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Finding Patient Education Information Resources

Finding Patient Education Information Resources. Konstantina (Dina) Matsoukas, MLIS Head of Reference & Education Coordinator CUMC - Health Sciences Library hs-library@columbia.edu May 11 th , 2011. Acknowledgements.

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Finding Patient Education Information Resources

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  1. Finding Patient Education Information Resources Konstantina (Dina) Matsoukas, MLIS Head of Reference & Education CoordinatorCUMC - Health Sciences Libraryhs-library@columbia.edu May 11th, 2011

  2. Acknowledgements • This project has been funded in whole or in part with Federal funds from the National Library of Medicine, National Institutes of Health, Department of Health and Human Services, under Contract No. NO1-LM-6-3501 with New York University. • This series of training classes was developed by Konstantina (Dina) Matsoukas, Head of Reference and Education Coordinator of the Augustus C. Long Health Sciences Library at Columbia University.

  3. IFH Training Class Series 2011 Orientation to Health Sciences Information Resources (Feb 23@12pm) Comprehensive Searching of the Medical Literature (Mar 3@12pm) Smart Googling for Healthcare Professionals (Mar 10@12pm) Community Health and Demographic Data Sources (Mar 21@12pm) Keeping Up with the Medical Literature (Mar 29@12pm) Overview of Public Health Information Resources (Apr 6@12pm) Finding Evidence Based Information Resources (Apr 13@12pm) Expert PubMed/Medline Searching Skills (Apr 29 @12pm) Finding Patient Education Information Resources (May 11 @12pm) Searching for Data in Statistical Information Resources (May 17 @12pm)

  4. Topics covered in this session: • To define what constitutes good patient education resources by reviewing tools for evaluating online health information • To highlight reliable sources of consumer health information • To understand patients’ use of the Internet for locating health information • To look at how “Web 2.0” has led to the proliferation of “user-generated” health information

  5. Help people make better healthcare decisions • Patient Education Resources should be… Unbiased Non-judgmental Transparent Full disclosure of sponsorship Intended audience = general public Easy to understand Low literacy/low numeracy level Accurate Reliable Factual Authoritative Trustworthy Current Up-to-date Reviewed/editorial board Research-based/not opinion

  6. Evaluating the Quality of Health Information • A User's Guide to Finding and Evaluating Health Information on the Web http://www.mlanet.org/resources/userguide.html • MedlinePlus: Evaluating Health Information http://www.nlm.nih.gov/medlineplus/evaluatinghealthinformation.html • MedlinePlus Guide to Healthy Web Surfing http://www.nlm.nih.gov/medlineplus/healthywebsurfing.html

  7. Content evaluation guidelines • Sponsorship • Currency • Factual information • Audience • Source: http://www.mlanet.org/resources/userguide.html

  8. Health On the Net - http://www.heathonnet.org

  9. Mayo Clinic - http://www.mayoclinic.com/health-information/

  10. Mayo Clinic - http://www.mayoclinic.com/health-information/

  11. Examples of high quality patient ed resources • MedlinePlus • NOAH • Healthfinder.gov • TRIPdatabase • NLM Dug Information Portal • Nutrition.gov • Patient Decision Aids search engine (OHRI)

  12. MedlinePlus - http://www.nlm.nih.gov/medlineplus/

  13. http://www.nlm.nih.gov/medlineplus/aboutmedlineplus.html

  14. NOAH - http://www.noah-health.org/

  15. Health Finder - http://www.healthfinder.gov/

  16. TRIP - http://www.tripdatabase.com/

  17. Drug Information Portal -http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp

  18. Drug Information Portal -http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp

  19. TOXNET - http://toxnet.nlm.nih.gov/

  20. LactMed –http://toxnet.nlm.nih.gov/cgi-bin/sis/htmlgen?LACT

  21. Nutrition.gov - http://www.nutrition.gov

  22. Patient Decision Aid Finder - http://decisionaid.ohri.ca/

  23. A-Z inventory of Decision Aids

  24. Browse by health topic

  25. Lots of wonderful patient ed resources… But there’s one big problem…

  26. http://www.wtae.com/video/27779398/detail.html • Where are people going for health information?

