Care PartnersSupport and Guidance is available Created By: BethAnnGoins August, 2013
Recommended guide book to help while caring for an Alzheimer’s person……………….. The National Institute on Aging with the assistance of the U.S. Department ofand HealthHumanServices published this easy to use guide. It offers a tremendous amount of information in which a care partner and others would like to share. Chapters included in guide are: • Understanding Alzheimer’s Disease (AD) • Caring for a Person with AD • Caring for yourself • When you need help • The Medical Side of AD • Coping with the Last Stages of AD • There are other topics as well **References are also available for early stages ** For a copy of the guide book contact: Alzheimer’s Disease Education and Referral (ADEAR) Center, Phone 1-800-438-4380 or online at www.nia.nih.gov/Alzheimer’s
Easy-to- use guide (cont.) At the end of this power point I will share some of the telephone and internet resources from the guide. This resourceful information can help acare partner through many tough situations.
When to ask for help………… All of us would like to think that we can help our loved ones on our own. With Alzheimer’s the care partner and their loved one will go through many changes and stages during the disease. There will be new things that will be experienced as the loved ones disease progresses and the person loses memory and becomes more confused. There are many programs and organizations that can benefit the care partner with support, answers to questions, education, and just to listen. It is important that care partners know that is fine to ask for guidance and help. This is a new experience for you both and having a support system in place when the time is needed will be essential. Some Care Partners appreciate help with early-stage memory loss while others may wait until they need more help in later-stages. Many of the programs offered through the guide are in Spanish as well as English which is a benefit as more Hispanics begin to age and their population increases.
Quotes from care partners One care partner wrote: (similar – not quoted) . How lonely it is to fix three meals a day to only eat in silence because her husband no longer talks. Singed a wife. There are many quotes from care partners speaking of coping, anger, love, decision making, but most of all; about getting help for themselves and their loved one. You are not alone…
Information Resources Alzheimer’s Disease Education and Referral (ADEAR) Center: P.O. Box 8250, Silver Spring, MD 20907-8250 Phone: 1-800-438-4380 or www.nia.nih.gov/Alzheimers This is a government website offering such services as: • Information on diagnosis • Treatment • Patient care • Care Partners needs • Long-term care • Research and clinical trials
Resources (cont.) Alzheimer’s Association 225 N. Michigan Avenue Chicago, IL 60601 1-800-272-3900 or www.alz.org Local Chapters are available, please contact their phone or website. A few services available: • Support Groups • Early-stage assistance • Help-line • Training programs
Resources(cont.) Alzheimer’s Foundation of America 322 Eighth Ave., 7th Floor New York, NY 10001 1-866-232-8484 or www.alzfdn.org This is a good source for educational literature and other written publications, which includes information regarding the care of an Alzheimer’s person. Their services also include a toll-free hotline, and other resources for care partners and family members . #1 Care Partner and family member
Conclusion…….. In closing I strongly suggested that you order your copy of; Caring for a Person with Alzheimer’s Disease. I have only mentioned a small piece of what is offered in the Guide. If you choose not too, that is fine. I would appreciate you viewing the rest of my Weebly website. Thank you friend, Beth