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Understanding Lupus: Challenges, Impact, and Support

Lupus is a chronic autoimmune disease that occurs when the immune system erroneously attacks the body’s own tissues. It affects approximately 50,000 Canadians, with a significant prevalence among women aged 15 to 45. Diagnosing lupus can be a lengthy and complex process, often taking up to five years. People with lupus experience unpredictable "flares" which may require hospitalization. While there is currently no cure, treatment options exist but often involve serious side effects. The Lupus Society is dedicated to research, education, and support for those affected by this disease.

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Understanding Lupus: Challenges, Impact, and Support

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  1. Lupus Society bclupus.org

  2. What is Lupus? • It is an acute chronic autoimmune disease • The immune system over-activates and misfires • It can target any tissue or organ • It can lead to organ failure & death

  3. Who Gets Lupus? • Anyone can get it • It affects about 50,000 Canadians • 15% develop lupus as children • Between ages of 15 to 45, 80% are women • No gender bias in children & those over 45

  4. Winning the Lupus Lottery is No Prize! • It is difficult to diagnose • It takes far too long to obtain a diagnosis • It is complex and involves multi-organs

  5. Lupus Lottery Bonus prizes are ugly! • Lupus “flares” are unpredictable and random • Hospitalization is common • Costs to the health system are high • There is no known cause or cure!

  6. Treating Lupus • There is no cure for lupus • Most recent lupus specific drug is 50 years old • Current treatments have serious side effects • chemotherapy drugs • steroids • immune suppressants

  7. Treating Lupus • It takes about 5 years to diagnose lupus • Treatment is very expensive • Numerous specialists are needed • Expensive drugs are used • Hospitalizations occur

  8. Lupus Society PLEASE HELP US

  9. Lupus Society Our Mission • to support advances in research and treatments • to create public awareness • to provide education and support to people affected by lupus

  10. Lupus Society Our Vision • That early diagnosis and optimal treatment will be available to everyone with lupus • That the public at large will be aware of lupus • To ensure community based support networks and services

  11. Programs & Services • Annual Lupus Symposium • world renowned experts • Lupus Research Funding • research scholarship • clinical support • research project funding • Lupus Lighthouse newsletter

  12. Programs & Services • Education • Lupus Lighthouse • Fact sheets • Information packages, books, videos • Lupus Symposium • Support Network • 30 Provincial Contacts • 9 Support Groups

  13. Keep the Wolf from the door Donate Lupus Society bclupus.org

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