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The National Library of Medicine’s Native America Outreach Portfolio: Overview and Lessons Learned

The National Library of Medicine’s Native America Outreach Portfolio: Overview and Lessons Learned. by Fred B. Wood, Gale Dutcher, Angela Ruffin, Paul Theerman, and Patricia Tuohy, NLM Conference of Native American Health Information Services Albuquerque, NM – July 20-21, 2006. Outline.

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The National Library of Medicine’s Native America Outreach Portfolio: Overview and Lessons Learned

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  1. The National Library of Medicine’sNative America Outreach Portfolio:Overview and Lessons Learned by Fred B. Wood, Gale Dutcher, Angela Ruffin, Paul Theerman, and Patricia Tuohy, NLM Conference of Native American Health Information Services Albuquerque, NM – July 20-21, 2006 NLM@ABQ7-20-06v5.ppt

  2. Outline • Overview—Fred Wood • Sacred Root—Gale Dutcher • NN/LM Lessons Learned—Angela Ruffin • MHA Systems—Paul Theerman • Native Healing Exhibit—Patricia Tuohy NLM@ABQ7-20-06v5.ppt

  3. Native Outreach PortfolioThumbnail Sketch by Fred Wood, OHIPD/NLM • Tribal Connections NN/LM, OHIPD • I (Pacific Northwest) PN RML • II (Pacific Southwest) PN RML • III (3 Northwest sites) PN RML • IV (Four Corners NM, AZ, UT, CO) 3 RMLs, 4 RLs NLM@ABQ7-20-06v5.ppt

  4. Native Portfolio, Cont’d • Sacred Root Native Internship Project, SIS • Tribal College Outreach and Librarianship Projects, NN/LM & SIS • Tribal Community Outreach Projects, NN/LM • Tribal Powwow Participation, NLM & NN/LM NLM@ABQ7-20-06v5.ppt

  5. Native Portfolio, Cont’d • Intertribal Collaboration, e.g., NCAI Health Information Task Force, SIS • Listening Circle Project, NLM, OHIPD • Health Information Web Sites -- Tribal Connections, PN RML -- Native American Health on MedlinePlus, LO/PSD -- Arctic Health, SIS -- American Indian Health, SIS NLM@ABQ7-20-06v5.ppt

  6. Native Portfolio, Cont’d • Native Hawaiian Community Project, Miloli’i and Waimanelo, OHIPD • Native Hawaiian Healing Materials Project, OHIPD • Tribal Economic Development Project, MHA Nation, OHIPD, HMD, SIS • Native Health & Healing Exhibit, HMD NLM@ABQ7-20-06v5.ppt

  7. Underlying Outreach Strategies • Improving information infrastructure and technical capabilities • Employing communication methods that are culturally sensitive and appropriate—Native consultation is key • Building effective partnerships with Native community groups and national organizations NLM@ABQ7-20-06v5.ppt

  8. Strategies, Cont’d • Training Native health and information professionals, and community leaders and members • Increasing the scope of NLM’s information products and services to cover more Native-related material • Emphasizing capacity building in Native communities where possible NLM@ABQ7-20-06v5.ppt

  9. Strategies, Cont’d • Making site visits to assure direct interactions, full understanding, and effective working relationships • Fine tuning outreach planning and evaluation for Native community-based projects • For more info, see JMLA Vol. 93, No. 4, Supplement on Community-Based Health Information Outreach NLM@ABQ7-20-06v5.ppt

  10. Some Native Inspiration • All my relatives (family, friends, peoples, and intelligences) • Let every day be a good day • Live in harmony with the Medicine Wheel and Sacred Tree • With the wisdom, foresight, and strength of the Eagle • For the good of the Next Seven Generations NLM@ABQ7-20-06v5.ppt

  11. Sacred Root Native American Information Fellowship by Gale Dutcher, Head, Outreach & Special Populations, SIS/NLM NLM@ABQ7-20-06v5.ppt

  12. Purpose of Fellowship Program • Develop capacity of native communities • Improve access to health information • Develop relationships NLM@ABQ7-20-06v5.ppt

  13. How it Works • Two year program • Two participants from each group • Mid-career professionals • Health and/or technology backgrounds • Funding • Stipend • Travel • Training • Laptop computer • Local project NLM@ABQ7-20-06v5.ppt

  14. Activities • Initial two weeks at NLM • Online training classes • Orientation to NLM • Focused meetings with staff • Training/Conferences • Dependent upon specific needs/interests • Connection with RML and NN/LM • Additional activities possible NLM@ABQ7-20-06v5.ppt

  15. Project Development • Culminating activity • Proposal writing • Funding provided by NLM NLM@ABQ7-20-06v5.ppt

  16. Origins of Fellowship Program • Co-funding by the NCMHD – end of 2001 • Meeting with Tex Hall, Chairman, MHA Nation • Creation by NCAI of President’s Task Force on Health Information NLM@ABQ7-20-06v5.ppt

