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EVIDEM Changing practice in dementia care in the community: developing and testing evidence-based interventions, from timely diagnosis to end of life.
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EVIDEMChanging practice in dementia care in the community: developing and testing evidence-based interventions, from timely diagnosis to end of life Steve Iliffe (UCL), James Warner (CNWL Foundation NHS Trust), Claire Goodman (Hertfordshire), Jill Manthorpe (Kings), Jane Wilcock (UCL), Vari Drennan (UCL), Greta Rait (UCL)
Background • Needs are inadequately addressed all along illness trajectory. • Consequences: poor quality of life, inappropriate and costly responses to problems, prolonged in-patient stays, further disablement. • Large gaps in the evidence base : what works for whom?. • There are methodological problems in carrying out research in dementia. • Dementia research in community settings is under-developed
Aims and objectives • Cohort of people with dementia, and their families. (up to 2000 research participants) • Develop and test interventions that improve patient, carer and service outcomes in: • Recognition and first response; • Management of behavioural and psychological symptoms of dementia (BPSD); • Management of incontinence at home; and • End of life care. • Evaluate the impact of the Mental Capacity Act 2005, & develop educational interventions to support the application of the Act.
Research Setting • Central North West London NHS Foundation Trust will host the programme. • The cultural and social diversity of London and surrounding areas (includes Essex and Hertfordshire) • Primary, secondary and social care settings • In association with North Thames DENDRON • User and carer perspectives will contribute to project design, implementation and analysis.
Anticipated outputs, outcomes and impact • Training package for general practice • A computer decision support system for diagnosis • Shared care guidelines for medication use • Exercise promotion for management of BPSD • A toolkit for management of incontinence • A toolkit for palliative care in dementia, suitable for use in both community and care home settings • Practice guidance on the use of the Mental Capacity Act 2005, including its use in adult protection work. • Increased research capacity in dementia in the community