CPCRN Presentation Template

1. CPCRN Presentation Template Perspectives in Cancer Survivorship: CPCRN Activities and Future Directions Marcia Ory, PhD, MPH CDC Site Visit September 24, 2013

2. CPCRN Survivorship Workgroup Co-chairs: Marcia Ory and Betsy Risendal Mission To advance dissemination and implementation science To improve the translation of cancer survivorship research into practice To capitalize upon CPCRN expertise.

3. Cross-Center Activities in Cancer Survivorship Highlighted Activities 4-State Survey of Health Promotion Programs for Cancer Survivors 2-State Adaptation and Testing of an Evidence-based Self-Management Support Program

4. Health Promotion Survey: What did we want to know? What is the state of implementation of health promotion programs for cancer survivors in the U.S.? Weight Management Psychosocial Support Physical Activity Nutrition

5. Health Promotion Survey: How did we go about addressing the question? Methods Worked with 4 participating CPCRN states Employed a cross-sectional internet-based survey Used multiple routes to identify respondents Complied information on 160 programs

6. Health Promotion Survey: What did we learn? Neglected Populations Few services for childhood cancer survivors relative to adults or seniors • Highlights service gap for a population at risk for late/long-term side effects

7. Health Promotion Survey: What did we learn? Neglected Health Promotion Areas Few programs available on weight management relative to other types of programs • Another research to practice gap

8. Health Promotion Survey: What did we learn?

9. Health Promotion Survey: What did we learn? Types of Programs Few programs offered all four services Many programs offered more than one services The most prevalent services were physical activity and psychosocial support The least prevalent was weight management

10. Health Promotion Survey: What did we learn about community evaluation? • Evaluation Efforts • More evaluation around documenting reach and representation • Less research examining pre-post changes • Highlights need for stronger community-academic partnerships

11. Health Promotion Survey: What are next steps? Research Analyze key informant interviews to learn more about implementation, evaluation, and sustainability Re-administer survey to assess changes over time. Explore ways to make survey available to other interested researchers

12. Health Promotion Survey: What are next steps? Practice Share our results with Comprehensive Cancer Programs and state cancer coalitions (see Texas map) Recommend e-health initiatives to improve reach to young, high-risk populations Expand existing programs to address multiple lifestyle needs

13. Self-management Support for Cancer Survivors: What did we want to know? Can an evidence-based program for self-management support be adapted for cancer survivors? Thriving Surviving a six week, small group program Cancer: &

14. Self-management Support for Cancer Survivors: How did we go about addressing the question? Methods Partnership between Colorado and Texas and original program developers Wait-list randomized controlled trial design Focus on both process and outcome evaluation Stanford University University of Virginia = CPCRN site = Program Developer

15. Self-management Support for Cancer Survivors: What did we learn about program format and content? • Participant Feedback • Nearly 200 participants provided feedback • Most felt cancer content was appropriate • More attention to complementary and alternative medicine Insert a cover sheet For CTS curriculum

16. Self-management Support for Cancer Survivors: What did we learn about feasibility? Feasibility Cancer survivors and their caregivers will enroll in self-management programs Existing clinical or community infrastructure can be used to deliver an adapted version • Suggests CTS programs can be disseminated with minimal additional training and resources

17. Self-management Support for Cancer Survivors: What did we learn about acceptability? Acceptability High demand for the program High satisfaction among participants and trainers High completion rates

18. Self-management Support for Cancer Survivors: What did we learn about impacts IMPROVEMENTS Coping and Adjustment Self-efficacy Reduced symptomology Better communication

19. Self-management Support for Cancer Survivors: What are the next steps? Work with the original program developers to identify and evaluate dissemination tools Study dissemination through various channels Community Cancer Centers Health Maintenance Organizations Primary Care Networks Delivery Channels

20. Exploring New Opportunities • Foster cross fertilization between 2 CDC networks: HAN and CPCRN • Build synergy around patient reported outcomes with harmonization of data • Examine best practices in care transitions • Provide TA in implementation of survivorship care plans • Study the dissemination of survivorship care plans • Test dissemination of mhealth tools across CPCRN sites: AYA App

21. Exploring New Opportunities • Foster cross fertilization between 2 CDC networks: HAN and CPCRN • Build synergy around patient reported outcomes with harmonization of data • Examine best practices in care transitions • Provide TA in implementation of survivorship care plans • Study the dissemination of survivorship care plans • Test dissemination of mhealth tools across CPCRN sites: AYA App

22. Survivorship Workgroup Contacts Co-Chair: Marcia Ory, PhD, MPH Texas A&M Health Science Center School of Rural Public Health mory@srph.tamhsc.edu Co-Chair: Betsy C. Risendal, PhD University of Colorado Cancer Center Colorado School of Public Health betsy.risendal@ucdenver.edu Special appreciation to Project Directors Andrea Dwyer and Richard Wood