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The Hepatitis C Trust Sarah Coleman Jim Conneelly

The Hepatitis C Trust Sarah Coleman Jim Conneelly. The Hepatitis C Trust. Peer-led organisation started in 2001 Aim to stop people dying of hepatitis C We provide Information, support and advocacy for people with HCV Awareness – general & targeted campaigns

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The Hepatitis C Trust Sarah Coleman Jim Conneelly

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  1. The Hepatitis C Trust Sarah Coleman Jim Conneelly

  2. The Hepatitis C Trust • Peer-led organisation started in 2001 • Aim to stop people dying of hepatitis C • We provide • Information, support and advocacy for people with HCV • Awareness – general & targeted campaigns • Models for improving prevention & increasing testing • Testing focus because 216,000+ people have hep C in the UK, mostly undiagnosed • Undiagnosed pool growing every year

  3. Increasing testing and diagnosis: outreach & community approaches

  4. Under-diagnosis

  5. People who inject/use drugs • 49% of current IDUs have hep C1 • 45% who have hep C unaware of status2 • NDTMS 2009/10 - 57.7% of injectors in treatment have recorded a hep C test • Persistent myths - no treatment, immunity, resigned to it • Worker knowledge/skill affects test uptake 1/2– Unlinked Anonymous Monitoring Survey 2011/2

  6. Training • Training – tailored to requirements and group numbers (inc public health staff, nurses, substance misuse workers, pharmacy staff, prison staff and prisoners) • Main topics covered • Hepatitis C & BBVs • Offering a test and pre- and post test discussion • Key myths in target population(s) • Dry blood spot testing • Rapid antibody testing • Contact Lesley Jenkins – lesley.jenkins@hepctrust.org.uk or call 07975 501 775

  7. Peer Education • A lot of myths and fears around hep C in drug using populations – block to testing, diagnosis and treatment • Peer brings correct facts for drug using communities - uses personal experience of IDU/hep C to provide key messages • National project visiting drug services / rehabs / detoxes • Year one – spoken to over 1100 peers/200 staff and visited 135 services • Next steps – expanding to work with local drug teams, recruit and train local peers

  8. Pharmacy-based testing • Testing is not available in enough places, easily enough, or without ‘full’ bloods • DH funded 3 year project based on 2009 pilot • Ongoing, on-demand testing in locations where there’s a need for consistent, easy access testing not provided by existing services • Pharmacies: needle exchange/ OST, well located, long opening hours, existing infrastructure • Mostly Dry Blood Spot – easy to do, full results, no needles • 16 PCTs and 70+ pharmacies involved to date • Full training and paperwork provided

  9. Hepatitis Coventry Objectives • To increase the number of drug users accessing HCV testing • To increase the number of HCV+ drug users in HCV treatment services • To reduce the number of drug users not completing HCV treatment through unplanned exit • To provide support to the families/carers of HCV+ drug users in treatment or who have recently been diagnosed as HCV positive • To increase the number of drug users accessing HBV vaccinations

  10. Hepatitis Coventry • Hepatitis C advice and information • 1-2-1 support for people affected by hepatitis C • Oral swab antibody rapid result HCV test • Peer support for people undergoing testing and/or treatment • Holistic therapy & massage • Hepatitis C training and awareness • Needle exchange

  11. Outreach & Testing Van • Many risk groups have low knowledge of hep C & few opportunities for testing • Targeting harder to reach at risk groups where testing not easily available • Mostly via drug services, hostels and community / religious centres for people from endemic countries • Using rapid antibody tests – result in 20 mins • UK-wide project – in West Midlands from April • Advance planning to ensure target groups aware and pathways in place • Work & link with Peer to Peer and local service users, volunteers, doctors and nurses as much as possible

  12. www.hepctrust.org.uk Sarah Coleman - Project Officer Mobile: 07917 881 755 Email: sarah.coleman@hepctrust.org.uk Jim Conneely - Outreach Officer – Testing Van Mobile: 07557 805 380 Email: jim.conneely@hepctrust.org.uk

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