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Data Matters A research funder’s perspective 2 nd Communia Conference, June 2009

This article explores the importance of data management and sharing in research, specifically from the perspective of The Wellcome Trust. It discusses their mission, strategic aims, and current activities in facilitating research and promoting open access. It also highlights the key challenges faced in data management and the initiatives taken to enhance the value of the UKPMC repository.

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Data Matters A research funder’s perspective 2 nd Communia Conference, June 2009

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  1. Data MattersA research funder’s perspective2nd Communia Conference, June 2009 Nicola Perrin The Wellcome Trust

  2. The Wellcome Trust • independent biomedical research charity • established in 1936 • current spend of over £600m pa • supports over 3,000 researchers in more than 50 countries, across six continents • works to engage the public in research and to explore its societal implications

  3. Mission and strategic aims Our mission is to foster and promote research with the aim of improving human and animal health We have six strategic aims • advancing knowledge • using knowledge • engaging society • developing people • facilitating research • developing our organisation

  4. Facilitating research • we strive to foster a research environment in which biomedical science can flourish • we partner with others to develop key data resources: • Human Genome Project • Structural Genomics Consortium • UK Biobank • we also fund key databases via: • Wellcome Trust Sanger Institute • European Bioinformatics Institute • additional grant funding • we work to maximise access to research outputs (publications, data and collections)

  5. Research is generating rapidly increasing volumes of data… Structural Biology: Structures deposited in the Protein Data Bank* DNA sequencing: total gigabases by week(80 gigabases per week is 130,000 bases per second) Courtesy of Julian Parkhill *graph extracted from the Interim Report of the Blue Ribbon Task Force on Sustainable Digital Preservation and Access (Dec 2008)

  6. …in a diverse range of formats

  7. New insights through sharing data Courtesy of Leena Peltonen Malaria Atlas Project, University of Oxford

  8. Wellcome Trust: a long track record… • brokering policy consensus on data sharing issues: • Bermuda principles (1996) • Fort Lauderdale principles (2003) • developing tailored data policies release policies for major initiatives (e.g. SNP Consortium, HapMap, etc) • advocating and supporting open access publishing approaches

  9. Data Management and Sharing Policy • Published in Jan 2007 • We expect that all our funded researchers should: • maximise access to research data with as few restrictions as possible • consider their approach to data management in planning their research • requirement for data management and sharing plans within applications: • for projects that generate resources or large datasets that could be shared for added value • will meet costs for data sharing activities outlined in the plans

  10. Current activities At UK level • internal review of policy • UK Research Data Service discussions • range of multi-funder initiatives (e.g. NCRI Informatics programme) • research uses of electronic patient records At European level • partner in ELIXIR project • ERA-Net Instruments workshop At global level • developing a code of conduct for public health and epidemiological data • Fort Lauderdale follow-up meeting (led by Genome Canada) in May 09

  11. Key challenges • sustaining infrastructure required for long-term data storage and curation • overcoming a range of technical and cultural issues: • policy coordination and advocacy • provision of guidance • researcher incentives • standards, metadata and platforms • developing skills in data management • addressing data security and privacy concerns

  12. Open access policy All research papers – funded in whole or in part by the Wellcome Trust – must be made freely accessible from the PubMed Central and UKPMC repositories as soon as possible, and in any event within six months of the journal publisher’s official date of final publication Mandatory from October 2006

  13. OA - Key challenges • Improving compliance: • ~33% of Trust-funded papers in UKPMC within 6 months • Funding for author-side payments: • Funders must clarify how support is provided • Institutions and publishers must have clear processes • Clarifying publishers’ OA policy: • 95% of journals used by WT authors have a ‘WT compliant’ option • Some still have no OA policy – or v. complex • Clarifying re-use rights for manuscripts • Persuading researchers of the benefits…

  14. Enhancing the value of UKPMC… Abstracts – viewing biological entities Biological entities highlighted. Note colour coding only applies in the abstracts view Search can be refined using MeSH

  15. Enhancing the value of UKPMC 2 Text mining: related biological entities Biological entities based on mining of full-text – not just the abstracts

  16. Enhancing the value of UKPMC 3 Grant reporting

  17. Moving towards Europe PMC • Aim: a single, Europe-wide open access repository for peer-reviewed biomedical research papers. • 2 phase approach • Phase 1: Existing UKPMC service extended to European funders, using ‘Pay as you go’ model • Phase 2: Full Europe PMC service after July 2011 (new contract) New interface, additional value-added services Taking account of other developments in Europe From: …. To: ??? EUROPE

  18. Further information • Data sharing: http://www.wellcome.ac.uk/About-us/Policy/Spotlight-issues/ Data-management-and-sharing/index.htm • Open access: Web: http://www.wellcome.ac.uk/openaccess Email: openaccess@wellcome.ac.uk n.perrin@wellcome.ac.uk

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