FAMILY-CENTERED CARE AND THE ADOLESCENT HEADED FAMILY

1. FAMILY-CENTERED CARE AND THE ADOLESCENT HEADED FAMILY Office of Adolescent Pregnancy Programs Care Grantee Conference Lee Savio Beers, MD Amy Lewin, PsyD Tininka Rahman, BSN

3. Brainstorming How do you define Patient- and Family-Centered Care?

4. Patient- and Family-Centered Care “Patient- and family-centered care is an innovative approach to the planning, delivery and evaluation of health care that is grounded in mutually beneficial partnerships among health care patients, families and providers. Patient- and family-centered care applies to patients of all ages and may be practiced in any health care setting.” Institute for Family-Centered Care, www.familycenteredcare.org

5. Definitions… “Family-Centered Care assures the health and well-being of children and their families through a respectful family-professional partnership. It honors the strengths, cultures, traditions and expertise that everyone brings to this relationship. Family-Centered Care is the standard of practice which results in high quality services” Maternal and Child Health Bureau, Division of Services for Children with Special Health Needs, July 2005

6. Definition of “Family” Two or more persons related in ANY way Biologically Legally Emotionally Defined by patients and families

7. Core concepts of FCC Dignity and respect Information sharing Participation Collaboration Not just “Family-focused” care

8. More brainstorming… How can Patient- and Family-Centered Care affect and/or strengthen the adolescent headed family?

9. What is the evidence? Boie et al, 1999 “Do parents want to be present during invasive procedures performed on their children in the emergency department? A survey of 400 parents.” Parents want to be present Want to participate in the decision about their presence

10. More evidence… Laffel et al, 2003 “Impact of ambulatory, family-focused teamwork intervention on glycemic control in youth with Type I diabetes” Improved health outcomes

11. More evidence…. Chernoff et al, 2002 “A randomized control trial of a community-based support program for families of children with chronic illnesses: Pediatric Outcomes” Ireys et al, 2001 “Maternal outcomes of a randomized control trial of a community based support program for families of children with chronic illnesses”

12. Example—Maternal Depression Casey et al., 2004 “Maternal depression, changing public assistance, food security and child health status” Leiferman et al., 2002 “The effect of maternal depressive symptomatology on maternal behaviors associated with child health” Brennan et al., 2003 “Maternal depression, parent-child relationships and resilient outcomes in adolescence”

13. Something to think about…. How and where can the adolescent headed families you serve receive Patient- and Family-Centered Care in a comprehensive Medical Home?

14. What is a “Medical Home” ? Not a building, house or hospital Primary care that is Accessible Continuous Comprehensive Family-Centered Coordinated Compassionate Culturally Effective

15. Even more brainstorming… What are the barriers to finding/providing Patient- and Family-Centered Care? How can you overcome these barriers? How can you encourage others in your community to provide Patient- and Family-Centered Care to adolescent headed families?

16. Put your knowledge to work… Develop an action plan for your program Needs Barriers Strategies

17. Reporting out What are the highlights of your action plan? What will you do when you return home?

18. Additional resources Institute for Family-Centered Care www.familycenteredcare.org American Academy of Pediatrics Medical Home Initiative www.medicalhome.org AAP Policy Statements: “Family Centered Care and the Pediatrician’s Role” and “Care of Adolescent Parents and their Children” www.aap.org

19. QUESTIONS? Lee Savio Beers, MD 202 884 3797 lbeers@cnmc.org Amy Lewin, PsyD 202 884 3106 alewin@cnmc.org Tininka Rahman, BSN 202 884 5794 trahman@cnmc.org