1 / 21

Disability Statistics from Surveys and Administrative Records

Disability Statistics from Surveys and Administrative Records. Andrew J. Houtenville, Ph.D. University of New Hampshire. Introduction. Purpose of Presentation : provide an overview of data sources containing information on the population with disabilities.

clio
Télécharger la présentation

Disability Statistics from Surveys and Administrative Records

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. Disability Statistics from Surveys and Administrative Records Andrew J. Houtenville, Ph.D. University of New Hampshire

  2. Introduction • Purpose of Presentation: provide an overview of data sources containing information on the population with disabilities. • Sponsor: Rehabilitation Research and Training Center on Disability Statistics and Demographics (StatsRRTC) at Hunter College. • Funded: by the National Institute on Disability and Rehabilitation Research (NIDRR). 2

  3. Outline of Discussion • Motivation for looking at the population with disabilities • Defining disability conceptually and operationally • Survey data sources • Administrative data sources • Key issues • Some suggested literature 3

  4. Motivation • A large population: 50+ million according to the 2004 SIPP. • An at-risk population: according to the 2009 ACS • Poverty rate of people with disabilities ages 18-64 was 26.4%, compared to 11.7% for people without disabilities. • Many programs are influenced by the population, which themselves are at-risk (SSDI, SSI, Medicare, Medicaid). • Falls through the cracks of federal, state, and local programs. • No single agency. 4

  5. Conceptual Definition: WHO/ICF Framework Disability Health Condition Impairment Participation Restriction Functional Limitation 5

  6. Conceptual Definition: Nagi Framework Pathology Impairment Functional Limitation Disability Primarily, government programs address “work disability”. 6

  7. Operational Definitions in Data Collection (1) • Largely depends on the purpose of the instrument and the time/space/dollars available. • Typically avoids medical diagnoses and specific disability types (e.g., spinal cord injury). • SIPP Topical Model --- 60 or so questions • Activities of Daily Living (ADLs) --- self-care. • Instrumental ADLs (IADLs) --- self-management. • Single work limitation question, identifying those involved in many disability programs. • New ACS Six Question Sequence (6QS). Aging 7

  8. Operational Definitions in Data Collection (2) • Problem: Disconnect • With limited space on the instrument, there is a push to use functional limitations (difficulty reading newsprint even with glasses, walking a ¼ mile) or activity (difficulty going outside the home to do errands). • Many policymakers, advocates, and other stakeholders have specific conditions in mind (paralysis, Autism Spectrum Disorder 8

  9. Operational Definitions in Data Collection (3) • Key Issue when identifying specific conditions: To screen or not to screen? • Use broad activity limitation questions to screen then a lists of specific questions or conditions. • Fasts and less expensive than asking conditions specific questions to everyone. • Problem: Not everyone with a specific condition may be picked up by the screener questions! • 31% of working age individuals reporting “blind in both eyes” do not report a conditions that limits the kind or amount of work (Houtenville, 2003, JVIB). 9

  10. Survey Data Sources (1) • American Community Survey (ACS) • 2008 revision of six question sequence (6QS). • 2009 addition of veterans disability rating. • Sample living in institutions, although not available in ACS PUMS. • Massive samples allow for consistent state-level estimates by specific disabilities, including Puerto Rico. • 2008 revisions means that five-year pooled samples summary tables won’t be available before 2013. 10

  11. Survey Data Sources (2) • Survey of Income and Program Participation (SIPP) • CORE has basic work limitation question and questions about sources of disability-related income. • Topical Model on Functional Limitation and Disability has 60+ questions on disability, addressing • Need for assistance, use of assistive device, ADLs/IADLs, mental functioning, 30 specific conditions (through comprehensive screening) • Child and adult versions. • Source of the 50+ million estimate and previous 54 million estimate. • Problem: No plan to continue TM after 2010 panel. 11

  12. Survey Data Sources (3) • Current Population Survey (CPS) • Incoming rotations of the CPS Basic Monthly Survey has the ACS 6QS starting in June 2008. • Annual Social and Economic Supplement (ASEC) has a work limitation question and questions about sources of disability-related income (dating back to 1981). • Planning a disability supplement (CPS-DS) – still in the planning phase, compiling potential questions. 12

