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National Core Indicators Measuring System Performance and Change. WIHD Housing Conference May 20, 2010 Westchester Institute for Human Development Allen A. Schwartz, PhD.
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National Core IndicatorsMeasuring System Performance and Change WIHD Housing Conference May 20, 2010 Westchester Institute for Human Development Allen A. Schwartz, PhD
NCI is a multi-state collaboration of state I/DD agencies interested in measuring how well public systems for people with developmental disabilities perform in several dimensions. SOURCE: HSRI NCI in a Nutshell
Establish a nationally recognized set of performance and outcome indicators for developmental disabilities service systems. • Develop reliable data collection methods and tools. • Report state comparisons and national system level performance benchmarks. Purpose of the NCI Project
NCI Partners The National Core Indicators is managed and coordinated by: NASDDDS & National Association of State Directors of Developmental Disabilities Systems HSRI Human Services Research Institute Information about the NCI can be found at: www.hsri.org
NCI Beginnings • NASDDDS and HSRI collaboration • Launched in 1997 • Seven field test states (plus steering committee) • ~60 candidate performance indicators • Development of data collection instruments • Currently 30 states and regional centers in California
NH ME WA VT MA Bay Area Regional Centers NY SD RI CT WY PA NJ DE OH IN IL WV KY Orange County Regional Center MO NC HI SC OK AR AZ NM GA AL LA 30 Participating States 2008-09 TX
To measure key outcomes of OMRDD’s guiding principles of “Putting People First.” • To make the QA/QM survey process more person centered by collecting data via interviews on indicators that are known to be important to people with developmental disabilities. • To compare OMRDD’s performance nationally, against other states with similar demographics, between DDSOs, among providers, and across services. Why is New York State Participating?
To learn about the overall performance of the OMRDD service delivery system and address areas in need of improvement. • To ensure that public dollars are funding quality services and supports. • To develop moreindividualized supports and services for people with disabilities and their families. • To evaluate the outcomes in the Real Choice System Transformation Grant funded by CMS. Why is New York State Participating?
Interview Individuals • Conduct mail surveys • Collect Systems Data • Complete Data Entry • Participate in NCI Committees • Develop Survey Instruments and Protocols for Data Collection • Provide Technical Assistance • Analyze Data • Publish NCI Reports ResponsibilitiesOMRDD NCI/HSRI
Consumer Outcomes: • Employment • Community Inclusion • Choice and Decision-making • Relationships • Health • System Performance • Service Coordination • Turnover • Incidents and mortality What are the Core Indicators?
Family Indicators • Information and Planning • Choice & Control • Access & Support Delivery • Community Connections • Family Involvement • Satisfaction • Family Outcomes What are the Core Indicators?
SelectComparativeFindings:New England Region compared withOther NCI States
Consumer Survey data includes: • 4 New England states (CT, ME, RI, VT); N=1,880 • 16 other states; N=10,313 • Adult Family Survey data includes: • 3 New England states (CT, VT, ME); N=905 • 8 other states; N=3,416 Source: HSRI 2010 Sample Information
Self-direction Source: HSRI NCI Consumer Survey 2006-2007
Self-direction Source: HSRI NCI Consumer Survey 2006-2007
Choice and Control Source: HSRI NCI Adult Family Survey 2006-2007
Choice and Control Source: HSRI NCI Adult Family Survey 2006-2007
Choice and Control Source: HSRI NCI Adult Family Survey 2006-2007
Choice and Control Source: HSRI NCI Consumer Survey 2006-2007
Responsiveness Source: HSRI NCI Consumer Survey 2006-2007
Health Source: HSRI NCI Consumer Survey 2006-2007
100 80 60 40 20 0 Free time What to Schedule Home Work/day Home staff People to Job staff activities buy program live with Without Individual budget With individual budget Percent of People who report having input in making choices about… Individual Budgets v. Control Over Life Choices Source: HSRI NCI Consumer Survey 2002-2003
New York StateFindings:For Select DomainsandNYS v. National DataSource: NYSOMRDD