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History of GIPA Greater Involvement of People with AIDS

Structural Barriers to PLHIV Participation AIDS 2012 July 26, 2012 Prepared by the U.S. PLHIV Caucus. History of GIPA Greater Involvement of People with AIDS. Denver Principles - Denver, 1983 Paris Declaration - UNAIDS on GIPA GNP+, ICW. Mechanisms.

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History of GIPA Greater Involvement of People with AIDS

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  1. Structural Barriers to PLHIV Participation AIDS 2012 July 26, 2012Prepared by the U.S. PLHIV Caucus

  2. History of GIPAGreater Involvement of People with AIDS • Denver Principles - Denver, 1983 • Paris Declaration - UNAIDS on GIPA • GNP+, ICW

  3. Mechanisms • While there is strong support for the GIPA principles in theory, practice lags far behind due to a broad range of socioeconomic, cultural, political and institutional barriers.

  4. Participation Barriers • The complexity of these barriers can make meaningful PLHIV engagement at international gatherings difficult: • Stigmatization • Poverty • Discrimination • Credentialism • Health-related challenges

  5. Participation Barriers • Additional barriers • Other issues taking priority • Lack of information about opportunities • Lack of capacity to engage in research • Lack of solidarity among people living with HIV themselves, reflecting the prejudices of the wider society

  6. Addressing Barriers • Continue and enhance facilitators • Valuing lived experience • Training and mentoring opportunities • Providing financial compensation • Accommodating PLWHA's needs

  7. Mechanisms • Representatives on decision-making and planning bodies • PLHIV consultations • Feedback mechanisms (i.e. evaluation) • PLHIV employment • PLHIV volunteers

  8. Advocacy • Needed: Sustained advocacy to tackle participation barriers • Travel restrictions • Impact on specific population groups: sex workers, substance users, etc. • Denial of travel visas • Investment in PLHIV participation

  9. Advocacy • How • Build our capacity • Early and intensive outreach • Resource development • Fundraising • Matching challenges • Educational club

  10. Thank You Vanessa Johnson Founding Member & Advisory Board Member U.S. Positive Women’s Network (PWN) vjohnson84bj@gmail.com www.pwn-usa.org

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