  27. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2705249/pdf/471.S1067502709000802.main.pdfhttp://www.ncbi.nlm.nih.gov/pmc/articles/PMC2705249/pdf/471.S1067502709000802.main.pdf

  28. http://www.jmir.org/2011/1/e14/

  29. http://www.washingtonpost.com/wp-dyn/content/article/2009/07/27/AR2009072701912.htmlhttp://www.washingtonpost.com/wp-dyn/content/article/2009/07/27/AR2009072701912.html

  30. Who is surfing the Internet and what are they looking at – health information-wise?

  31. http://www.pewinternet.org

  32. Who is gathering health info online? • 3/4 (74%) of American adults (>18 yrs), have access to the Internet • 8 in 10 Internet users (83%), or about 2/3 of U.S. adults (61%), look online for health info Source: Pew Internet & American Life Project http://www.pewinternet.org

  33. Source: http://www.pewinternet.org/Reports/2009/8-The-Social-Life-of-Health-Information/02-A-Shifting-Landscape/2-61-of-adults-in-the-US-gather-health-information-online.aspx

  34. Source: http://www.pewinternet.org/Reports/2009/8-The-Social-Life-of-Health-Information/02-A-Shifting-Landscape/2-61-of-adults-in-the-US-gather-health-information-online.aspx

  35. Chronic Disease and the Internet • http://www.pewinternet.org/Reports/2010/Chronic-Disease.aspx • Report data set December 2008 Source: Fox, Susannah and Purcell, Kristen. Chronic Disease and the Internet. PEW INTERNET & AMERICAN LIFE PROJECT, Mar 24, 2010, http://www.pewinternet.org/Reports/2010/Chronic-Disease.aspx

  36. Patients with chronic disease • Only 62% of adults living with one or more chronic diseases go online. • Once online, living with chronic disease is associated with a greater likelihood to access user-generated health content such as blog posts, hospital reviews, doctor reviews, and podcasts. • More than half (57%) of e-patients living with chronic disease consume user-generated health information. (Page 25) Source: Fox, Susannah and Purcell, Kristen. Chronic Disease and the Internet. PEW INTERNET & AMERICAN LIFE PROJECT, Mar 24, 2010, http://www.pewinternet.org/Reports/2010/Chronic-Disease.aspx

  37. Of e-patients with chronic disease… • “37% have read someone else's commentary or experience about health or medical issues on an online news group, website, or blog. • 25% have consulted rankings or reviews online of hospitals or other medical facilities. • 25% have consulted rankings or reviews online of doctors or other providers. • 22% have signed up to receive updates about health or medical issues. • 13% have listened to a podcast about health or medical issues.” Source: Fox, Susannah and Purcell, Kristen. Chronic Disease and the Internet. PEW INTERNET & AMERICAN LIFE PROJECT, Mar 24, 2010, http://www.pewinternet.org/Reports/2010/Chronic-Disease.aspx

  38. Patients 2.0 with chronic disease • One in five (20%) e-patients living with chronic disease create online health content. • Once online, having a chronic disease increases the probability that someone will take advantage of social media to share what they know and learn from their peers. (Page 26) Source: Fox, Susannah and Purcell, Kristen. Chronic Disease and the Internet. PEW INTERNET & AMERICAN LIFE PROJECT, Mar 24, 2010, http://www.pewinternet.org/Reports/2010/Chronic-Disease.aspx

  39. Of e-patients with chronic disease… • “7% have tagged or categorized online content about health or medical issues. • 7% have posted comments, queries, or information about health or medical matters in an online discussion, listserv, or other online group forum. • 6% have posted a review online of a hospital. • 5% have posted a review online of a doctor. • 4% have shared photos, videos or audio files online about health or medical issues. • 6% have posted comments about health on a blog.” (Page 26) Source: Fox, Susannah and Purcell, Kristen. Chronic Disease and the Internet. PEW INTERNET & AMERICAN LIFE PROJECT, Mar 24, 2010, http://www.pewinternet.org/Reports/2010/Chronic-Disease.aspx

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