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Coeliac disease in Croatia

Coeliac disease in Croatia. Zrinjka Mišak Sanja Kolaček Referral Center for Paediatric Gastroenterology and Nutrition Children’s Hospital Zagreb, Croatia. The national picture of coeliac disease in Croatia.

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Coeliac disease in Croatia

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  1. Coeliac disease in Croatia Zrinjka Mišak Sanja Kolaček Referral Center for Paediatric Gastroenterology and Nutrition Children’s Hospital Zagreb, Croatia

  2. The national picture of coeliac disease in Croatia • Incidence of clinically recognized CD pts 1:519(Matek, Kolacek et al, Coll Antropol 1999) • Screening: 1:461(Jungvirth, Kolacek et al, Acta Med Croat 2001) • Population 4 000 000 • Estimation 40 000 CD pts

  3. number of patients in general is decresing

  4. The National task Force in Croatia • Zrinjka Mišak, Sanja Kolaček – paediatric gastroenterologists, representatives from the Referral Centre for Paediatric Gastroenterology and Nutrition • Ruzica Lah – the president of the National coeliac disease society • Dunja Skoko-Poljak - representative from the Ministry of Health • Society for Paediatric Gastroenterology

  5. The diagnostic guidelines in Croatia • Children <2y of age • classic ESPGHAN criteria - 3 biopsies • Children >2y of age • revised ESPGHAN criteria - 1 biopsy

  6. Training and dissemination in Croatia • 4 university centers • Serology testing, biopsies, HLA genotyping – easily accesible for everyone, expenses covered by obligatory health insurance Zagreb Osijek Rijeka Split

  7. Coeliac disease societies in Croatia • 4 patient societies • one National coeliac society (member of AOECS) with 3 subsidiaries • three regional Celiac organizations that act autonomously and are not under the umbrella of the National society

  8. CD in Croatia – after the diagnosis After the diagnosis a patient gets • written instructions on gluten free diet with some recepies • dietetic consult • 10 kg of gluten free flour per month free of charges (covered by the health insurance) • recommendation to join the patients’ society

  9. CD in Croatia - Problems • There is no registry - the exact number of diagnosed pts unknown • Several societies - not collaborating well • Awarenes of the problem is low

  10. Thank you for your attention!

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