Data & Coining The Phase System

  8. Becoming Subject Matter ‘Experts’ • Exploited information from clients, personal contacts and academic & medical papers. • Dr. Herbert Eldemire was very influential with learning about Bipolar disorder in a medical fashion. • Mark & Steve provided excellent academic and medical references: • “Interpersonal and social rhythm therapy: an intervention addressing rhythm dysregulation in bipolar disorder” by Ellen Frank, PhD; Holly A. Swartz, MD; Elaine Boland, BA • “The Importance of Routine for Preventing Recurrence in Bipolar Disorder” by Ellen Frank, PhD, Jodi M. Gonzalez, PhD & Andrea Fagiolini, MD.

  9. Data Gathering • Difficult to find participants because it is a sensitive subject area. • Interviewed seven people; two proxies, two students with disabilities and four professionals. • Dr. Herbert Eldemire provided weekly feedback via Skype. • Interviews were chosen as the only method. • Clients helped greatly with providing research materials as well as conducting interviews for us. • The process started at week four and ended on Nov 28th 2012. • Many expert consultations.

  10. Learning From Our Data • Mental health patients dislike daily recording of metrics. • Passive or autonomous record keeping is preferred. • Sleep, diet, exercise, stress levels and past trending help the most in the management of mental and physical illnesses especially with respect to medication dosage. • Having social interactions with loved ones or close friends is the best remedy but for medication. • Social interaction and intervention is very important but within a closed loop.

  11. Coining The Phase System

  12. Our Target Persona & Subjugates Bipolar Disorder Management Key Players, Paul – Our Primary Persona & Subjugates

  13. Bipolar Disorder ManagementKey Players

  14. Paul – Our Primary Persona • Stage 3 Bipolar Disorder. • 32 years old; living with BD for 10 years. • Has a wife and only goes to the doctor when needed. • Has tried many forms of treatment and has finally settled into normality. Goals • Monitor lithium levels, sleep and other key metrics. • React to changes quickly and return to normality. • Not have to record much or anything at all. • Passive feedback for personal and clinical use. • Intervention only in extreme cases. • Keep condition private. • Be Normal!

  15. Subjugates The Significant Other • The role of a wife or husband (collectively – the significant other) is imperative to recovery. • They want Paul to be normal. • They want to help when they can and when they are needed. • They do not want over-information. The Doctor • Having a clinician in the loop is imperative for long term management of mental health conditions. • Clinicians need summarized details as well as specific details in preparation for follow-up appointments. • Has general concern for Paul’s health and his functioning in his family. • Does not want Paul to feel like he is being watched.

  16. MoodRhythm Defined The System Definition & Vision

  17. Introduction • Application and environment “eco-system” concept targeted at persons who are in the maintenance phase of Bipolar Disorder. • Purposed to help these persons live normal lives by helping them to relax and return to an equilibrium. • Facilitates management of the condition without having to fill out forms or refer to diagrams or clinicians when things stray from equilibrium. • Self-help tool that has the ability to detect and curb mood swings before they get too severe.

  18. The Mood Index • Number line type scale that uses zero as the balance point or pivot and the extremities as mania and depression deepness. Ranged from -5 to +5. • Calculated by using data that is collected by the mobile device as well as the bracelet for the following metrics as defined by “The Importance of Routine for Preventing Recurrence in Bipolar Disorder”: • What time the patient is waking up. • The time of the first social interaction and with whom. • The time the patient begins his or her normal day. • The time the patient goes to bed.

  19. The Three Step System • MoodRhythm as the first order of help and hopefully the only order. • Significant other alerted and then brought into the loop for assistance as well as verification purposes. • Doctor is alerted after a consistent period of no improvement or resolve.

  20. System Interaction Design

  21. Iteration Up To The Final Design • Timid at first to try designs and looked for ready made solutions. • Originally thought of a point system for instant rewards. • Couldn’t validate its need or use. • Very task oriented at first; design wasn’t ‘special’ nor was it pretty. • Neglected the three step design ergo omitting the significant other and the doctor.

  22. The Final Design & Its Rationale • Went for a clean, simple, relaxing and inspiring interface. • Design is reminiscent of Zen Buddhism in terms of a tranquil design that we think is conveyed via the use of bubbles and growing leaves. • System would suggest tasks such as meditation and calling a friend amongst things that were known positives in the past as well as suggested activities from a significant other. • The system is able to learn from the past episode and take the changes in normality into account so as to not effect false positives or overcompensations.

  23. Whiteboard Spread

  24. Testing MoodRhythm • Steve & Mark gave us the first rounds of external tests. • Mostly positive feedback with redirection in both broad and specific areas. • Mark conducted evaluation with two colleagues: • Dr. David Coyle, University of Bristol • Dr. Gavin Doherty, Trinity College Dublin • Family and friends thereof were asked to evaluate the design and concept also. • Dr. Eldemire also gave a more specific evaluation.

  25. Evaluation Concerns • “The term ‘mood index’ might be confusing, as the factors that feed into the index as not directly related to mood.” • “…I don't see it [MoodRhythm] working as a standalone management solution…useful as part of a broader management program.” • ~Long term testing is needed for validation.~ • “The 3D effect makes it harder to read and compare values from the graph.”

  26. Evaluation Concurrences • “I want to say that I like the look of the mockups and the document is a very good start for a student project…” • “The design has a number of components – the tasks seem to effectively constitute an intervention…” • “The idea of involving significant others is a good one.” • “The home screen looks innocuous enough. There is no mention of bipolar disorder…” • “[MoodRhythm] used with a broader management program it might be useful.”

  27. The Finale The Future Of MoodRhythm& Key Takeaways

  28. The Future Of MoodRhythm • Real time lithium and dopamine tracking. • For the improvement of the quality of the mood index. • User created activities. • Ubiquitous sensing from other devices. • Running shows, TV, bedroom lighting, game consoles, computers. • Bracelet-less technology.

  29. Key Takeaways

  30. Questions & Feedback

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