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Western and Central Washington State Chapter

Western and Central Washington State Chapter. www.alzwa.org. Why You Want Our Number: The Alzheimer’s Association. GRECC V-Tel series Department of Veterans Affairs January 25, 2010 Joanne Maher, MSW Joanne.Maher@alz.org 1-800-848-7097 ext. 234.

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Western and Central Washington State Chapter

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  1. Western and Central Washington State Chapter www.alzwa.org

  2. Why You Want Our Number:The Alzheimer’s Association

  3. GRECC V-Tel series Department of Veterans Affairs January 25, 2010 Joanne Maher, MSW Joanne.Maher@alz.org 1-800-848-7097 ext. 234

  4. Western and Central Washington State Chapter Mission: “To eliminate Alzheimer’s Disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.”

  5. Western and Central Washington State Chapter • A Chapter of the National Alzheimer’s Assoc. located in Chicago • Not-for-profit 501(c)(3) since 1978 • Serves individuals living with Alzheimer’s disease and related dementias, their families, health care professionals and the general public • 23-county service area

  6. From Funding to Services Goal of the presentation is to familiarize you with the programs and services available to the general public and to professionals. • Fundraising • Research • Advocacy • Education • Programs & Services

  7. Memory Walk The Alzheimer’s Association Memory Walk is the nation’s largest event to raise awareness and funds for Alzheimer care, support and research. In 2009, our Memory Walks in Washington State raised a total of $522,000.

  8. Memory Walk The 2010 Memory Walks are coming up soon! • Saturday, August 28th South Sound, Tacoma • Saturday, September 11th, Pacific Northwest, Seattle • Saturday, September 18th, Olympic Peninsula, Silverdale • Saturday, September 25th, North Sound, Mount Vernon

  9. Memory Walk For more information about how to get involved with Memory Walk, please call Stephanie Watson at (800) 848-7097 ext. 236.

  10. A Reason to Hope Community Breakfast • 1st annual “A Reason to Hope” Community Breakfast will be held Thursday, March 11, 2010 in the Benaroya Hall Grand Lobby, downtown Seattle from 7:30 to 9:00 am • Please join us to get to know local families living with Alzheimer’s disease and hear from our keynote speaker, Elaine Jones, COO at the Paul Allen Institute for Brain Science. • For more information and to make your reservation for the Breakfast please contact Liz McNeil at (800) 848-7097 ext. 243.

  11. Research Alzheimer’s Association National Chapter is the largest source of private funding for Alzheimer’s research in the world.

  12. Research At the 2009 An Evening to Remember Auction, our Chapter received: $130,000 donation from Sherrill Miller and EB Foote Winery $100,000 from individual donors These donations funded a research study by Brian Kraemer, PhD at the ADRC. Each year, our Chapter funds an important research project by money raised at the auction.

  13. Research Alzheimer’s Disease Research Center (ADRC) 1-800-317-5382 Memory Wellness Centers Seattle 1-888-291-7316 Tacoma 1-866-638-8813 Most of the research areas were not even conceived of 10 to 15 years ago

  14. Advocacy • Together our voices are a powerful tool for change • Alzheimer advocates call for advancements in research, care, and support at the federal, state and local levels • If you are interested in participating in the 2010 Washington State Advocacy Day in Olympia February 16, call Patricia Hunter at (800) 848-7097.

  15. Education Our Education Department presents a rich curriculum about Alzheimer’s disease and other types of dementia for people working in the health and long-term care field, as well as for the public. Our trainings are interactive and based on the latest best practices in dementia care-giving.

  16. Education Classes for Professionals • Keys to Dementia Care • Dementia & Intellectual/Developmental Disabilities • Encountering Dementia: A Guide for First Responders • Annual Alzheimer’s Regional Conference

  17. Education Classes for Community Members • Maintain Your Brain • Partnering With Your Doctor • Memory Loss: Understanding the Basics • The Warning Signs

  18. Education Classes for Family Caregivers • Keys to Dementia Care for Families • At the Ready: Personalized Activity Bags • Communication Challenges • Deciphering Behaviors • Disaster Preparedness • Courageous Conversations

  19. Annual Education Conference Moments in Mind: The 25th Annual Alzheimer’s Regional Conference will be held April 15-16, 2010 at the Washington State Convention Center in Seattle, WA.

  20. African American Caregivers Forum • Provides a culturally relevant setting that informs participants about Alzheimer’s disease. • Gives the most up-to-date information about Alzheimer’s, current treatment options, caregiving issues and current research. • Teaches caregivers how to reduce stress, access respite care and other services. • Provides an opportunity for social engagement with other caregivers which reduces feelings of isolation.

  21. Who Participates in the Forum? • The focus audience is African American family caregivers. • Professional caregivers, individuals with Alzheimer’s and members of the community also participate. • In 2009, attendees came from Pierce, Snohomish, King, Kitsap, Thurston, Mason and Yakima counties. • 98-100% report overall satisfaction with the forum.

