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Enhancing research through public involvement: A workshop for researchers. Welcome from. Bec, Derek and Sarah. www.becandderek.co.uk. Bec and Derek a collaboration. Bec Hanley Research adviser. “There is no either / or between being competitive and collaborative.
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Enhancing research through public involvement:A workshop for researchers Welcome from Bec, Derek and Sarah www.becandderek.co.uk
Bec and Dereka collaboration Bec Hanley Research adviser “There is no either / or between being competitive and collaborative. You have to be both and decide which in each situation.” Cathie Black, Former Chairman and President, Hearst Magazines Derek Stewart Patient advocate Bec and Derek
Housekeeping • What to do if the fire alarm goes off • Toilets • Mobile phones – please turn them off • Any questions? Bec and Derek
Aim for today Our aim: • To think with you about how involvement can improve research ideas, design, delivery and dissemination/application. • What do you want from this session? Bec and Derek
Terms we will use PARTICIPATION Access to and taking part in a research study UK Clinical Trials Gateway www.ukctg.nihr.ac.uk INVOLVEMENT Actively assisting with the research process Involve www.invo.org.uk Meeting and talking about research National Centre for Public Engagement www.publicengagement.ac.uk ENGAGEMENT Bec and Derek
Involvement • People who use services are activepartners in research rather than the ‘subjects’ of research. • It is about doing research with or by patients and the public, not doing research to patients and the public. This is NOT the same as participation (e.g. taking part in a clinical trial) Bec and Derek
Some labels… • Many different words are used to describe people who get involved… • Patients • Public • Service users • Carers • Lay people • Consumers • Research partners Bec and Derek
What do you want to improve about your current or planned research?
How can involvement improve research? • Ideas stage • Design stage • Delivery stage • Dissemination stage
Think about… • How might involving patients/the public help? • Who specifically could help you? • How might you go about finding them?
Thank you for attending • Contact… us@becandderek.co.uk @ppisqueek @bechanley1 Who were they? What were their names, again?