  17. Current Status 2002 – Interns from MHA Nation - Richard Mayer and Deborah Thompson • Internship completed • Project implemented • Training relationship Univ. North Dakota HSL • Project Expansion • Ongoing NLM-MHA activities NLM@ABQ7-20-06v5.ppt

  18. Status, continued • 2003 –Nez Perce Tribe – Tina Bullock and Jim Pond • Year one completed 2004 • Project underway NLM@ABQ7-20-06v5.ppt

  19. Nez Perce Project • Tablet PCs and Hand-held devices for clinicians • Access health information with patients NLM@ABQ7-20-06v5.ppt

  20. 2004 • Native Hawaiian Fellows • Papa Ola Lokahi • LorrieAnn Santos and Momi Fernandez NLM@ABQ7-20-06v5.ppt

  21. Hawaiian Projects • Support for Cancer project • Development of game • Promotional materials • Develop GIS capacity • Training • Implementation of Health Equity Review • Data users group NLM@ABQ7-20-06v5.ppt

  22. Plans • Continue to work with NCAI Task Force • Next group will start in the fall • Evaluation of program • Continue to build upon these relationships NLM@ABQ7-20-06v5.ppt

  23. Reflections on NN/LM Outreach By Angela Ruffin, Head, NNO/NLM • Outreach to Minority, Underserved and Native Communities • Lessons learned through the years • Enhanced lessons learned • 2006 – 2011 Priorities NLM@ABQ7-20-06v5.ppt

  24. Earlier Lessons Learned -Pre Web Access • Time to plan and implement project • Identify information needs of target population • Identify onsite contact person • Tailor training to audience NLM@ABQ7-20-06v5.ppt

  25. Earlier Lessons Learned Electronic AccessOutreach • Getting out • Cultural competence • Training • - Demonstration/Training • Training content • Customize • Hands-on • Basic computer skills • Train the trainer • Location of training (onsite/offsite) • Follow-up training NLM@ABQ7-20-06v5.ppt

  26. Earlier Lessons LearnedElectronic AccessProject Administration • Planning • Delays • Staffing • Flexibility NLM@ABQ7-20-06v5.ppt

  27. Earlier Lessons LearnedElectronic AccessAssessing Information Needs • Not a one-time exercise • Needs vary by group and readiness NLM@ABQ7-20-06v5.ppt

  28. Earlier Lessons LearnedElectronic AccessObjectives and Outcomes • Objectives follow from assessing needs • Identify key players/community leaders at site • Continued presence & communication • Stay poised to alter course • Outcomes • Raise awareness • Increase access • Affect use & effectiveness • Change in information seeking NLM@ABQ7-20-06v5.ppt

  29. Earlier Lessons LearnedElectronic AccessCollaborations • Leadership/Key on-site contacts • Diverse expertise • Commitment • Communication • Sustainability NLM@ABQ7-20-06v5.ppt

  30. Earlier Lessons LearnedElectronic AccessPartnerships • Require common needs, mutual goals, mutual respect, shared resources • Communication NLM@ABQ7-20-06v5.ppt

  31. Enhanced Lessons LearnedCommunity Based Outreach • Understand the community - Language - Culture, beliefs, traditions - What they think & worry about - Information needs & uses - What/who are their communication channels - What/where are their cultural and friendship centers • Meet them on their turf and ‘where they are’ - Telecommunication infrastructure - Information skills NLM@ABQ7-20-06v5.ppt

  32. Enhanced Lessons LearnedCommunity Based Outreach • Participatory planning • Asset-based versus solely needs-based approach • Relationship building • Creativity • More community engagement • Community partners as empowerment NLM@ABQ7-20-06v5.ppt

  33. 2006-2011 RMLs and Centers University of Washington University of Illinois, Chicago • National Training Center and Clearinghouse (NTCC) – New York Academy of Medicine • Outreach Evaluation Resource Center (OERC) – University of Washington • Web Services, Technology Operations Center (Web-STOC) – University of Washington University of Massachusetts University of Utah University of California, Los Angeles New York University Houston Academy of Medicine – Texas Medical Center University of Maryland, Baltimore NLM@ABQ7-20-06v5.ppt

  34. Priorities for 2006-2011 • Outreach • Community partnerships, CBOs • Regional evaluation experts • Dissemination of best practices • Encourage/identify cross regional opportunities • Proposal writing assistance • Health information literacy • Expanded scope of technology conferences NLM@ABQ7-20-06v5.ppt

  35. The Outreach Evaluation Resource Center 2001-2006 Instruction, consultation, and planning support based on Measuring the Difference: Guide to Planning and Evaluating Health Information Outreach, …plus three new booklets to update the Guide! NLM@ABQ7-20-06v5.ppt http://nnlm.gov/evaluation/

