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The Newborn Screening Clearinghouse

Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children September 22, 2011. The Newborn Screening Clearinghouse. Key Questions for SACHDNC.

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The Newborn Screening Clearinghouse

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  1. Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children September 22, 2011 The Newborn Screening Clearinghouse

  2. Key Questions for SACHDNC • Recommended Universal Screening Panel (RUSP) and other conditions: How should these be included in educational efforts? What is the proper language to represent all states: required, detected, mandated, etc.? • Terminology: What terminology should be the reference point? RUSP, NLM, ACMG, state-specific? • Key messages: Are we looking for awareness or informed decision making?

  3. www.BabysFirstTest.org This is Baby’s First Test

  4. Sharon F. Terry, MA (Principal Investigator) Natasha Bonhomme (Project Director) Natasha@babysfirsttest.org Questions?

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