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Confidentiality and Collaboration The ethics of information sharing in health and social care

Confidentiality and Collaboration The ethics of information sharing in health and social care. Anecdotes. Mother Grandmother Schools. Data and Information. Massive transformation Case conferences Databases Compatibility, eg PNIP International EU, eg sex offenders.

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Confidentiality and Collaboration The ethics of information sharing in health and social care

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  1. Confidentiality and Collaboration The ethics of information sharing in health and social care

  2. Anecdotes • Mother • Grandmother • Schools

  3. Data and Information • Massive transformation • Case conferences • Databases • Compatibility, eg PNIP • International EU, eg sex offenders

  4. Police, Security etc • Police, security, • Sex offenders register • CRB • Car number plates • Prison, probation • Immigration

  5. Health Social Care etc • Hospitals • GPs • Private • Mental Health • Social Services

  6. Finance etc • Tax • Council tax • Rent and Mortgage • Bank • Business • Electoral Register

  7. Rules for Access • Law • Ethics • Professional practices • ?Common Sense?

  8. Purpose of Access 1 • Individual, ?absolute right? • Relatives and friends, Power of Attorney • Public authorities, eg tax • Benefit fraud, Sickness, Disability? • Private Investigators, Hacking • Marketing material

  9. Purpose of Access 2 • Police/security • Level of crime • Serious and organised • Terrorism • Suspected • Criminal Record • Public protection, eg disease, diabetes • Genetic? • Sarah’s Law?

  10. Who Makes Rules? • Law + Judges • Human Rights Act • RIPA • Ethics • Professional practices • ?Common Sense?

  11. Who Makes Judgement? • Individual • Professional • Group of Professionals / Case Conference • ‘Public Interest’, Executive, Judicial

  12. Qualities of judgement • Facts, easier said than done • Legal, professional ethical frameworks • Wider consequences, eg trust • Conventional opinion, impact on practice • Openness and Transparency • Confidentiality – both ways • ‘Moral courage’

  13. Always a Balance • Few absolutes (Swiss banks!) • Different ethical frameworks not better or worse, just different • Procedures for resolving differences • Not always time

  14. Damned if you doDamned if you don’t • Social Work • Health • Probation • Police

  15. Regular reform of Law • Parliament • High Court judgements • Ethics should be part of debate about law • Professional standards

  16. Conclusion • Important debate • Inter-professional dialogue essential • Informed public discussion • Balance always need to be struck • No absolutes

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