  36. NN/LM Funding Mechanisms • Major outreach/consumer health projects • “Express” outreach awards • Outreach Planning awards • Outreach Follow-up awards • Partnership planning awards • Technology improvement/Internet connections awards • Training awards • Technology awareness conferences • Exhibit awards NLM@ABQ7-20-06v5.ppt

  37. MHA Systems and NLM’s History of Medicine Division Collaboration in Library Work: A Learning Process by Paul Theerman Head, Images and Archives History of Medicine Division National Library of Medicine NLM@ABQ7-20-06v5.ppt

  38. MHA Systems and NLM’s History of Medicine Division • MHA Systems— • A tribal business of the Mandan-Hidatsa-Arikira Nation, the “Three Affiliated Tribes” of Fort Berthold Reservation, New Town, North Dakota NLM@ABQ7-20-06v5.ppt

  39. MHA Systems and NLM’s History of Medicine Division • Background • Listening Circle established through NLM’s Office of Health Information Programs Development (OHIPD), Elliott Siegel, Director, and Fred Wood as principals • NLM’s Director, Dr. Donald A. B. Lindberg, met with Mr. Tex Hall, Chairman of MHA Nation, to begin a project to build tribal IT capacity and to provide NLM with digitized data NLM@ABQ7-20-06v5.ppt

  40. MHA Systems and NLM’s History of Medicine Division • Specific Steps • MHA Systems to scan and mark-up books and manuscript materials from the History of Medicine Division • NLM to assist MHA in assessing technical needs—skills, technology, work flow, quality control, and with business management training • NLM to secure appropriate training and provide oversight • Move to production after training period NLM@ABQ7-20-06v5.ppt

  41. MHA Systems and NLM’s History of Medicine Division • What was scanned? • Wyndham Miles’s History of the National Library of Medicine • Minutes of the Library’s Board of Regents meetings • NLM Annual Reports • NLM Technical Bulletins • What was produced? • PDF files and XML mark-up for web display NLM@ABQ7-20-06v5.ppt

  42. MHA Systems and NLM’s History of Medicine Division • Who were involved from NLM? • Fred Wood—Office of Health Information Programs Development, NLM • John Rees, Curator of Manuscripts, Images and Archives Section, History of Medicine Division • Paul Theerman, Head, Images and Archives Section, History of Medicine Division • Susan Schreibman, Assistant Dean and Head of Digital Collections, University of Maryland Libraries—technical training and assistance NLM@ABQ7-20-06v5.ppt

  43. MHA Systems and NLM’s History of Medicine Division • Who were involved from MHA? • Rosie Johnson, and then Richard Mayer—MHA Systems CEO • Chris Rabbithead and then Jonathan Berryhill—project directors • Joan Zavalny—MHA Systems • Jerry Stai—Minot State University School of Business, advisor • Many scanners and coders from MHA Nation NLM@ABQ7-20-06v5.ppt

  44. MHA Systems and NLM’s History of Medicine Division • Timeline • Materials sent fall 2004 • Site visit in December 2004—Theerman, Rabbithead, Zavalny, Johnson, and Rees (Wood photographing) NLM@ABQ7-20-06v5.ppt

  45. MHA Systems and NLM’s History of Medicine Division • Timeline • Training in April 2005—Rees and Schreibman, Theerman and Wood as assistants/observers NLM@ABQ7-20-06v5.ppt

  46. MHA Systems and NLM’s History of Medicine Division • Successful Trainees NLM@ABQ7-20-06v5.ppt

  47. MHA Systems and NLM’s History of Medicine Division • Timeline • Into production in the second half of 2005 • Materials added to NLM’s website, “NLM Archives,” in 2005-2006 http://www.nlm.nih.gov/hmd/manuscripts/nlmarchives/index.html • Total amounts • A 525-page book • 40 sets of Regents’ Minutes • 52 Annual Reports • 271 issues of Technical Bulletins NLM@ABQ7-20-06v5.ppt

  48. MHA Systems and NLM’s History of Medicine Division • New Projects • New project in 2006: scanning printed materials to provide an on-line guide to a very large NLM collection on the Food and Drug Administration (FDA) • 60 volumes of materials to be scanned prior to OCR and data extraction • Project will go into 2007 NLM@ABQ7-20-06v5.ppt

  49. MHA Systems and NLM’s History of Medicine Division • Experience—some hesitations • Staff turnover was high. • Tension between a turn-key operation and one with stronger input from MHA. • Difficulties in working half a continent away. NLM@ABQ7-20-06v5.ppt

  50. MHA Systems and NLM’s History of Medicine Division • Experience—some positives • Technology not a barrier, and was a help. • Great pleasure in the training and in seeing the project take off. • It works! NLM@ABQ7-20-06v5.ppt

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