PREVENTING ADMISSION TO HOSPITAL AND RESIDENTIAL CARE FOR PEOPLE WITH DEMENTIA

1. PREVENTING ADMISSION TO HOSPITAL AND RESIDENTIAL CARE FOR PEOPLE WITH DEMENTIA David Shinegold Social Care Consultant Skills for Care Co-ordinator - Berkshire Tel: 0118 988 6987

2. SKILLS FOR CARENew Type of Worker Initiative The drivers for new social care roles include: • User focused service design with staff able to provide more generic individualised services • Improving strategic human resource and operational management of the workforce • A reduction in the actual number of staff required to deliver services to a person using them • A more skilled and independent high quality workforce able to manage services at the point of delivery • A blurring of some long established demarcations between job roles.

3. The drivers particular to Bracknell Forest Borough Council were to make an impact on the following performance indicators: • To increase the number of older people helped to live at home • To decrease the number of admissions of people over 65 years to residential and nursing care • To decrease the number of emergency admissions of older people to hospital

4. The Project Management Team consisted of stakeholders whose job roles contributed to the successful operation of the project

5. In order to provide a cost effective domiciliary care service enabling people with dementia to remain in the community, the following areas were considered and addressed: • The nature of the supportthat would be available to service users • The structurewithin which the service would be provided and managed • The terms and conditions under which support workers would be employed • The training that would be available to support workers

6. As the project developed, it became clear that there was a considerable impact on: • The relative-carers of service users • Staff sickness and retention levels • Implications for inter-agency collaboration • The involvement of project stakeholders • In-patient levels in the local hospital dementia ward

7. The nature of the supportthat would be available to service users • Assessments would involve and represent the views of service users and relative-carers • An Outcome Based* service would be provided based on Care Plans that focussed on outcomes rather than service levels • Focus on improving and maintaining the relationship between the service user and their relative-carer • A service user would receive consistent support from one main Support Worker *Social Policy Research Unit at the University of York

8. Examples of Outcomesfor the service user which the Care Plan may include: • Increased physical abilities • Increased confidence or skills • Improved mental health • More social opportunities • Have finances in order • Essential physical needs met • Quality of life maintained • Cleaner/safer environment • Changes in behaviour • Risks reduced or removed

9. The structurewithin which the service would be provided and managed required Support Workers to have additional responsibilities to those normally undertaken by Domiciliary Care Workers which included: • Encourage service users to regain lost skills • Encourage participation in and transport service users to a variety of activities including shopping, day centres, outings, hospital appointments etc • Offer personal support, advice and encouragement to service users and relative-carers • Help service users maintain contact with family and friends • Provide practical support and intimate personal care as well as household tasks to relieve some of the work carried out by relative-carers

10. Further tasks were required which were to raise the professional status of Support Workers • Undertake specialist tasks under the supervision of professionally qualified team members • Record information on Observation Sheets • Submit written and verbal reports to the Community Psychiatric Nurse • Take part in monitoring, reviewing, decision making and care planning

11. This led to modifying the Person Specification for Support Workers to include: • Able to use initiative and deal with emergencies • Organisational skills • Recording and reporting skills • Able to undertake and benefit from specialised training • Stable • Self reliant • Stress tolerant

12. Raising the professional status of Support Workers was also achieved by: • Employing workers on a salaried rather than an hourly paid basis • Employing workers to work flexible hours at their own discretion • Giving workers the autonomy to respond to situations as they found them • Providing professional supervision both individually and as a team • Providing professional training in dementia (UCL) • Provide a structure enabling workers to communicate with one another, cover for each other’s absences and maintain continuity of care • Provide opportunities to achieve NVQ at level 3 and above (compared with the normal expectation of domiciliary care workers achieving NVQ level 2).

13. Referrals to the Project Team took account of the following criteria: • Diagnosis of dementia • Known to local Mental Health team • At risk of the home situation breaking down • Reluctant or resistant to accepting traditional domiciliary care services

14. Referrals to the Dementia TeamMarch 2005 – March 2006 13 months

15. The range of needs identified included: • Dementia and alcohol abuse • Forgetting to take medication • Withdrawal of carer-relative due to change in work pattern • Unable to maintain personal care/clean environment/ suitable diet/financial control • Relative-carer unable to cope with increasing demands due to dementia • Challenging behaviour due to dementia • Weight loss

16. Number of Hours Support Received per Week from Dementia Team

17. Financial Savings Over 13 monthsHospital Care

18. Financial Savings Over 13 monthsResidential/Nursing Home Care

19. Outcomes Significant to Service Users The areas of the service provided by the dementia team which elicited the highest satisfaction ratings were: • Support Workers took account of my views • Improvements in my emotional and mental health • The help I receive fits in with my life and routine • My relationship with my relative-carer has improved • I feel that I have been treated with respect

20. Outcomes Significant to Relative-Carers • I feel treated with respect • The Support Worker takes account of my views when deciding what help to provide • The Support Worker understands my individual needs and circumstances very well • The Support Worker was very helpful in providing information about other services available • 57% of relative-carers reported improvements in their general health • 64% of relative-carers reported improvements in their emotional and mental health • 85% of relative-carers felt that the help they received fitted in with their life and routine

21. A Selection of Comments from the Support Workers • More time – not rushing with the service user • Feel you have achieved things • Building relationship with service user and relative-carer • Intensive work • I’m knackered! • Good team rapport and trust • Communicate with each other, management and relatives • Knowledge of service user gives you more satisfaction • Empowering – encouraging service user to regain skills in everyday activities • Make phone calls in the evening to relatives • Good understanding of team-mates’ work

22. MAJOR OUTCOMES AFTER 3 YEARS • Hospital waiting list reduced to zero • Dementia ward is now only 50% full • All of the original support workers remain in post • Only 2 weeks of genuine sick leave taken • The Dementia Team is now a mainstream service and is to be tripled in size • This model of service is to be extended to other areas – e.g. people with long term conditions • The Dementia Team won the Skills for Care Accolades in 2007