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F R O M I N S I G H T T O I M P A C T

F R O M I N S I G H T T O I M P A C T. O T T A W A T O R O N T O C A L G A R Y V I C T O R I A E D M O N T O N. Presentation to aHUS Canada. April 6, 2013. Challenge for Rare Disease.

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F R O M I N S I G H T T O I M P A C T

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  1. F R O M I N S I G H T T O I M P A C T O T T A W A T O R O N T O C A L G A R Y V I C T O R I A E D M O N T O N

  2. Presentation to aHUS Canada April 6, 2013

  3. Challenge for Rare Disease Do Canadians want to provide the best possible access to therapies for rare disease?

  4. Our Current Status In Canada: • Historically a province-by province approach • Result? • Patchwork of services • Individualized approval process in order to gain access • Inconsistency across provinces • Trying to take a pan-Canadian approach Every OECD country has a rare disease strategy both for approving and paying for therapies except for Canada.

  5. Perspective on Spending in Canada 2.8 million Canadians are living with rare disorders. The cost is not heavy on healthcare spending but rather on the individual = Ongoing tensions

  6. Perspective on Spending in Ontario $44.77 billion total spending on health care in Ontario, 2010-11 $3.45 billion on prescription drugs

  7. Understanding the Life of a Legislator 7:00am - 9:00am Meetings w stakeholders, events and/or briefings with Ministry, bureaucracy and staff, what’s the headline of the day 9:00am - 10:30am House duty and committee dealing with legislation 10:30am - 12:00pm Question Period followed by media availability 12:00pm - 3:00pm Cabinet meetings, caucus meetings, stakeholder meetings, meetings with Ministry, staff and stakeholders 3:00pm - 6:00pm House is sitting – Ministers are supposed to be in the house for House business (introduction of bills; debates; etc) but may ask for leave to attend events/ meetings 6:00pm - 10:00pm Events, receptions with stakeholders No single elected official can stay on top of all the issues that come before the Legislature all the time

  8. Getting Started • Who are you? • What are you asking? • Why are you asking? • Where should you go first? • When do you ask?  

  9. TIPS: Engaging with Elected Officials • Build relationships • Bring solutions • Educate • Rally your forces • All politics are local • Approach legislators strategically • Make sure message is simple and concise • Tailor your message and keep it positive • Know your opposition • Form alliances • Timing is key • Choose your battles carefully REMEMBER

  10. TIPS for a Successful Meeting DO • Be punctual • Dress appropriately • Prepare: Know what you are going to say. Have your materials prepared as a “leave behind”. Research the politician’s background, his/her interests and his/her connection to your issue. • Rehearse: If you are going in as a group, meet before hand to discuss who is going to say what and review potential questions and answers. • Be brief • Work with staff: Brief the politician’s assistant before the meeting • Leave behind material: 1 page briefing note, fact sheet, etc. Make sure that the handout has a specific “ask” • Always follow up a meeting with a personal “thank you” note

  11. TIPS for a Successful Meeting DON’T • Threaten • Argue • Offer votes in exchange for support • Waste time with small talk • Discuss political fundraising • Raise questions that you are not prepared to answer • Never stretch the truth or you risk losing credibility - stick to the facts

  12. But there is still a long road ahead to make this possible…

  13. Contact Edmonton 10060 Jasper Avenue, Suite 2020 Edmonton, AB T5J 3R8 Telephone: 1 (780)-665-4946 Ottawa 50 O’Connor Street, Suite 901 Ottawa, Ontario K1P 6L2 Telephone: 1 (613) 782-2336 Toronto 310 Front Street West, Suite 620 Toronto, Ontario M5V 3B5 Telephone: 1 (416) 979-3930 Calgary 633-6th Avenue South West, Suite 1000 Calgary, Alberta T2P 2Y5 Telephone: 1 (403) 264-3800 Victoria 1070 Douglas Street, Suite 360 Victoria, BC V8W 2C4 Telephone: 1 (250) 294-7194 Affiliates Montreal & Quebec City www.tactconseil.ca Telephone: 1 (514) 667-0196 www.globalpublicaffairs.ca

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