  13. Survey Data Sources (4) • Behavioral Risk Factor Surveillance Survey (BRFSS) • Major shortcoming = only two questions used to identify the population with disabilities. • Benefit = state-level risky health behavior. • National Health Interview Survey (NHIS) • 30+ questions related to function and disability, including, mental health related questions (Kessler Index). • 1983-96 NHIS has a check list of unscreened “impairments,” but limited sample size. 13

  14. Administrative Records (1) • Administrative Data • Large sample sizes – possible to address low incidence conditions. • Limited standard operating procedures for data collection. • Poor documentation (uncertainty of variable coding). • Uncertain file structure. 14

  15. Administrative Records (2) • Rehabilitation Services Administration (RSA) • Data on state vocational rehabilitation clients with closed cases. • Publicly available, but a relatively small program. • Social Security Administration (SSA) • Data on SSDI/SSI applicants and beneficiaries. • Possible to get earnings records. • Difficulty to access. • Equal Employment Opportunity Comm. (EEOC) • Charge Data = data on all allegations. • Missing data files and inconsistent coding. 15

  16. Matched and Restricted Data • Matched SSA-Survey Records • NHIS, SIPP, CPS, ACS, perhaps others. • Data on survey respondents before and after survey (particularly interesting with earnings files) • Match rate is sometimes low. • Restricted Access • Census RDCs (http://lehd.did.census.gov/led/research/rdc.html) • NCHS RDC (http://www.cdc.gov/rdc/) • Matched Administrative Records • RSA/SSA, Medicaid/SSA --- very hard to get a hold of --- involves agency lawyers. 16

  17. Key Issues (1) • Assistive Devices and Personal Assistance Services • Use of assistive devices/assistance is correlated to the severity of disability and household resources, thus it is difficult to use it as a proxy for the existence of a disability and to look at its impact on outcomes (like employment). • Proxy Responses • There is a general concern that the use of a proxy respondent reduces the accuracy of responses more so than for people without disabilities --- suggest running analyzes with and without proxy responses. • Low Incidence Disabilities • Many of the conditions of high interest (such as Autism Spectrum Disorder), even if in the data, have very small sample sizes. 17

  18. Some Suggested Literature (1) • Statistical Abstract: Houtenville, A. (2010). 2010 Annual Disability Statistics Compendium. Rehabilitation Research and Training Center on Disability Statistics and Demographics, Hunter College, New York, NY. Retrieved December 1, 2010, from www.DisabilityCompendium.org. • Overview of Data Sources & Improvements: Houtenville, A., Stapleton, D., Weathers, R., & Burkhauser, R. (Eds.). (2009). Counting working-age people with disabilities: What current data tell us and options for improvement. Kalamazoo, MI: W.E. UpJohn Institute for Employment Research. 18

  19. Some Suggested Literature (2) • Issues in Survey Data Collection: Markesich, J. (2008). Surveying persons with disabilities: A source guide. Washington, DC: Mathematical Policy Research, Inc. Retrieved February 11, 2011, from http://www.mathematica-mpr.com/publications/pdfs/surveypersons_ver2.pdf. • Policy Issues: Government Accountability Office. (2008). More strategic coordination could help overcome challenges to needed transformation. Washington, DC: GAO-08-635. Stapleton, D. & Burkhauser, R. (Eds.). (2003). The Decline in Employment of People with Disabilities: A Policy Puzzle, Kalamazoo, MI: W.E. UpJohn Institute for Employment Research. 19

  20. Some Suggested Literature (3) • Defining Disability: Nagi, S. 1965. “Some Conceptual Issues in Disability and Rehabilitation,” in M.B. Sussman, ed., Sociology and Rehabilitation, Washington, DC: American Sociological Association. Fields, M. & Jette, A. (Eds.). (2007). The Future of Disability in America. Washington, DC: National Academies Press. - aka, IOM Report. 20

  21. Contact Information Andrew J. Houtenville, Ph.D. Institute on Disability University of New Hampshire 10 West Edge Drive, Suite 201 Durham, NH 03824 (603) 862-4004 Andrew.Houtenville@unh.edu 21

More Related