CNI Grant 02-227Use of Clubhouse Model to Improve Quality of Life of Persons with TBI in Charlottesville and Surrounding AreaNovember 1, 2001 – October 31, 2004 Leigh Wion, CTRS, CBIS The High Street Clubhouse Charlottesville, VA CNI Community Colloquium November 5, 2004
Presentation Outline • Initial goals and achievement of those initial goals • Identification of outcomes • Lessons learned Good ones Not so good ones • Questions
Initial Project Goals • Expand clubhouse program to include persons with brain injury living in the Charlottesville and surrounding communities who are not currently receiving any services from The John Jane Brain Injury Center • Transition Clubhouse program from pilot program to permanent program by the 3rd month of the year 1 • Provide opportunity for members to develop basic job skills including time management, compliance with clubhouse standards, personal hygiene and neat appearance, appropriate social skills, and productivity • Independent social functioning
Initial Project Goals (cont.) • Evaluate the efficacy of the Clubhouse Program in improving quality of life, client satisfaction, and community integration • Staff training on International Clubhouse Standards at Fountain House • In-house staff training through quarterly consultations with Mill House Program Director or designee.
Goal #1 – Expand program Brochures to area community agencies On-site informational presentations Develop website for the clubhouse – currently a link on the Virginia NeuroCare site.
Goal #2 - Transition from Pilot Program to Permanent Program • Second unit coordinator hired in February 2002 • Open 5 days/week in April 2002 • Third unit coordinator hired in September 2003 • Steady but slow increase in Average Daily Membership
Goal #3 – Opportunity to develop basic job skills, etc. • Outcome is the development of Transitional Employment (TE) • Currently continue with an established relationship with one small business in Charlottesville
Goal #4 – Independent Social Functioning • Member identification of community resources, volunteer jobs, and recreational activities. • Implemented weekly clubhouse newsletter that members identified volunteer opportunities and upcoming community events. • Added a leisure satisfaction measurement tool to gather data. See goal #5
Goal #5 – Evaluate efficacy • Use of Quality of Life Inventory, Satisfaction with Life Scale, and Community Integration Questionnaire. • Surveys administered to members in January and July. • Anticipated a 10% improvement in the first six months and 20% after one year • Added the Leisure Satisfaction Measure in January 2004
Goal #6 – ICCD Colleague Training at Fountain House • Visits to Blue Ridge Clubhouse and The Mill House prior to opening. One day training at The Mill House. • Long discussions with ICCD Training Coordinator about the acceptance of brain injury clubhouses • Referred to Gateway House in South Carolina for Colleague Training • Attendance at International Clubhouse Seminar in Minneapolis in October 2003 • International Alliance of Brain Injury Clubhouses
Goal #7 – In House Staff Training • Initial consultation with Program Manager at The Mill House • Year 1 – Dr. Harvey Jacobs • Year 2 – Cindi Johnson, Side by Side Clubhouse, Harvey Jacobs • Year 3 – Janet Hill, CNI Program Review • International Alliance of Brain Injury Clubhouses – list serve and data comparison
Project Outcomes • Young, developing clubhouse program with established work units • Ongoing relationships and recently new relationships with potential referral sources • Advocacy activities with local legislators • Participant in activities of the International Alliance of Brain Injury Clubhouses • Good data collection - limited numbers to demonstrate statistical significance
Lessons Learned • At the recommendation of the CNI Advisory Board, The John Jane Brain Injury Center Clubhouse became The High Street Clubhouse on October 1, 2002. • Delay in hiring third staff position until year 3 impacted attainment of goal of volunteer work experiences/TE placements • Meeting the significant case management needs of some members
Lessons Learned - continued • Shift of focus at the end of year 3 with a move to a new location and resignation of 3rd staff member • Fundraising • Lack of sufficient transportation for outlying members and lack of access to dedicated transportation for clubhouse business • Member recruitment