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The Future is Here Now

The Future is Here Now. Cindy Brownstein Chief Executive Officer. Mission. Promote the prevention of Spina Bifida and to enhance the lives of all affected. SBA Network. 46 Chapters serving over 125 communities across the US

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The Future is Here Now

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  1. The Future is Here Now Cindy Brownstein Chief Executive Officer

  2. Mission • Promote the prevention of Spina Bifida and to enhance the lives of all affected

  3. SBA Network • 46 Chapters serving over 125 communities across the US • 165 Spina Bifida Clinics treating and caring for children and adults • National Resource Center reaches 10,000 each year

  4. Spina Bifida Stats • Spina Bifida affects • more than 70,000 individuals • approximately 3,000 pregnancies each year • all women of child-bearing age are at-risk of a Spina Bifida pregnancy

  5. SBA’s Tools • Education • Advocacy • Research • Service

  6. Education • Spina Bifida Awareness Campaign • Field Services Program • Folic Acid Education and Awareness Program • Media Outreach Efforts

  7. Advocacy • National Spina Bifida Program at the National Center on Birth Defects and Developmental Disabilities within the Centers for Disease Control and Prevention (CDC) • Agency for Healthcare Research and Quality (AHRQ) • Medicaid and the State Children’s Health Insurance Program

  8. Research • Research Program • Young Investigators • Evidence-Based Care/Quality Improvement Among Spina Bifida Clinics • National Spina Bifida Patient Registry

  9. Service • Field Services Program • Innovative Grant Program • Leadership Institute • Adopt-A-Ghost

  10. Working with Partners • Interdisciplinary centers such as the UCEDDs and LENDs helpful to achieving SBA’s goals • Education programs need to follow current trends • Advocacy efforts need data • Research grants program growth • Service efforts need partners

  11. Spina Bifida Association:The Future is Here Now • Reach top 50 markets in US • Nationwide organization serving every community • Everyone touched by Spina Bifida is touched by SBA

  12. For more information • Website: www.spinabifidaassociation.org • National Resource Center: 1-800-621-3141

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