  22. 24 - Hour Helpline • The first point of contact for most people who call the Alzheimer’s Association. • Assistance is available 24hrs/day, 7 days/week, including all holidays. • Connects the caller with a knowledgeable and compassionate professional who will tailor information and assistance to the caller’s needs. • In 2009, Helpline responded to 3,257 requests for information or assistance.

  23. Seeking information about Alzheimer’s or related dementia disorders Connection to our Chapter and community resources Requests for information about current research and treatment options Seeking support with care-giving concerns Care planning services Seeking video and printed resources from the Chapter library (we currently have over 2,000 articles addressing a variety of dementia-related issues). Why do people call Helpline?

  24. Please call our Helpline at:206-363-5500or1-800-848-7097

  25. Six out of ten people will wander. • Twenty-four hour nationwide identification, rapid response, support, and enrollment program that includes other vital medical information. • A staff member from the Chapter serves as the contact for the entire state when a person enrolled in the program is “missing.” • The staff member offers support during & following the incident. • Contact our Chapter for a brochure and application

  26. Comfort Zone • Comfort Zone is a Web-based service that works with a variety of location devices to monitor the whereabouts of an individual with Alzheimer’s. • With this service, the entire family has secure, simultaneous access to this critical information. • Comfort Zone includes a 24/7 call center and enrollment in the Medic Alert + Safe Return program as well. • To learn more about Comfort Zone visitwww.alz.org/comfortzone or call 1-877-ALZ-4850.

  27. Support Groups Over 100 groups staffed by Chapter -trained volunteers Offer a safe, non-judgmental setting for people to share experiences and advice

  28. Support Groups The Chapter offers specialized ongoing support groups for specific groups of caregivers, such as: • Men’s Only • Long-Distance Caregiving • Spanish Speaking Caregivers • Lesbian, Gay, Bisexual, Transgender Caregivers • African American Caregivers • Adult Child Caregivers • Young Onset Caregivers • Bereavement/Grief and Loss • Early Stage Memory Loss

  29. Support Groups are offered throughout Western and Central WA • King County: 40 Support groups • Pierce County: 9 Support Groups • Snohomish County: 9 Support Groups • Central Washington Counties: 7 Support Groups • Clallam County: 4 Support Groups • Clark County: 4 Support Groups • Gray’s Harbor and Lewis Counties: 5 Support Groups • Island, San Juan and Skagit Counties: 4 Support Groups • Kitsap County: 6 Support Groups • Mason and Thurston Counties: 6 Support Groups • Southwest Washington: 8 Support Groups

  30. The need for support groups is growing, and we are always in need of volunteer facilitators. Please call Linda Whiteside at 1-800-848-7097 ext. 237 for more information.

  31. Early Stage Memory Loss Program • Seminars are designed to offer support and education to people in the early stages of dementia and their care partners. • 2 types of seminars: 8 week program with 90 minute weekly meetings and a one time, 3 hr. program • Both programs are held in different areas of Western & Central WA throughout the year. • The ESML program covers the basics of dementia, coping strategies, communication issues, social and family relationships, disclosing the diagnosis, planning for the future, legal issues and next steps.

  32. Early Stage Memory Loss Programs • ESML is provided in partnership with a variety of health and human services organizations, professionals and individual volunteers. • The program is being studied by the University of Washington’s School of Nursing • The research is funded by the National Institute on Aging. • The study has found a positive impact for individuals with dementia in depression, communication and improved social function. • To learn more, contact Samantha Woodward at 1-800-848-7097 ext. 229

  33. Care Consultation Care Consultants provide a personalized yet comprehensive assessment service that includes care-planning, goal setting, referrals, and on-going follow-up.

  34. Connections Care Consultants can provide: • Ways to enhance communication skills for the person with memory loss • Strategies for coping • Understanding & working with changes in behavior • Long-term planning • Legal and financial considerations • Understanding long-term care options • Balancing personal life with caregiving or care-receiving roles • Latest information on medical research, diagnosis and interventions

  35. Connections The program is free of charge to clients through funding from: • Dementia Partnership Program through the Administration on Aging • King County Family Caregiver Program, ADS – City of Seattle • Includes El Portal Northwest • Snohomish County Senior Services - FCP • United Way King County • Private donations and fund-raising

  36. Connections • In 2009, 1,511 Care Consultations were provided to approximately 328 individuals and their family caregivers, totaling 1,368 hrs. of service • To refer to Connections, professionals or individuals can call Helpline or the HL Navigator.

  37. El Portal Program • Partnership with SeaMar Community Health Center • Provides specific Care Consultation and outreach/education services for the Hispanic community in King County through the ADS – City of Seattle grant. • Like Connections, includes assessment, care plan development, goal setting, referrals, and follow-up.

  38. Our Neighboring Chapters • Inland Northwest Chapter http://www.alz.org/inlandnorthwest/ • Offices in: • Spokane, WA (509) 473-3390 • Walla Walla, WA (509) 520-3077 • Couer d’Alene, ID (208) 666-2996

  39. Our Neighboring Chapters • Oregon Chapter http://www.alz.org/oregon/ • Offices in: • Portland, OR (503) 416-0201 • Eugene, OR (541) 345-8392

  40. Our Vision:A world without Alzheimer’s www.alzwa.org

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