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Do you want to be involved?

Do you want to be involved?. Carol Nevison Engagement and Volunteering Manager May 2017. What I will cover …. What is ‘patient involvement’? Principles for involvement Different ways you can get involved Examples from around the North. Using your experience. Why is this important?.

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Do you want to be involved?

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  1. Do you want to be involved? Carol Nevison Engagement and Volunteering Manager May 2017

  2. What I will cover … • What is ‘patient involvement’? • Principles for involvement • Different ways you can get involved • Examples from around the North

  3. Using your experience

  4. Why is this important? • More services that meet the needs of patients • Patients and carers as equal partners in the design and delivery of their care • One size fits no-one • This puts the patient at the heart of the redesign of cancer services.

  5. Principles for patient involvement OPPORTUNITIES INCLUSIVE TIMELINESS

  6. Principles for patient involvement RECOGNITION COMMUNICATION POSITIVE OUTCOME

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  8. Ways to be involved • Informing: receive leaflets, newsletters, posters, be on email lists • Consulting: complete surveys and questionnaires either written or face to face interviews • Involving: work directly with health care professionals on projects and groups to provide views on improving services • Collaborating: joint decision making, sitting on advisory boards

  9. Full screen image slideSecond line if required

  10. Involvement in the North – ExamplesCancer Partnership Group – Mid Yorkshire Hospitals • The group consists of people living with cancer and their carers with a focus on supporting the work of the clinicians, nurses and managers in improving cancer services. • Group members are involved in areas such as patient experience, patient care, patient information, peer review and facilities. Achievements include: • Contributed to the production of a cancer directory of local and national information at the request of patients • Worked collaboratively with clinical nurse specialists to establish patient support groups • Award winning implementation of patient discussion records

  11. Some others include … • Patients and carers sharing their stories, taking part in interviews to help shape and improve services • Patients and carers helping to map the cancer pathway – using an illustrator to bring their views and experiences to life • Taking part in a patient panel to recruit new members of staff as well as helping to draw up the competencies required for the role • Getting involved in developing information and resources

  12. So now it is over to you … • On your tables – please can you discuss in groups: • Can you give examples of when you felt listened to? • Have you been involved/engaged in any activities similar to those described this afternoon? If so when/how and how effective was this? • If you haven’t been involved previously, would you like to get involved with the Alliance in the future? • If so – How? When? What is the best way for you? • What do the Alliance need to do to engage with you? • What action would you like to see? • How would you like to receive feedback from this event?

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