1 / 5

Burnout and Compassion fatigue amongst Carers – the response of the MND Association.

Burnout and Compassion fatigue amongst Carers – the response of the MND Association. Purpose: To raise the profile and promote recognition of carers of people with MND. Background:

cheryl
Télécharger la présentation

Burnout and Compassion fatigue amongst Carers – the response of the MND Association.

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. Burnout and Compassion fatigue amongst Carers – the response of the MND Association. Purpose: To raise the profile and promote recognition of carers of people with MND. Background: Currently 6 million carers in the UK, rising to 9 million over the next 10 years. 1.25 million provide care for somebody for more than 50 hours per week.

  2. Background – MND Association survey of Carers 375 Carer surveys sent out 192 returned. Key findings. ¾ of carers are Female 70% are concerned for the future Only 19% get planned breaks from their caring role 60% are over the age of 60 40% faced a loss of earnings 15% attend an MND Support group.

  3. Key Concerns. Carer burnout and fatigue Lack of access to respite care Loving partner to “Nurse” transition Lack of Carer Assessment Lack of inclusion in some decision making Lack of general support Isolation Guilt – needing, wanting or taking time for themselves.

  4. MND Association response and action Development of a Carers guide to MND – particularly with disease specific information, and signposting to relevant services. Raise awareness of the right to a Carers assessment through statutory services Development of a MND Association strategy for Carers – carers needs to be filtered in everything that we do and develop More formal research into the needs of Carers of those with MND – Edge Hill University project On-going support after bereavement – Association Visitors and other forms of support

  5. Carers Support groups – differentiating between current carers and past carers. • Care Services Support – Respite care grant • Education – HSCP’s • Young Carers – new guide to be developed, plus on line interactive web facility and telephone app in 2014. • A response to “Personalisation” – carers holding their own budgets.

More Related