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Enhancing Social Security with Personal Health Records: Challenges and Solutions

This whitepaper discusses the integration of Personal Health Records (PHR) within the Nationwide Health Information Network (NHIN) to improve the process of disability claims and medical record requests for the Social Security Administration. It highlights the experiences of stakeholders, including the 3 million disability benefit applications and millions of medical record requests. The document identifies technological, policy, and regulatory challenges that hinder efficient data sharing. Additionally, it proposes a prototype demonstrating the value of PHRs, emphasizing timely access and consistent information for better adjudication outcomes.

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Enhancing Social Security with Personal Health Records: Challenges and Solutions

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  1. Personal Health Record and Authorized Release of Information for Social Security Authorized Release of Information over the Nationwide Health Information Network March 1, 2010 Addy Naik | Senior Health IT Analyst | Social Security Administration

  2. Social Security as a stakeholder • 3 million applications for disability benefits • 15-20 million requests for medical records • 500k medical providers • $500 million dollars for medical records

  3. Disability Process Transfer Application for Clinical Adjudication Authorization for Release of Information Social Security Field Office Providers Application Information Requests for Medical Records Decision Claimant Adjudication Social Security Disability Determination Services

  4. Intake Process Information collected in the application Over Phone Providers Problems List Disability Application In person Claimant Medications Tests Over Internet

  5. Intake Process • Burden on the claimant • Low Quality • Time

  6. Personal Health Records Tests and Labs PHR Insurance Provider Secondary Use Emergency Services

  7. Using Personal Health Records Application Information Over Phone Disability Application In person Claimant PHR Over Internet

  8. Nationwide Health Information Network SSA SSA

  9. Using PHR Over NHIN NHIN Over Phone Disability Application In person Claimant PHR Over Internet

  10. Benefits • Time • Consistent Information • Longitudinal information • Reuse Infrastructure

  11. Technical Prototype • Objective • Develop a prototype with value case for personal health records working on NHIN • Findings • Technology challenges • Policy and regulatory challenges • Whitepaper

  12. Challenges • Policies • Standards • Privacy

  13. Let’s Not Forget

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