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Informed Consent for Kidney Paired Donation

This proposal aims to improve the informed consent process for participants in Kidney Paired Donation (KPD) programs. It identifies the necessity for comprehensive communication regarding the benefits and risks associated with KPD. The proposal outlines strategies to inform participants about logistical aspects, ensure that non-directed and bridge donors fully understand the implications of their decisions, and applies informed consent policies across all KPD programs. Key points include addressing risks of shipping kidneys and remedies for failed exchanges, enhancing overall understanding and consent.

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Informed Consent for Kidney Paired Donation

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  1. Informed Consent for Kidney Paired Donation Kidney Transplantation Committee Fall 2014

  2. The Problem • Participants in KPD programs must be advised of the benefits and risks • Policy does not include informed consent section for KPD participants

  3. Goal of the Proposal • Inform participants of risks and benefits • Inform participants of logistical aspects • Ensure consent of non-directed donors and bridge donors is based on full understanding of benefits and consequences

  4. How the Proposal will Achieve its Goal • Apply KPD informed consent policies to participants in all KPD programs • Advise participants of risks of shipping kidneys • Explain remedy for a failed exchange • Provide elements of informed consent specific to non-directed donors and bridge donors

  5. Supporting Evidence • Feedback from March 2012 public comment proposal for KPD policy • March 2012 KPD Consensus Conference recommendations for donor evaluation and care

  6. What Members will Need to Do • Incorporate these elements into your informed consent process • Comply with the elements of informed consent for non-directed donors and bridge donors as applicable • Understand and communicate specific aspects of the KPD program in which the member participates • Matching requirements • Remedies for failed exchanges • Rules for meetings between matched donors and recipients

  7. Questions? • Richard Formica, MD Committee Chair richard.formica@yale.edu • Regional representative name (RA will complete) Region X Representative email address • Gena Boyle, MPA Committee Liaison gena.boyle@unos.org

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