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Parkinson 101

McGill University Health Centre. Parkinson 101. Lucie Lachance M.Sc. Clinical Nurse Specialist McGill Movement Disorders Program Jan 20,2010. Introduction PD. Pope Jean-Paul II Michael J.Fox. Motors symptoms « TRAP ». Tremors Rigidity Akinesia / Bradykinesia Postural instability.

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Parkinson 101

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  1. McGill University Health Centre Parkinson 101 Lucie Lachance M.Sc. Clinical Nurse Specialist McGill Movement Disorders Program Jan 20,2010

  2. IntroductionPD Pope Jean-Paul II Michael J.Fox

  3. Motors symptoms « TRAP » Tremors Rigidity Akinesia / Bradykinesia Postural instability

  4. Non-Motor Features of PD Those symptoms that we never thought meant PD The ones that most affect/alter the quality of life of those living with PD.

  5. Non-motor symptoms • Fatigue • Sleep disorders • Pain and Sensory dysfunctions • Autonomic nervous system dysfunctions • Neuropsychiatric manifestations • Impulse control disorders • Cognitive changes or impairments • Under-recognized and under-treated

  6. Fatigue

  7. Sleep and Rest

  8. Pain

  9. Autonomic dysfunctionwhat is that? • Olfactory loss • Visual alterations • Urinary dysfunction, urgency, retention, incontinence • Constipation • Sexual dysfunction • Orthostatic hypotension • Body temperature - Intolerance to hot, cold environments - Diffuse sweating during OFF periods • Dry and scaly or oily skin

  10. Cognitive changes or impairement

  11. Anxiety/ Depression

  12. What do we do?Give just a little room to Mr. Parkinson in your life

  13. Treatments Medications Surgery Other ways Nursing Diet Speech therapy Exercices/physio Occupational therapy

  14. Wearing off, dyskinesia, ON- OFF phenomenon

  15. Surgery

  16. Exercises

  17. Diet: constipation

  18. Give yourself time....

  19. Helpful Resources

  20. Caregiver issues • Your not the victim :but your life is invaded • Countless questions, constant adjusting • What is my role as a caregiver? • Demanding job: • Each action can be done with • compromise, encouragement strength OR • obligation, stress, frustration

  21. Caregiver issues: role What to do: 1. Learn as much as possible on PD 2. Recognized symptoms understand the medication 3.Get help: family, group support, day center, CLSC, homecare, neighbour, etc 4. Take care of YOURSELF http://www.phac-aspc.gc.ca/pau-uap/guide/aines/et_si.html

  22. Conclusion Adapting to change: day by day Keep a sense of control over your life Limit the space taken by PD & make room for important things in your life Redefine yourself as a individual couple grandparent Friend

  23. Recommended reading: • http://www.phac-aspc.gc.ca/pau-uap/guide/aines/et_si.html • http://www.parkinson.ca • Support and education • 1800-565-3000

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