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Responding to the Consultation on Service Specifications and Clinical Policies in PGD

Join Alastair Kent OBE, Director of Genetic Alliance UK, for a comprehensive webinar on the consultation process regarding service specifications and clinical policies, specifically focusing on Preimplantation Genetic Diagnosis (PGD). Scheduled for Tuesday, January 8, 2013, this session will address key questions, important points for consideration, and essential timelines for responses. Participants will learn how to effectively voice their feedback on these policies that shape specialized services. Ensure your response is timely by January 18.

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Responding to the Consultation on Service Specifications and Clinical Policies in PGD

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  1. Influencing specialised commissioning Responding to the consultation on service specifications and clinical policies Alastair Kent OBE Director Genetic Alliance UK Genetic Alliance UK webinar Tuesday 8th January 2013

  2. Overview • Your questions. • Key points to focus on in your response. • Timetable.

  3. Your questions Question 1 On page 19 of the Preimplantation Genetic Diagnosis policy (NHSCB/E1) it says that they will commission a maximum of 500 cycles in the first two years of this policy. Is this per year? What happens when they reach 500?

  4. Clinical Commissioning Policy: Preimplantation Genetic Diagnosis (PGD) - Page 19

  5. Clinical Commissioning Policy: Preimplantation Genetic Diagnosis (PGD) - Page 12

  6. Your questions Question 2 I don’t want to comment specifically on any of these documents, I want to talk about the whole thing. Where should I send my response? ssc.consultation@nhs.net

  7. Your questions Question 3 It looks like only tests that are on the UKGTN list will be commissioned – what about new tests?

  8. Medical Genetics Service SpecificationPage 17

  9. Clinical Commissioning Policy: Preimplantation Genetic Diagnosis (PGD) - Page 7

  10. Key points • Transition from paediatrics to adult • Remember to respond to all specialised services, not just the core service for the condition you support. • Hard numbers for staffing, and what defines a service. • Look out for the weasel words! May, should, where appropriate...

  11. Consultation on service specifications and clinical policies The link to the consultation is: www.commissioningboard.nhs.uk/ourwork/d-com/spec-serv/consult/ This is on the email inviting you to this webinar.

  12. No need to use the online form! The online form only allows you to discuss a single service specification at a time. If you wish to discuss more than one, this is best done in a document, which you can send here: ssc.consultation@nhs.net It is important to include the following details: • Your name. • Your email address. • The organisation you are representing (if applicable). • The services specification(s) that you are referring to.

  13. Deadline Friday 18th January

  14. Thank you for listening! Questions to: specialised2013@geneticalliance.org.uk Our Policy Analyst will do his best to respond to these as quickly as possible. We would like to thank the following organisations for donations to facilitate these webinars: BioMarin Pfizer Shire

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